Delaware ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.




News and Information News and Information

A note from your Chapter Coordinator:

We’re pleased to announce Carol Soha, Ph.D., as the new Delaware Chapter Coordinator. Carol comes to this position with extensive experience in health education, nursing and non-profits. She retired from nursing after many years and was Executive Director of the Delaware Center of Wellness, which promoted wellness in worksites throughout the state.

Carol has firsthand understanding of PKD as it runs in her family. She was fortunate to have received a living donor kidney in 2013. Carol took on this volunteer challenge to help her daughters and all those affected by PKD and to show her appreciation for the selfless act by her donor.

Carol is anxious to network with individuals and institutions with a similar mission to promote PKD awareness, kidney health and to increase the number of living and deceased donors.

Delaware is the state of Endless Discoveries. Families affected by PKD will learn of “endless discoveries’ through their involvement with the PKD Foundation. She invites those in need of information or who want to help with the annual Walk for PKD,other fundraisers or education events to contact her at (302) 373 – 7179 or at


PKD Foundation News and Announcements


What's New in PKD A Day of Learning



PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!

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Calendar Local Events and Meetings

Meeting Chapter Meetings

What's New in PKD: A Day of Learning

Saturday, March 28, 2015
11 a.m. - 3:30 p.m.

Penn Medicine Valley Forge
1001 Chesterbrook Blvd.
Berwyn, PA 19312


We will meet in the conference room on the ground floor, right behind the courtesy desk.

PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss  topics that are important to PKD patients.

Bottled water and light snacks will be provided. Please feel free to bring a bagged lunch.

Online registration for this event is now closed, however, everyone is welcome to join! If you are interested in attending the event or if you have any questions or would like to connect with our Volunteer Chapter Coordinator at


Delaware Walk for PKD

 Facebook Profile Picture

The Delaware Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Delaware Walk for PKD!






Dutch Country Farmer's Market Event

March 13, 2015

701 N. Broad Street
Middletown, DE 19709

Volunteers will be distributing PKD information and collecting donations every Friday and Saturday starting on March 13, 2015 until March 28, 2015 from 9 a.m. - 3 p.m.

If you or someone you know is interested in volunteering for this event please contact Carol Soha at


Women and Wine Dinner

Thursday, March 19

6:30 p.m - 9 p.m.

Lupo di Mare
247 Rehoboth Ave.
Rehoboth Beach, DE  19971
[located in the Hotel Rehoboth] 

Join us as we raise funds and awareness for the PKD Foundation. This fun event will feature a creative Italian four course meal paired with wines. The cost will be $39 plus gratuity. For each guest in attendance, Lupo Di Mare will make a $5 donation to the PKD Foundation. To make reservations, please contact Alexis Schreiber at or 302-226-2240. For more information please contact Carol Soha at  

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Resources Resources

Sign Up to Receive Information From Your Chapter

Latest Free Webinar

WatchPreimplantation Genetic Diagnosis (PGD) 101

Presented by Lawrence Grunfeld, M.D., clinical associate professor of Obstetrics and Gynecology at the Mount Sinai School of Medicine and co-director of Reproductive Medicine Associates of New York

Preimplantation genetic diagnosis, known as PGD, is a screening test used to determine if genetic or chromosomal disorders are present in embryos produced through in vitro fertilization (IVF).

In this webinar, Lawrence Grundfeld, M.D. speaks and answers questions about PGD as it relates to PKD. He is also joined by two families who have chosen to use PGD in family planning.


PKD Connection

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.