Hudson Valley Chapter

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. There are jobs for everyone, big and small. Just contact us at to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

PKD FoundationHudson Valley Chapter



Chapter Info Chapter Info

Recent News Recent News

Meetings Meetings

Local Events Local Events

Media Media


Chapter Info Chapter Info

Welcome to the PKD Foundation’s Hudson Valley Chapter Website!  


Hudson Valley Chapter Meet & Greets!

Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn about which medical professionals in the community specialize in PKD?
Would you like to see more events happening in your local county or community?
Interested in getting more involved with your local chapter?

The local volunteers of the Hudson Valley Chapter meet about every month, and are available for support and to share their experiences about living with PKD.  If you would like to speak with someone, or attend a chapter get together, please email

Would you like to get involved with planning events?

Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD or Cocktails for a Cure events.  Email for more information.



Chapter Resources
Are you in need of support or just looking to speak with another PKD patient, family member or caregiver? Sandy Grossman is our Support Leader and she will do her best to meet your needs and get you in touch with the right person. Contact Sandy at and let her know what you need!

Are you interested in PKD Advocacy? Concerned about PKD patients' needs being heard in Congress and the Senate? Please contact us for volunteer opportunities. 


Recent News Recent News


Better Together at the PKD National ConventionPKD National Convention: Better Together

 June 20–22, 2014

Kansas City, Mo.

This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.

 Visit to register and learn more.


Transplant Games of America


Transplant Games of America

Houston, Texas
July 11 - 15, 2014

The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries.  The games are more than an athletic event!  They highlight the importance of organ donation and celebrate the lives of organ donors and recipients.  For more information about the 2014 Transplant Games of America and to register to participate, visit

The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families.  If you plan to participate, please take our brief survey! 

Take Our Survey


Chapter Member News 

The Hudson Valley Cocktails for a Cure event held on May 9, 2013 in White Plains, raised over $10,000 and celebrated 30 years of research by the PKD Foundation and honored Charles J. (Chuck) Newman for his ongoing efforts to raise money and awareness of PKD which touches his entire family. 

Thank you to the sponsors who supported the event, including Charles J. Newman, Diane Kahn, and Ralph L. Rogers, to name a few.
Mark your 2014 Calendar: Next Year the “Cocktails for a Cure” event will be held on Thursday, May 8, 2014!



Meetings Meetings

Meeting topics will include the planning of upcoming events such as an Educational Meeting, Cocktails for a Cure, and the 11th Annual Hudson Valley Walk for PKD. General discussions about PKD and Support are always welcome to anyone interested.
The Hudson Valley Chapter does not have any meetings scheduled at this time but we do want to hear from you.  If you have questions or would like to connect with our Volunteer Chapter Coordinators, please email us at
Check back for meeting updates!

Other Meetings Near You:

The New York City Chapter is hosting an Education Meeting and you are welcome to join. 

New York City Education Meeting - I Have PKD, Now What?

Saturday, May 3, 2014
9:30 a.m. - 1:30 p.m.

New York University
227 E. 30th Street
New York, NY 10029

Speaker: Judy Ehrlich, New England Chapter Volunteer Coordinator

Join members of the New York City Chapter to learn about the six most important steps you can take NOW to improve your physical and emotional health as you grapple with how to live the best life possible with a chronic disease.

If you have questions or would like to connect with our Volunteer Chapter Coordinator, please email Sarah at


Local Events Local Events 


Save the Date!

Cocktails for a Cure: Shining Stars of PKD! – May 8, 2014

Join us at the Cocktails for a Cure Friend-Raiser event on May 8 from 6-10pm, in White Plains, as we celebrate the 10th Anniversary of the PKD Foundation’s Hudson Valley Chapter, and remember those who have contributed to the Chapter’s successes over the years.

The Cocktails for a Cure event will be held at the Vintage Restaurant & Lounge in White Plains. Please click here for more information. Sponsorship and volunteer opportunities are currently available.

 Questions? Contact Darien DaCosta at




Other Events Near You:



Casino Night hosted by Auxilium

Saturday, April 26, 2014

Asura - Asian Bistro & Bar
235 West 35th Street, New York 10001

6 p.m. - 11 p.m.  

Join us for this fun event and help in the fight against PKD. Click here for more information.

Media Media

Latest Webinar


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WebinarStraight Talk - Patients Share Their Unique Experiences with Dialysis and Transplantation

March 27, 2014
Presented by PKD Patients

Do you have questions about renal replacement? Is your physician telling you it is time to prepare for dialysis or transplant? If you answer yes to these questions, our latest webinar will help you be your best advocate as you enter the conversation about renal replacement with your health care team.


Featured Video


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Latest Photos


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Latest Tweets


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Darien & Josephine DaCosta
Volunteer Chapter Co-Coordinators


For General Information
Call 800.PKD.CURE (753.2873)

PKD Foundation Staff

Cindy LeBlanc
Chapter Relations Manager

Nicole Harr
Education Manager

Sara Brown
Fundraising Events Manager

Sue Full
Walk for PKD Manager

Vehicle Donation

Donate Your Car In Support of the PKD Foundation

With just one phone call, you can turn your old vehicle into hope for treatments and a cure to end polycystic kidney disease. Save the time and hassle of selling your vehicle yourself and support the Foundation’s mission by calling 855.9PKD.CAR (855.9753.227). For more information, visit

You Shop, Amazon Gives just made it a lot easier for you to support your favorite charity. Now when you shop at AmazonSmile (a new version of the company’s website), Amazon will donate 0.5% of the purchase price to the PKD Foundation. Select it as your charity of choice and support the Foundation’s mission to find treatments and a cure for PKD. Learn more at > 

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.
National Headquarters: 8330 Ward Parkway, Suite 510, Kansas City, MO 64114. Phone: 1.800.PKD.CURE
©2014 PKD Foundation. Privacy Policy | Terms & Conditions

Founded in 1982, our vision is that one day,
no one will suffer the full effects of polycystic kidney disease.

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