Delaware ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at delawarechapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

   

 

 

News and Information News and Information

A note from your Chapter Coordinator:


We’re pleased to announce Carol Soha, Ph.D., as the new Delaware Chapter Coordinator. Carol comes to this position with extensive experience in health education, nursing and non-profits. She retired from nursing after many years and was Executive Director of the Delaware Center of Wellness, which promoted wellness in worksites throughout the state.

Carol has firsthand understanding of PKD as it runs in her family. She was fortunate to have received a living donor kidney in 2013. Carol took on this volunteer challenge to help her daughters and all those affected by PKD and to show her appreciation for the selfless act by her donor.

Carol is anxious to network with individuals and institutions with a similar mission to promote PKD awareness, kidney health and to increase the number of living and deceased donors.

Delaware is the state of Endless Discoveries. Families affected by PKD will learn of “endless discoveries’ through their involvement with the PKD Foundation. She invites those in need of information or who want to help with the annual Walk for PKD,other fundraisers or education events to contact her at (302) 373 – 7179 or at delawarechapter@pkdcure.org.


 

PKD Foundation News and Announcements

What's New in PKD A Day of Learning

 

PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!

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Calendar Local Events and Meetings

Meeting Chapter Meetings

 

The Delaware Chapter does not have any meetings scheduled at this time however, we do want to hear from you. If you have any questions or would like to connect with our Volunteer Chapter Coordinator, please  email Carol Soha, at delawarechapter@pkdcure.org.

Check back for updates!


Delaware Walk for PKD

 Facebook Profile Picture

The Delaware Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Delaware Walk for PKD!

 

 

 

 


 

Dutch Country Farmer's Market Event

March 13, 2015

701 N. Broad Street
Middletown, DE 19709
 

Volunteers will be distributing PKD information and collecting donations every Friday and Saturday starting on March 13, 2015 until March 28, 2015 from 9 a.m. - 3 p.m.

If you or someone you know is interested in volunteering for this event please contact Carol Soha at DelawareChapter@pkdcure.org

 


 

Save the Date:

Women and Wine Dinner

Thursday, March 19

6:30 p.m - 9 p.m.

Lupo di Mare
247 Rehoboth Ave.
Rehoboth Beach, DE  19971
[located in the Hotel Rehoboth] 
 

Join us as we raise funds and awareness for the PKD Foundation. This fun event will feature a creative Italian four course meal paired with wines. The cost will be $39 plus gratuity. For each guest in attendance, Lupo Di Mare will make a $5 donation to the PKD Foundation. To make reservations, please contact Alexis Schreiber at Alexis@sodelconcepts.com or 302-226-2240. For more information please contact Carol Soha at DelawareChapter@pkdcure.org.  

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Resources Resources

Sign Up to Receive Information From Your Chapter


Latest Free Webinar

Dr. Clifford MilesKidney Allocation System Q&A

Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center

On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.