MONDAY, JUNE 17
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9:00 am – 12:00 pm
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Registration
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11:00 am – 11:30 pm
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WELCOME
Frank Condella, PKD Foundation Treasurer and Incoming Board Chair
Michelle Davis, PKD Foundation Interim CEO and Chief Development Officer
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11:30 – 12:00 pm
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The Role of Advocacy
Paul Conway, PKD Foundation Incoming Board Member
Vice President, American Association of Kidney Patients (AAKP)
President, Conway Global Strategies
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12:00 – 12:30 pm
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Lunch
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12:30 - 1:30 pm
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PKD Research Luncheon Keynote
Ben Cowley, MD, PKD Foundation Scientific Advisory Committee Chair and Incoming Vice Chair
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1:30 - 1:45 pm
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Break
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1:45 - 2:15 pm
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Update on the Affordable Care Act
Janet Miller, Division of Strategic Partnerships, Centers for Medicare and Medicaid
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2:15 - 2:45 pm
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Kidney Lobbying Efforts
Paul Conway
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2:45 - 3:00 pm
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Break
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3:00 - 3:30 pm
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PKD Foundation Legislative Priorities
George Sifakis and Natalie Torentinos, Axela
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3:30 - 4:45 pm
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Hill Visit Training
Congressman Louis Stokes
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4:45 - 5:15 pm
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Making Your Voice Heard After Today
Michelle Davis
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6:00 - 8:00 pm
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Reception
Hyatt Regency Washington on Capitol Hill
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