Delaware ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at delawarechapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

   

 

News and Information News and Information

A note from your Chapter Coordinator:


Greetings to the Delaware PKD Community,

Well, my first year as Delaware's Chapter Coordinator is under my belt. It was a learning experience with a couple notable successful events. Thank you and congratulations to Erin and Patty, the Chapter's Walk Coordinators, for a successful, fun, and well-organized event. Thank you to Rosalie and my daughter, Beth, for their efforts in raising raffle items and drumming up attendees for a sellout crowd to the Women and Wine dinner. Thank you to Vincent for spearheading the Dutch Country market public awareness fundraiser.  

It's a new year with new opportunities to raise awareness for PKD and to raise funds to help find a cure. More specifically, I and committed chapter volunteers will: 

1. Meet with those affected by PKD to share stories, inform them of the resources locally and nationally and to recruit them to get involved with our chapter.
2. Work with nephrology offices and dialysis centers to reach PKD patients to inform them of our Delaware Chapter and the resources of the PKD Foundation.
3. Hold events to raise funds to help find a cure.

Put these dates on your calendar. You will receive more details as events near.

       August 16.  Chicks for Charity Dinner in Lewes 
       September 17.  Annual Walk for a Cure in New Castle County
       October 20. Women and Wine Dinner in Rehoboth 

PKD runs through families. It affects our past, present and future. Here are 7 ways you can help us find a cure to bring about a better future. How many of the 7 can you commit to?

1. Make sure you are on the PKD Foundation mailing and emailing list. 
2. Friend the Delaware Chapter of the PKD Foundation Facebook page.
3. Attend events and bring your family and friends.
4. Help get raffle items donated for our events.
5. Sign up for AmazonSmile and select the PKD Foundation for your charity. One-half of one percent of the costs of all "smile" purchases goes to the Foundation. I just checked all my recent purchases and they all qualified for the charity donation. 
6. Hold your own DIY fundraiser. Go to pkdcure.org and search DIY for ideas.
7. Participate in clinical studies to help find a treatment/cure. Sign up to receive ACT Alerts at  pkdcure.org/clinicalstudies. Take study information to your nephrologist. 

In June I will attend the Coordinators' Leadership workshop and National Convention of the PKD Foundation. I am honored to represent you. I will post highlights of these meetings on our Facebook page when I return. 

As always, if you want to meet and chat or learn how you can get involved with the Delaware Chapter, please email me at DelawareChapter@PKDCure.org or call 302-373-7179.

For a cure,

Carol Soha, Volunteer  
Delaware Chapter Coordinator 
PKD Foundation


PKD Patient Handbook

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

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Calendar Local Events and Meetings

Meeting Chapter Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Although the Delaware Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator at delawarechapter@pkdcure.org.

Check back for updates! 


Delaware Awareness Booth

14th Annual Wilmington Wellness Day
Saturday, April 30
11 a.m. to 3 p.m.

Rodney Square in downtown Wilmington
11th and King streets
Wilmington, DE 19801

We are pleased to join 100 exhibitors at this wellness day which may attract as many as 2,000 attendees. Come join us to share your story with others.


Delaware Dutch Country Farmer's Market

Fridays and Saturdays in March (starting March 11)

10 a.m. to 2 p.m.

 

Dutch Country Market

701 N. Broad

Middletown, DE 19709

 

Join us at the Dutch Country Farmer's Market every Friday and Saturday from 10 a.m. to 2 p.m. starting March 11 until March 26. Volunteers will be distributing PKD information and collecting donations in support of the PKD Foundation. 


Delaware Walk for PKD

           

Thank you to all who joined us for the 2015 Delaware Walk for PKD!

We had a great time connecting with everyone! Check out some of our favorite memories from the Walk here.  

   Save the date!
   Sept. 17, 2016
   Glasgow Park, Pavilion 1

 

If you are interested in helping out with the Delaware Walk, conact Erin at delawarewalk@pkdcure.org.           

                                

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Resources Resources

Latest Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Conversation with a researcher

Bradley Yoder, Ph.D., discusses the results of his recently completed PKD Foundation-funded project "In vivo analysis of cilia mechanosensation in the kidney."

Watch now

Learn more about Webinar Wednesdays or watch previous webinars here.


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.