Hudson Valley ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at hudsonvalleychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

Chapter Resources

Are you in need of support or just looking to speak with another PKD patient, family member or caregiver? Sandy Grossman is our Support Leader and she will do her best to meet your needs and get you in touch with the right person. Contact Sandy at sgrossman4@gmail.com and let her know what you need!

Are you interested in PKD Advocacy? Concerned about PKD patients' needs being heard in Congress and the Senate? Please contact us for volunteer opportunities. 


PKD Foundation News and Announcements

Dr. David Baron

We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding treatments and a cure. Baron's background in biomedical sciences and drug development will keep us moving forward with progress in research.

 

Learn about our new CSO

  

 

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Calendar Local Events and Meetings

 

Education Seminar - Managing Your Life with PKD

Thank you to the following speakers for joining us at the New York City Education Seminar!
Speakers
Irina Barash, MD
Jennifer Egert, PhD
Dennis Finkielstein, MD
Kim Valenza, RE, CDE, CDN
Ariella Tomback, LMSW

Chapter support meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Although the Hudson Valley Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinators, Darien and Josephine, at hudsonvalleychapter@pkdcure.org

    

           


Meeting Hudson Valley Chapter Meet & Greets!

Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn about which medical professionals in the community specialize in PKD? Would you like to see more events happening in your local county or community? Interested in getting more involved with your local chapter?

The local volunteers of the Hudson Valley Chapter meet about every month, and are available for support and to share their experiences about living with PKD. If you would like to speak with someone, or attend a chapter get together, please email hudsonvalleychapter@pkdcure.org.

Would you like to get involved with planning events?

Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD or Cocktails for a Cure events. Email hudsonvalleychapter@pkdcure.org for more information.


Meeting Chapter Meetings

The Hudson Valley Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you have questions or would like to connect with our Volunteer Chapter Coordinators, please email us at HudsonValleyChapter@pkdcure.org.


CocktailsCocktails for a Cure

Thursday, May 7th

6 - 10 p.m.

Vintage Restaurant and Lounge 
171 Main Street
White Plains, NY 10601
 

Join others in the Hudson Valley community as we honor Diane Newman Kahn and show our appreciation of her support of the PKD Foundation. Diane has served the Hudson Valley Chapter and entire PKD Foundation community over the past 11 years.

Your support will fund critical research to discover a treatment and cure for polycystic kidney disease.  Join us for an evening of refreshing cocktails, delectable hors'deourves, and live entertainment by The Past Masters as we toast to a cure for PKD. Click here for more information. 

$40 per person
Please register by May 1, 2015 

 

Hudson Valley Walk for PKD

 Facebook Profile Picture

The Hudson Valley Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Hudson Valley Walk for PKD!

 

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Resources Resources

Latest Free Webinar

Dr. Clifford MilesKidney Allocation System Q&A

Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center

On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.