News and Information
Save the date: PKD National Convention 2016
Join us June 24 to 26, 2016, at the PKD National Convention in Orlando. You'll discover ways to manage your or a loved one's health from an all-star assembly of PKD experts.
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
Let’s make 2015 a great year for the Charlotte Chapter and let’s be there for each other as we fight this disease. From time to time we will send out a S.O.S. asking for your help on PKD topics. Please let us know if you can help!
We’ve recently added several new members to the Chapter. Each individual is in a different stage of their journey with PKD. Many have mentioned that they want to get involved in helping our Chapter grow, as well as helping the Foundation’s mission. New members and current members are encouraged to email us to suggest topics for discussions, awareness events and/or other items of interest. We need to share our DIY projects and success stories. Don’t be shy! Our goal is the same – fighting for the PKD community!
SAVE THE DATE: WALK FOR PKD. November 7, 2015, Park Road Park, Charlotte. Walk Coordinator, Bob August, has hit the grounding…walking (pun intended). He is looking for volunteers to help in securing sponsors, food, beverages and more. Contact Bob at firstname.lastname@example.org to offer your assistance. Please know YOU are in control of the time you commit to helping make this Walk a success.
Calling all marathoners! Please contact your Chapter Coordinator, JoAnn Villanueva, at email@example.com to discuss how to secure your spot in the half-marathons taking place throughout the U.S.A. This is a great fundraiser and the PKD Foundation is here to help!
Local Events and Meetings
Join us for our Chapter Meet & Greets. We will meet at Waterbean Coffee, 9705 Sam Furr Road, Suite A, Huntersville, NC 28078. Our chapter has many new members who want to connect with other PKD patients and PKD family members. Several of you have stated you want to “get more involved” with the Chapter. Current members are encouraged to join us as we move forward in building a strong Chapter. Everyone is encouraged to stop in, have a cup of coffee (decaf, of course), tea and/or a morning treat and share your thoughts, concerns and ideas.
Meet & Greet events will take place throughout the Charlotte area in the coming months. We encourage everyone to attend our first Meet & Greet to lay the ground work for the future. If you wish to share a thought, concern or idea to assist us in planning upcoming Meet & Greets, please feel free to send an email to the firstname.lastname@example.org.
Check back for dates and times!
Patient Empowerment Workshop
Tuesday, Sept. 8, 2015
10 a.m. - 2:30 p.m.
Crowne Plaza Hotel
5700 Westpark Drive
Charlotte, NC 28217
Title - Being My Best: Self Management
The patient workshop is a one-day event for Stage 4 and Stage 5 CKD patient's and their caregivers. Topics include: Transplantation, Self Management, and Quality of Life. Space is limited and registration is required.
Contact Ashley Love: 704.519.0020 ext. 624
If you have questions about the event please email our Vounteer Chapter Coordinator, JoAnn at email@example.com.
Download the event flyer!
Charlotte Walk for PKD
November 7, 2015
Park Road Park
Registration is now open!
To learn more about the Charlotte walk or to donate, click here.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Aug. 19, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will explain how cysts form and why they are so problematic. He will also take time at the end of his presentation to answer your questions.
Next National Webinar
Tuesday, Aug. 18, 7 - 8 p.m. CDT
Kidney stones can be painful and occur more often in PKD patients than in the general population. Tune in Tuesday, Aug. 18 at 7 p.m. CT to learn from Dr. Arlene Chapman, Dr. Bharathi Reddy and Dr. Anna Zisman about what kidney stones are, why they happen and what can be done to treat them.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.