Welcome to the

Kansas City

community

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

Thank you to everyone who attended and supported the 2023 Walk for PKD. Information on the 2024 Walk for PKD season coming soon!

PKD Foundation Centers of Excellence badge in PKD Foundation purpleThe PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry. 

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Korri Anderson

PKD Connect Ambassador

Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.

Korri Anderson is a native Kansas Citian, being born and raised on the Kansas side and now living on the Missouri side. She has been working in healthcare for 23 years for both the military and civilian sectors.  Korri has volunteered for Cub Scouts, MOCSA, and Community 360. She has a son graduating from her alma mater, K-State. Korri enjoys spending time outdoors with her dog and singing and playing several instruments. Korri is excited to volunteer to gain knowledge of PKD resources and spread that information around the community. She looks forward to meeting the Kansas City PKD community and sharing her passion for PKD awareness.

Peggy Robinson

Fundraising Ambassador

Do you have an idea for a fundraiser to support PKD research? Contact your local Fundraising Ambassador today!

Peggy Robinson has been working with the PKD foundation since the late ’90s, participating in the Walk for PKD and as an active member of the local chapter. She currently serves as Volunteer Fundraising Coordinator of the Kansas City Chapter and her favorite projects have been Cocktails for a Cure, organizing four fundraising events locally. She has a son and daughter, two stepsons, and two granddaughters. She and her husband, Craig Robinson, nurture a love of wine, travel extensively, and enjoy visiting new and exciting places around the world.

Emily Decker

Walk for PKD Ambassador

Connect with your local Walk Ambassador to learn more about the annual Walk for PKD in your area!

Emily has been attending the Walk for PKD since she was young and started volunteering for the PKD Foundation in high school. She went to the University of Kansas and graduated with a degree in Photography. She is currently a stay-at-home mom for her wonderful daughter, Finley, but in the past she has experience in the design field and as a retail manager. In her free time, Emily enjoys reading, watching KU basketball with her husband, Josh, and snuggling with her French Bulldog, Billy.

Page last updated February 2024