News and Information
PKD Foundation News and Announcements
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Join us at the 5th Annual Cocktails for a Cure on May 7 as we honor Diane Newman Kahn and show our appreciation for her volunteerism and support of the PKD Foundation. Diane has served the Hudson Valley Chapter and PKD community for over 11 years.
Sponsorships are now available starting only ay $250 and ad space in this year’s program starts at $25. To be a sponsor, donate a Silent Auction item, purchase ad space or volunteer at this event please email email@example.com
Thanks to everyone who made the 11th Annual Walk for PKD a success; we raised over $43,000 in 2014! We hope to see you at the 12th annual Walk for PKD on Sunday, September 20 in a new location at the Rockland Lake State Park in Valley Cottage, NY.
Interested in getting involved with the Hudson Valley Chapter? Join our next Chapter meeting on March 3rd at 7:30 p.m. in Peekskill, NY. Whether you would like to volunteer, need support, or just want to chat, you are welcome to join any of our Chapter meetings. A conference call option is available if you cannot attend in person. Email firstname.lastname@example.org for more information.
Are you in need of support or just looking to speak with another PKD patient, family member or caregiver? Sandy Grossman is our Support Leader and she will do her best to meet your needs and get you in touch with the right person. Contact Sandy at email@example.com and let her know what you need!
Are you interested in PKD Advocacy? Concerned about PKD patients' needs being heard in Congress and the Senate? Please contact us for volunteer opportunities.
Local Events and Meetings
Hudson Valley Chapter Meet & Greets!
Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn about which medical professionals in the community specialize in PKD? Would you like to see more events happening in your local county or community? Interested in getting more involved with your local chapter?
The local volunteers of the Hudson Valley Chapter meet about every month, and are available for support and to share their experiences about living with PKD. If you would like to speak with someone, or attend a chapter get together, please email firstname.lastname@example.org.
Would you like to get involved with planning events?
Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD or Cocktails for a Cure events. Email email@example.com for more information.
Sunday, November 1, 2015
Take on the Big Apple and run for PKD in the 2015 Bank of America Chicago Marathon to bring hope to those affected by polycystic kidney disease. The PKD Foundation is leading the fight to find treatments and a cure for millions of people worldwide who suffer from polycystic kidney disease.
For more information or to express your interest in the team, email us at firstname.lastname@example.org.
Hudson Valley Walk for PKD
September 20, 2015
Rockland Lake State Park
Registration is now open!
To learn more about the Hudson Valley walk or to donate, click here.
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Next Webinar Wednesday
What are cilia and why do they matter?
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.
Latest National Webinar
Pain and PKD
Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.