Delaware ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.


The Delaware Chapter is currently seeking a volunteer Chapter Coordinator to manage the local Chapter activites. Please contact Cindy LeBlanc at for more information.    



News and Information News and Information



Sunday, November 2, 2014


Are you a runner? Is someone you know a runner? Want a chance to run in a premier marathon?

We are looking to fill the last few spots in the 2014 TCS New York City Marathon within the next three weeks! Click here to view the participation options. Register today to secure your spot in this bucket list race.  Hurry, before they are gone!

Most importantly, you will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.

Run for PKD

 Questions? Contact us at or 816.268.8469.

Walk for PKD 2014Walk Season is Here!

Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.

Find Your Walk and Register Now!



Transplant Games of AmericaTransplant Games of America


We had an amazing time at the Transplant Games of America!  Thank you to everyone that stopped by our booth and shared your transplant story with us.  Congratulations to everyone that participated in the games!



View Slideshow!



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Calendar Local Events and Meetings

Meeting Chapter Meetings

Community Health Fair

Middletown Spring Arbor Annual Health Fair

Wednesday, October 15, 2014
11:00 am - 2:00 pm

Middletown Spring Arbor Clubhouse
106 Gazebo Lane
Middletown, DE 19709

The Delaware Chapter will attend the Middletown Spring Arbor Annual Health Fair to provide information about PKD to the Middletown community.  Volunteers are needed for one hour shift commitments.  Please email Rosalie at if you are interested in volunteering at this event. 


The Delaware Chapter does not have any local meetings or events scheduled at this time however, we do want to hear from you. If you would like to connect with our Volunteer Chapter Coordinator, please email Rosalie at

Please check back often for updates!

Thanks so much to Delcastle High School, especially Jean Crowe, RN, BSN and her MA and HOSA students. More than $100 was raised as part of Pennies 4 PKD!

A big thanks to all the DE Chapter volunteers who gave of their time to sit at the Dutch Country Farmers Market every Fri and Sat during March. We also really appreciate the generosity of the Middletown community. More than $750 was raised!

Delaware Walk for PKD

Saturday, September 20
Glasgow Park, Glasgow Regional #3

For more information, click here!

Register Today




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Resources Resources

Latest Webinar

Dr. Howard WinokuerTalking to Your Children About PKD

May 19, 2014
Presented by Howard R. Winokuer, Ph.D.

Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.

Watch Now


PKD Will Not Beat Me

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.