News and Information
PKD Foundation News and Announcements
April 22, 2015
Chef Michael Psilakis will be competing against fellow celebrity chefs on Food Network's fourth season of Chopped All-Stars. Michael's episode airs Tuesday, May 12 at 9 p.m. Central Time. If he advances and wins in the final competition round on May 26, Michael will donate $75,000 to the PKD Foundation, his charity of choice.
Read more about Chef Michael Psilakis
A note from your Chapter Coordinator:
Let’s make 2015 a great year for the Charlotte Chapter and let’s be there for each other as we fight this disease. From time to time we will send out a S.O.S. asking for your help on PKD topics. Please let us know if you can help!
We’ve recently added several new members to the Chapter. Each individual is in a different stage of their journey with PKD. Many have mentioned that they want to get involved in helping our Chapter grow, as well as helping the Foundation’s mission. New members and current members are encouraged to email us to suggest topics for discussions, awareness events and/or other items of interest. We need to share our DIY projects and success stories. Don’t be shy! Our goal is the same – fighting for the PKD community!
SAVE THE DATE: WALK FOR PKD. November 7, 2015, Park Road Park, Charlotte. Walk Coordinator, Bob August, has hit the grounding…walking (pun intended). He is looking for volunteers to help in securing sponsors, food, beverages and more. Contact Bob at firstname.lastname@example.org to offer your assistance. Please know YOU are in control of the time you commit to helping make this Walk a success.
Calling all marathoners! Please contact your Chapter Coordinator, JoAnn Villanueva, at email@example.com to discuss how to secure your spot in the half-marathons taking place throughout the U.S.A. This is a great fundraiser and the PKD Foundation is here to help!
Local Events and Meetings
Meet & Greet
Saturday, April 25
9:30 a.m. to 11:30 a.m.
9705 Sam Furr Road
Huntersville, NC 28078
Online registration for this event is now closed, however, everyone is welcome to join! If you are interested in attending or have questions about the event please email our Vounteer Chapter Coordinator, JoAnn at firstname.lastname@example.org.
Our first, of many “Meet & Greet” events, is planned for Saturday, April 25, 2015 at 9:30 a.m. We will meet at Waterbean Coffee, 9705 Sam Furr Road, Suite A, Huntersville, NC 28078. Our chapter has many new members who want to connect with other PKD patients and PKD family members. Several of you have stated you want to “get more involved” with the Chapter. Current members are encouraged to join us as we move forward in building a strong Chapter. Everyone is encouraged to stop in, have a cup of coffee (decaf, of course), tea and/or a morning treat and share your thoughts, concerns and ideas.
Other Meet & Greet events will take place throughout the Charlotte area in the coming months. We encourage everyone to attend our first Meet & Greet to lay the ground work for the future. If you are unable to attend and you wish to share a thought, concern or idea, please feel free to send an email to the email@example.com
Charlotte Walk for PKD
Save the Date
November 7, 2015
Park Road Park
June 1, 2015
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Latest Free Webinar
On March 28, 2015, PKD Foundation Chapters were invited to participate in an exclusive, online educational conference! PKD experts from across the United States discussed topics that are important to PKD patients. This year's focus was complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Not everyone that has PKD will experience every complication associated with the disease however, understanding these issues will help you to be your best advocate when you visit your physicians.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.