News and Information
PKD Foundation News and Announcements
March 17, 2015
Saintsation Kriste was a guest speaker at the Polycystic Kidney Disease (PKD) Foundation's Leadership Conference in Kansas City, Mo., from Feb. 20-22. There were more than 100 people in attendance; two representatives from each state and some representatives from Canada. Attendees were chapter coordinators and leaders across the country with goals of updating each other on ongoing kidney research and continuing to raise awareness of PKD.
Read more about Kriste
A note from your Chapter Coordinator:
Let’s make 2015 a great year for the Charlotte Chapter and let’s be there for each other as we fight this disease. From time to time we will send out a S.O.S. asking for your help on PKD topics. Please let us know if you can help!
We’ve recently added several new members to the Chapter. Each individual is in a different stage of their journey with PKD. Many have mentioned that they want to get involved in helping our Chapter grow, as well as helping the Foundation’s mission. New members and current members are encouraged to email us to suggest topics for discussions, awareness events and/or other items of interest. We need to share our DIY projects and success stories. Don’t be shy! Our goal is the same – fighting for the PKD community!
SAVE THE DATE: WALK FOR PKD. November 7, 2015, Park Road Park, Charlotte. Walk Coordinator, Bob August, has hit the grounding…walking (pun intended). He is looking for volunteers to help in securing sponsors, food, beverages and more. Contact Bob at email@example.com to offer your assistance. Please know YOU are in control of the time you commit to helping make this Walk a success.
Charlotte members have a great opportunity fulfill one of the 31 days of PKD Challenges on March 12th. Tell your neighbors and friends to check out the Duke Energy Center in the evening. It will be ORANGE! This is to celebrate Kidney Awareness Day! This would be a great day to drop a note to members of congress asking they support kidney disease research. Or do you want to do that one March 13th to fulfill another day of the PKD Challenge?
Calling all marathoners! Please contact your Chapter Coordinator, JoAnn Villanueva, at firstname.lastname@example.org to discuss how to secure your spot in the half-marathons taking place throughout the U.S.A. This is a great fundraiser and the PKD Foundation is here to help!
Local Events and Meetings
Meet & Greet
Saturday, April 25
9:30 a.m. to 11:30 a.m.
9705 Sam Furr Road
Huntersville, NC 28078
Our first, of many “Meet & Greet” events, is planned for Saturday, April 25, 2015 at 9:30 a.m. We will meet at Waterbean Coffee, 9705 Sam Furr Road, Suite A, Huntersville, NC 28078. Our chapter has many new members who want to connect with other PKD patients and PKD family members. Several of you have stated you want to “get more involved” with the Chapter. Current members are encouraged to join us as we move forward in building a strong Chapter. Everyone is encouraged to stop in, have a cup of coffee (decaf, of course), tea and/or a morning treat and share your thoughts, concerns and ideas.
Other Meet & Greet events will take place throughout the Charlotte area in the coming months. We encourage everyone to attend our first Meet & Greet to lay the ground work for the future. Please (!) R.S.V.P. the email@example.com. If you are unable to attend and you wish to share a thought, concern or idea, please feel free to send an email to the firstname.lastname@example.org
If you would like to connect with our volunteer Chapter Coordinator, please email JoAnn at email@example.com.
Charlotte Walk for PKD
The Charlotte Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Charlotte Walk for PKD!
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Latest Free Webinar
Presented by Lawrence Grunfeld, M.D., clinical associate professor of Obstetrics and Gynecology at the Mount Sinai School of Medicine and co-director of Reproductive Medicine Associates of New York
Preimplantation genetic diagnosis, known as PGD, is a screening test used to determine if genetic or chromosomal disorders are present in embryos produced through in vitro fertilization (IVF).
In this webinar, Lawrence Grundfeld, M.D. speaks and answers questions about PGD as it relates to PKD. He is also joined by two families who have chosen to use PGD in family planning.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.