Advocacy

We dedicate resources to ensuring Congress and federal agencies are aware of and respond to the needs of the PKD community. Our goals are to further legislation, regulations and federal funding opportunities to improve the lives of everyone in the PKD community.

Join us in educating your elected officials about how they can help fight PKD by subscribing to our Advocacy Alerts. Your voice is vital to raising awareness of PKD and helping increase research funding to bring treatments and therapies to patients, and to provide the best care for those who rely on dialysis treatments or a kidney transplant to stay alive.

WHY IS ADVOCACY IMPORTANT?

With so many people and groups competing for attention, it is critical to make our voices heard. We encourage PKD community members to develop relationships with their representatives because it can make a significant difference.

Federal Research Funding
We are focused on furthering legislation, regulations, and federal funding opportunities to improve the lives of the PKD community.

Advocacy Champions Network
Learn about the patients, family members, and clinicians dedicated to improving the lives of people living with PKD through legislative advocacy.

Legislative Priorities
Our legislative and regulatory priorities are guided by our vision to #EndPKD. Learn more about the policies of importance to our community.

Tools & Resources
We encourage people with a connection to PKD to engage in advocacy because just one personal story can make a difference.

Advocacy Alert
Receive notifications about opportunities to raise your voice for the PKD community.

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