Welcome to the

Connecticut

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

Thank you to everyone who attended and supported the 2023 Walk for PKD. Information on the 2024 Walk for PKD season coming soon!

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry. 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Catherine Cardoso

PKD Connect Ambassador

Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.

I am a Connecticut resident, a first generation immigrant, a mother of two wonderful kids, a wife to a great husband and a brand marketeer. Seven years ago, my family and I faced a great challenge when we found out my husband had reached full renal failure. Thanks to the generosity of a dear friend from work, my husband has been able to enjoy amazing memories with my children, now seven
and fourteen years old. Our journey continues as my sister in law manages dialysis and a search for a donor.

Volunteering at the PKDF is my way of paying it forward. To the healthcare professionals, family, friends, work colleagues and strangers who heard about our situation, I will always be grateful for their prayers, words of encouragement, expertise and support. My goal is to share our experience and support other families who are going through a similar experience and to support the efforts to
find a cure.

 

Page last updated February 2024