Iowa ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.



News and Information News and Information

Our chapter needs volunteers to help with our many events and initiatives. Opportunities are available in education, publicity, fundraising, and patient support.

Become a Volunteer!
Kathy's volunteer work recently has involved collecting in-kind donations, recruiting volunteers for Walk day, locating supplies and helping with the set-up and take-down on Walk day.

"It is rewarding to meet more people with PKD and know that my efforts may help their children or grandchildren. Working on projects with my family and other volunteers was also fun, even when we were painting signs in 90 degree temperatures with high humidity."

Kathy encourages others to get involved, "Remember that you can volunteer at your comfort level, you can do a little or a lot. Even taking on one item from the to-do list is very helpful. Volunteering adds to your personal growth and gives you a great deal of satisfaction."

Kathy Frits started volunteering with the Iowa Chapter in March 2007. Her original motivation to get involved with the Iowa Chapter was her grandson Andrew, now 2, as well as to support her daughter, then Iowa Chapter Coordinator, Becky Decker.

Unsure of how you can help? Let us know what you love to do an we will find the perfect fit for you. Kathy found her fit and so can you. 




Iowa Walk for PKD

Saturday, September 6
Noelridge Park - Lagoon Pavilion

For more information, click here!

Register Today




Walk for PKD 2014



Walk Season is Here!

Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.

Find Your Walk and Register Now!



Transplant Games of AmericaTransplant Games of America


We had an amazing time at the Transplant Games of America!  Thank you to everyone that stopped by our booth and shared your transplant story with us.  Congratulations to everyone that participated in the games!


View Slideshow!


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Calendar Local Events and Meetings

Meeting Chapter Meetings

The Iowa Chapter does not have any local meetings scheduled at this time but we do want to hear from you. If you would like to connect with our Volunteer Chapter Coordinator, please email John at

Iowa Walk for PKD

Saturday, September 6
Noelridge Park - Lagoon Pavilion

For more information, click here!

Register Today

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Resources Resources

Latest Webinar

Dr. Howard WinokuerTalking to Your Children About PKD

May 19, 2014
Presented by Howard R. Winokuer, Ph.D.

Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.

Watch Now


PKD Will Not Beat Me

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.