Kansas City ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at kansascitychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.



News and Information News and Information

What can we do for you?

The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!

Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.

Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at KansasCityChapter@pkdcure.org!

 Denver Rock n Roll Half Marathon Logo 


Join Team PKD for the Denver Rock 'n' Roll Half Marathon

October 19, 2014


Celebrate good times at the 5th Annual Denver Rock 'n' Roll Half Marathon! Live music every mile makes the heart and soul of this event.  Join Team PKD in bringing hope to those affected by polycystic kidney disease. You will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.




Walk for PKD 2014Walk Season is Here!

Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.

Find Your Walk and Register Now!



Transplant Games of AmericaTransplant Games of America


We had an amazing time at the Transplant Games of America!  Thank you to everyone that stopped by our booth and shared your transplant story with us.  Congratulations to everyone that participated in the games!


View Slideshow!



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Calendar Local Events and Meetings

Meeting Chapter Support Meetings

Chapter Support Meetings are usually held at a Panera Bread location around the metro area. Check back for exact locations! These meetings are planned with YOU in mind. We welcome you to bring questions and concerns and we will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! Hope to see you next time!

Wednesday, October 22, 2014
6 - 8 p.m.
Panera Bread
11022 Metcalf
Overland Park, KS 66210 

If you have a topic that you would like to discuss, email us at KansasCityChapter@pkdcure.org.

Meeting Chapter Educational Meetings

Chapter educational meetings are held at the PKD Foundation located at 8330 Ward Parkway, Suite 510, Kansas City, MO 64114 from 6 p.m. to 8 pm. Our goal is to provide up to date information for PKD patients. Guest speaker information will be updated once confirmed.  We hope you will join us.

We are planning a meeting focused on current research at the University of Kansas Hospital Kidney Institute for the fall!  Check back for details and to register.

Please email our Chapter if you have any questions at KansasCityChapter@pkdcure.org.

Kansas City Walk for PKD

Saturday, September 13
Avila University

For more information, click here!

Register Today

The Kansas City Chapter is planning our annual fundraising events for 2014! Please let us know if you are interested in joining our planning committees. Click here to tell us how you would like to be involved with our Chapter.

Save the Date!

CocktailsCocktails for a Cure

Saturday, November 1, 2014
7 - 9 p.m.

Belvoir Winery
1325 Odd Fellows Road
Liberty, MO 64068

Check back for more details!

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Resources Resources

Latest Webinar

Dr. Howard WinokuerTalking to Your Children About PKD

May 19, 2014
Presented by Howard R. Winokuer, Ph.D.

Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.

Watch Now


PKD Will Not Beat Me

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.