News and Information
A Message From Your Chapter Coordinator
My name is Amy Boyd and I am the new Las Vegas Chapter Coordinator. I have been married to the most amazing man for over 17 years and we have been blessed with four beautiful children. PKD became a part of our lives on October 19, 2009 when our daughter was diagnosed. I know how overwhelming it can be when first diagnosed. The internet can be a scary place when you are seeking information, especially medical information. When I came across the PKD Foundation I felt I truly had a place to turn. Not only as a source of information, but for support as well. I am excited to be a part of the foundation. I want to spread the word about PKD and the need for research and funding.
Please join me in spreading the message. I would love your help in this fight.
PKD Foundation News and Announcements
We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding treatments and a cure. Baron's background in biomedical sciences and drug development will keep us moving forward with progress in research.
San Francisco Rock ‘n’ Roll Half Marathon
Sunday, March 29, 2015
Take a VIP running tour of the Golden Gate City at this year’s San Francisco Rock ‘n’ Roll Half Marathon to bring hope to those affected by PKD. Click here for more information.
Questions? Contact us at email@example.com or 816.268.8469.
Local Events and Meetings
The Las Vegas Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you would like to connect with our Volunteer Chapter Coordinator, please email Amy at firstname.lastname@example.org.
Las Vegas Walk for PKD
Registration for the 2015 Las Vegas Walk for PKD is now open!
For more information, click here!
Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.