Charlotte ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at charlottechapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

 

PKD Foundation News and Announcements

Saintsation Kriste Spoke at Polycystic Kidney Disease Foundation's Leadership ConferenceKriste Lewis

March 17, 2015

Saintsation Kriste was a guest speaker at the Polycystic Kidney Disease (PKD) Foundation's Leadership Conference in Kansas City, Mo., from Feb. 20-22. There were more than 100 people in attendance; two representatives from each state and some representatives from Canada. Attendees were chapter coordinators and leaders across the country with goals of updating each other on ongoing kidney research and continuing to raise awareness of PKD.

Read more about Kriste

 


 

A note from your Chapter Coordinator:

Let’s make 2015 a great year for the Charlotte Chapter and let’s be there for each other as we fight this disease.  From time to time we will send out a S.O.S. asking for your help on PKD topics. Please let us know if you can help!

We’ve recently added several new members to the Chapter. Each individual is in a different stage of their journey with PKD.  Many have mentioned that they want to get involved in helping our Chapter grow, as well as helping the Foundation’s mission.  New members and current members are encouraged to email us to suggest topics for discussions, awareness events and/or other items of interest.  We need to share our DIY projects and success stories.  Don’t be shy!  Our goal is the same – fighting for the PKD community!

SAVE THE DATE:  WALK FOR PKD.  November 7, 2015, Park Road Park, Charlotte. Walk Coordinator, Bob August, has hit the grounding…walking (pun intended). He is looking for volunteers to help in securing sponsors, food, beverages and more. Contact Bob at charlottewalk@pkdcure.org to offer your assistance.  Please know YOU are in control of the time you commit to helping make this Walk a success. 

Charlotte members have a great opportunity fulfill one of the 31 days of PKD Challenges on March 12th.  Tell your neighbors and friends to check out the Duke Energy Center in the evening.  It will be ORANGE!  This is to celebrate Kidney Awareness Day!  This would be a great day to drop a note to members of congress asking they support kidney disease research.  Or do you want to do that one March 13th to fulfill another day of the PKD Challenge?

Calling all marathoners!  Please contact your Chapter Coordinator, JoAnn Villanueva, at charlottechapter@pkdcure.org to discuss how to secure your spot in the half-marathons taking place throughout the U.S.A.  This is a great fundraiser and the PKD Foundation is here to help!

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Calendar Local Events and Meetings

Meeting Chapter Meetings

Meet & Greet

Saturday, April 25
9:30 a.m. to 11:30 a.m. 

 

Location:
Waterbean Coffee
9705 Sam Furr Road
Suite A
Huntersville, NC 28078

Our first, of many “Meet & Greet” events, is planned for Saturday, April 25, 2015 at 9:30 a.m.  We will meet at Waterbean Coffee, 9705 Sam Furr Road, Suite A, Huntersville, NC 28078.  Our chapter has many new members who want to connect with other PKD patients and PKD family members.  Several of you have stated you want to “get more involved” with the Chapter.  Current members are encouraged to join us as we move forward in building a strong Chapter.  Everyone is encouraged to stop in, have a cup of coffee (decaf, of course), tea and/or a morning treat and share your thoughts, concerns and ideas.

Other Meet & Greet events will take place throughout the Charlotte area in the coming months.  We encourage everyone to attend our first Meet & Greet to lay the ground work for the future.  Please (!)  R.S.V.P.  the charlottechapter@pkdcure.org.   If you are unable to attend and you wish to share a thought, concern or idea, please feel free to send an email to the charlottechapter@pkdcure.org 

 

If you would like to connect with our volunteer Chapter Coordinator, please email JoAnn at charlottechapter@pkdcure.org.

 

 


Charlotte Walk for PKD

Twitter Profile Picture

 

    The Charlotte Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and    appreciate all of the support. We look forward to seeing you this fall at the 2015 Charlotte Walk for PKD!

 

 

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Resources Resources

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Latest Free Webinar

WatchPreimplantation Genetic Diagnosis (PGD) 101

Presented by Lawrence Grunfeld, M.D., clinical associate professor of Obstetrics and Gynecology at the Mount Sinai School of Medicine and co-director of Reproductive Medicine Associates of New York

Preimplantation genetic diagnosis, known as PGD, is a screening test used to determine if genetic or chromosomal disorders are present in embryos produced through in vitro fertilization (IVF).

In this webinar, Lawrence Grundfeld, M.D. speaks and answers questions about PGD as it relates to PKD. He is also joined by two families who have chosen to use PGD in family planning.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.