Welcome to the PKD Foundation’s Long Island Chapter Website!
Learn More about PKD.
Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our NEW learning center and to view our FREE educational webinars!
We do not currently have any meetings scheduled however, we do want to hear from you. Please email us at LongIslandChapter@pkdcure.org. Check back for updates!
Come join us! At our meetings, you will find a great group of caring, supportive people who all have been touched by PKD in some way and who are willing to share their knowledge of the disease. We also host guest speakers and leaders in the field of PKD that help us continue our ongoing educational awareness program.
In order to best meet the needs of our members who hail from Suffolk, Nassau and Queens, we alternate where our meetings are held between an eastern and western location.
Waldbaum's Dialysis Center
100 Community Drive
Great Neck, NY
Meetings held in Nassau County are in the 2nd floor conference room of the Waldbaum's Dialysis Center. It is located just north of North Shore Hospital off Community Drive. (The address is 100 Community Drive, Great Neck, NY).
Take the Long Island Expressway to the Lakeville Road/Community Drive exit. Turn onto Community Drive, proceed north past the hospital to the Lake Success Business Park. It will be on your left about 1/4 mile past the hospital. Turn left into the Business Park and proceed up the hill. The Dialysis Center will be right in front of you - park where there is an open space.
The Sachem Public Library
150 Holbrook Road
The Sachem Public Library is located at 150 Holbrook Road in Holbrook, New York. The library building is approximately half way between the Long Island Expressway and Portion Road on the west side of Holbrook Road across from the Nokomis Elementary School.
Getting to the library from the L.I.E. west of exit 61: Take Exit 61 off the Expresway and take a left (to go north) on Holbrook Road at the second traffic light on the Service Road. The library is appoximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Nokomis Elementary School.
Getting to the library from the L.I.E. east of exit 62: Take Exit 62 off the Expressway and stay on the service road until the first traffic light after you pass the Symbol Technologies building. Take a right on Holbrook Road (to go north) at the traffic light. The library is approximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Norkomis Elementary School.
6th Annual PKD Musical Fundraiser
Hosted by the Long Island Fingerstyle Guitar Club
Sunday, November 17, 2013
2:00pm - 6:00pm
Westbury Friends Community Center
550 Post Road
Westbury, NY 11590
Join us in the fight against PKD for a day of music, food, refreshments, giveaways and raffles.
For more information, please click here.
Thank you to everyone that made the Long Island Walk for PKD a success. While the event is over, fundraising is still going strong with donations being accepted until December 31st. Let’s all continue to unite to fight PKD! Your involvement has made a difference for PKD patients and their families everywhere.
The Empowered PKD Patient: Proactive Strategies to Secure Your Best Life Possible
October 23, 2013
Presented by Risa Simon, CMC
If you've been told to "Do Nothing" until you "Get Sicker" — or simply sense yourself floating in a sea of uncertainty, then join this enlightening session and learn from author, mentor and preemptive transplant recipient, Risa Simon, as she reveals life-changing insights doctors rarely share with their patients. If you (or a loved one) are looking to avoid the need for dialysis, or fear the long wait for a kidney might squelch transplant opportunities, look no further.