What Past Attendees Are Saying About United on the Hill


It's great to be able to enter the offices of Representatives and Senators with others who care about PKD. I can still picture the face of my Congressman’s aide as she learned just how widespread PKD is. In a democracy, numbers talk. Please consider adding your voice!

– Bill Brazell, New York

Although this was my fourth time lobbying for PKD in Washington, this experience included interesting guest speakers, clearly defined objectives and well planned prearranged appointments which facilitated my overall experience. I appreciate having the opportunity to be part of our inaugural Champions on the Hill event and look forward to doing this again next year!

– Karyn Waxman, Tennessee

I felt thoroughly prepared to speak with elected officials and staffers. One staffer remarked that he will feel a more direct connection to our issues because he now has actual faces to connect with polycystic kidney disease. Thanks for the opportunity to speak up and speak out for ourselves and all families affected by PKD.

– Teresa Andrus, Texas

My experience was truly remarkable. The dedication of the PKD Foundation staff was excellent. Advocacy is extremely important – to have a voice to raise awareness of PKD.

– Glenn Biagas, Texas

It was a truly rewarding experience and time well spent. The PKD Foundation did a great job of preparing us for our visits on Capitol Hill. I felt proud to be there in support of not only my family but all the families with PKD.

– Karen Acierno, Colorado

Greatest experience, meeting other people dealing with the same disease. Having a chance to help be a part of history in coming up with the end of PKD. Recommend this to everyone who a friend or family member struck by this to be involved with United on the Hill!

– Mark Kaufman, New Jersey

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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.