News and Information
PKD Foundation News and Announcements
April 22, 2015
Chef Michael Psilakis will be competing against fellow celebrity chefs on Food Network's fourth season of Chopped All-Stars. Michael's episode airs Tuesday, May 12 at 9 p.m. Central Time. If he advances and wins in the final competition round on May 26, Michael will donate $75,000 to the PKD Foundation, his charity of choice.
Read more about Chef Michael Psilakis
A note from your Chapter Coordinator:
The Kansas City Chapter is gearing up for a great 2015! Our focus is always PKD patients and their friends and families. We hope the information provided here and on
our website is helpful to you as you manage living with PKD. Our Chapter is here for you so please contact us anytime at KansasCityChapter@pkdcure.org. .
Support meetings are planned quarterly and provide great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions!
It is not too early to be thinking about the 2015 Walk for PKD! Join us on Saturday, September 12 at Avila University. Registration opens in June. Watch your email for details and a link to register.
What can we do for you?
The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!
Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.
Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at KansasCityChapter@pkdcure.org!
Local Events and Meetings
Chapter Educational Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Kansas City Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator Nicole at email@example.com.
Check back for updates!
Chapter Support Meetings
Check back for upcoming support meeting dates!
The Kansas City Chapter is planning our annual fundraising events for 2015! Please let us know if you are interested in joining our planning committees. Click here to tell us how you would like to be involved with our Chapter.
Kansas City Walk for PKD
Save the Date
September 12, 2015
June 1, 2015
Sign Up to Receive Information From Your Chapter
Latest Free Webinar
On March 28, 2015, PKD Foundation Chapters were invited to participate in an exclusive, online educational conference! PKD experts from across the United States discussed topics that are important to PKD patients. This year's focus was complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Not everyone that has PKD will experience every complication associated with the disease however, understanding these issues will help you to be your best advocate when you visit your physicians.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.