Keep Updated Advocacy

Washington summary November 2016

Congress returned to Washington, D.C. on Nov. 14.  After another break for Thanksgiving, Congress will resume work at the end of November. FY17 Appropriations The continuing resolution (CR) that keeps the government working expires on Dec. 9.  Congress is expected […]

PKD Foundation |

Washington summary October 2016

Congress has begun its extended recess and will not return to Washington until November 14. The pre-election period provides another opportunity for PKD advocates either to schedule meetings with their two senators and representative or to attend political events prior […]

PKD Foundation |

Washington summary September 2016

Congress returned from its extended recess on Sept. 6, 2016. FY17 Appropriations Congress will not complete work on the bills to fund the NIH and the FDA for fiscal year 2017 (FY17, starting Oct. 1, 2016) until after the November elections. […]

PKD Foundation |

Washington summary August 2016

Congress continues its extended recess and will not return to Washington until Sept. 6, 2016. Many critical issues will not be finalized until after the November elections. Only one bill must be passed prior to Oct. 1, 2016. A continuing […]

PKD Foundation |

Washington summary July 2016

Congress has begun its extended recess and will not return to Washington until Sept. 6. Political conventions will occur in the last two weeks of July. August may provide an opportunity for PKD advocates either to schedule meetings with their […]

PKD Foundation |

Meet with your elected officials in August

Did you know? Many members of Congress use August recess to hold constituent meetings in their home district offices. Now is the time to schedule your meeting with your elected officials! Share how PKD affects you and your family and […]

PKD Foundation |

Washington summary June 2016

FY17 Appropriations Congress will not complete work on the bills to fund the NIH and the FDA for fiscal year 2017 (starting Oct. 1, 2016) until after the November elections. Yet, the Appropriations Committees continue to work on their respective […]

PKD Foundation |

Washington summary May 2016

FY17 appropriations The House and Senate Appropriations Committees are working on their respective bills to fund the NIH and the FDA for fiscal year 2017 (starting Oct. 1, 2016). In April, the House Appropriations Committee approved its bill that includes […]

PKD Foundation |

Washington summary April 2016

21st Century Cures On April 6, the Senate HELP Committee completed action on a large package of bills to improve health innovation. S. 2700, FDA and NIH Workforce Authorities Modernization Act S. 185, Promise for Antibiotics and Therapeutics for Health Act […]

PKD Foundation |

Washington summary March 2016

Stakeholders meet with federal representatives Rare disease advocates met from Feb. 29 to March 3 for the annual Rare Disease Week on Capitol Hill. Ordinary citizens, including kidney disease stakeholders, had the opportunity to learn about issues before Congress and […]

PKD Foundation |

Congressional update Feb. 2016

The first part of February has been important for the PKD community and other rare disease interests. Senate 21st Century Cures action begins In Jan., Sen. Lamar Alexander (R-TN), chairman of the HELP Committee, announced that the Committee would not […]

PKD Foundation |

Congressional update Jan. 2016

Senate 21st Century Cures action expected soon Senator Lamar Alexander (R-TN), chairman of the HELP Committee, indicated in late Dec. that a health research innovation bill (the Senate version of 21st Century Cures) would be the Committees number one priority […]

PKD Foundation |