Kansas City ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at kansascitychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information 

PKD Patient Handbook

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!


What can we do for you?

The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!

Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.

Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at kansascitychapter@pkdcure.org!   


KU Medical Center clinical trials - updated 3.9.16 

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Calendar Local Events and Meetings

Meeting Chapter Education Meetings

Chapter meetings provide an opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Check back for our next scheduled education meeting time and location. You can contact the Kansas City Volunteer Chapter Coordinator at kansascitychapter@pkdcure.org.

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Meeting Chapter Support Meetings

Support meetings are planned quarterly and provide a great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions! 

Kansas City Chapter Support Meeting

Wednesday, May 18
6:30 to 8 p.m.

Panera Bread
Legends at Village West
1811 Village W. Pkwy.
Kansas City, KS 66111

RSVP

If you have any questions about the Kansas City Chapter, please email our Volunteer Chapter Coordinator Nicole at  kansascitychapter@pkdcure.org.


University of Kansas Hospital Transplant Clinic Support Group

A support group meets at KUMED in the transplant clinic on the 1st Thursday each month from 6:30 - 8 p.m. Pre and post transplant patients are welcome to attend. Topics will be posted as they are available. For more information, please email Jill Riester at kansascityeducation@pkdcure.org.

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 Kansas City Cocktails and Golf

 

May 1

3 to 6 p.m.

Top Golf
10611 Nall Avenue
Overland Park, KS 66207
 

Join the Kansas City Chapter at our Cocktails and Golf event this May. Enjoy a night of refreshing drinks, silent auction and golf (optional), while raising funds for the PKD Foundation.

 

 

For more information, please visit the event website or contact Peggy Robinson at kansascityfundraising@pkdcure.org.


Kansas City Walk for PKD

 

Thank you for joining us for the 2015 Kansas City Walk for PKD!

We had a great time connecting with everyone at the Walk! Check out some of our favorite memories from the Walk here.                                


    Save the date!
    Sept. 10, 2016
    Avila University

 

 

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Resources Resources

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Latest Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Total kidney volume and PKD

Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.

Watch now

Learn more about Webinar Wednesdays or watch previous webinars here.


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.