News and Information
Save the date: PKD National Convention 2016
Join us June 24 to 26, 2016, at the PKD National Convention in Orlando. You'll discover ways to manage your or a loved one's health from an all-star assembly of PKD experts.
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
The Kansas City Chapter is gearing up for a great 2015! Our focus is always PKD patients and their friends and families. We hope the information provided here and on
our website is helpful to you as you manage living with PKD. Our Chapter is here for you so please contact us anytime at KansasCityChapter@pkdcure.org. .
Support meetings are planned quarterly and provide great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions!
What can we do for you?
The Kansas City Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Kansas City area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!
Let us know what interests you the most! We are always looking for topics for our support and education meetings! Take our brief survey.
Interested in volunteering? Let us know how you would like to be involved or email Chapter Coordinator, Nicole Harr, at KansasCityChapter@pkdcure.org!
Local Events and Meetings
Chapter Educational Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Kansas City Education Meeting
Tuesday, Oct. 20
4 to 6:00 p.m.
University of Kansas Hospital
3901 Rainbow Blvd.
Kansas City, KS 66160
Dr. Amna Ilahe, Assistant Professor of Medicine
Kidney Institute - Faculty
Department of Internal Medicine, Division of Nephrology & Hypertension
Dr. Ilahe will talk about transplantation and we will tour the facility including the exam rooms of pre- and post-op patients, consult room, and education rooms.
Please note - we will meet at the University of Kansas Hospital main lobby at 3:45 and walk to the transplant center together. If you need directions, please email Nicole at KansasCityChapter@pkdcure.org.
Chapter Support Meetings
Check back for upcoming support meeting dates!
Please join us for our next support meeting! Bring your questions and concerns and we will do our best to provide answers.
Tues., Aug. 18
6 - 8 p.m.
Corner Bakery Cafe
11705 Roe Ave.
Please RSVP by emailing Jill at KansasCityEducation@pkdcure.org.
University of Kansas Hospital Transplant Clinic Support Group
A support group meets at KUMED in the transplant clinic on the 1st Thursday each month from 6:30 - 8 p.m. Pre and post transplant patients are welcome to attend. Topics will be posted as they are available. For more information, please email Jill Riester at KansasCityEducation@pkdcure.org.
Kansas City Walk for PKD
September 12, 2015
Registration is now open!
To learn more about the Kansas City walk or to donate, click here.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Aug. 19, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will explain how cysts form and why they are so problematic. He will also take time at the end of his presentation to answer your questions.
Next National Webinar
Tuesday, Aug. 18, 7 - 8 p.m. CDT
Kidney stones can be painful and occur more often in PKD patients than in the general population. Tune in Tuesday, Aug. 18 at 7 p.m. CT to learn from Dr. Arlene Chapman about what kidney stones are, why they happen and what can be done to treat them.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.