News and Information
What can we do for you?
The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!
Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.
Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at KansasCityChapter@pkdcure.org!
Join Team PKD for the Denver Rock 'n' Roll Half Marathon
October 19, 2014
Celebrate good times at the 5th Annual Denver Rock 'n' Roll Half Marathon! Live music every mile makes the heart and soul of this event. Join Team PKD in bringing hope to those affected by polycystic kidney disease. You will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
Chapter Support Meetings
Chapter Support Meetings are usually held at a Panera Bread location around the metro area. Check back for exact locations! These meetings are planned with YOU in mind. We welcome you to bring questions and concerns and we will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! Hope to see you next time!
Wednesday, October 22, 2014
6 - 8 p.m.
Overland Park, KS 66210
If you have a topic that you would like to discuss, email us at KansasCityChapter@pkdcure.org.
Chapter Educational Meetings
Chapter educational meetings are held at the PKD Foundation located at 8330 Ward Parkway, Suite 510, Kansas City, MO 64114 from 6 p.m. to 8 pm. Our goal is to provide up to date information for PKD patients. Guest speaker information will be updated once confirmed. We hope you will join us.
We are planning a meeting focused on current research at the University of Kansas Hospital Kidney Institute for the fall! Check back for details and to register.
Please email our Chapter if you have any questions at KansasCityChapter@pkdcure.org.
Kansas City Walk for PKD
Saturday, September 13
For more information, click here!
The Kansas City Chapter is planning our annual fundraising events for 2014! Please let us know if you are interested in joining our planning committees. Click here to tell us how you would like to be involved with our Chapter.
Save the Date!
Cocktails for a Cure
Saturday, November 1, 2014
7 - 9 p.m.
1325 Odd Fellows Road
Liberty, MO 64068
Check back for more details!
May 19, 2014
Presented by Howard R. Winokuer, Ph.D.
Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.