United on the Hill

United on the HillUnited on the Hill is our annual legislative and public policy conference in Washington, D.C. After participating in advocacy training, we spend a day on Capitol Hill meeting with our members of Congress, to both raise awareness for PKD and discuss our legislative priorities for the year.


We are excited to be bringing back the PKD National Convention this summer (June 20-22, 2014, in Kansas City, Missouri). As our focus will be on this event, a formal United on the Hill event will not take place this summer. We are evaluating when the next United on the Hill will be held. We hope you'll join us at the convention to learn and network with others.


We invite you to visit our recently updated Advocacy Action Center where we have tools for you to advocate from home year-round. If you would like to receive emails about PKD advocacy efforts, please visit Advocacy Alerts to sign up. Thanks for your support!


Sixth Annual United on the Hill
June 17-18, 2013

PKD advocates met with members of Congress to raise awareness for PKD and discuss our legislative priorities for the year, becoming a strong voice for the thousands of Americans with PKD! 

53 Advocates Attended
19 States Represented
65 Meetings Attended


States With Representation

Represented states are orange
United on the Hill Map

Click on the bars to the right for more information about this event, including our conference agenda, tips for traveling to Washington, DC and more information about current legislation important to the PKD community.  If you have additional questions, email us at pkdadvocacy@pkdcure.org.  Register today to be a PKD Advocate!

This year, we will build awareness about the following legislation:

  • Increase federal funding for PKD research
  • Change FDA policy for approving promising treatments and therapies
  • Tackle the shortage of kidney donors
  • Address inadequate Medicare coverage of immunosuppressive drugs  

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.
National Headquarters: 8330 Ward Parkway, Suite 510, Kansas City, MO 64114. Phone: 1.800.PKD.CURE
©2014 PKD Foundation. Privacy Policy | Terms & Conditions

Founded in 1982, our vision is that one day,
no one will suffer the full effects of polycystic kidney disease.

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