News and Information
Sunday, November 2, 2014
Are you a runner? Is someone you know a runner? Want a chance to run in a premier marathon?
We are looking to fill the last few spots in the 2014 TCS New York City Marathon within the next three weeks! Click here to view the participation options. Register today to secure your spot in this bucket list race. Hurry, before they are gone!
Most importantly, you will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.
Run for PKD
Questions? Contact us at email@example.com or 816.268.8469.
Shop with AmazonSmile this holiday season to benefit the PKD Foundation. When you shop at AmazonSmile, Amazon will donate 0.5% of the purchase price to the PKD Foundation. Learn more and start your shopping at smile.amazon.com.
Local Events and Meetings
Education Seminar - Managing Your Life with PKD
Saturday, Dec. 6, 2014
11:00 a.m. - 3:30 p.m.
Mount Sinai - Philips Ambulatory Care Center
10 Union Square E.
New York, NY 10012
Irina Barash, MD
Jennifer Egert, PhD
Dennis Finkielstein, MD
Kim Valenza, RE, CDE, CDN
Ariella Tomback, LMSW
Cardiovascular Health in Polycystic and Chronic Kidney Disease
Nutrition Recommendations for Patients with Polycystic and Chronic Kidney Disease
PKD Clinical Research Updates
Navigating Dialysis and Transplant
Managing Stress and Chronic Disease
We do not currently have any meetings scheduled however, we do want to hear from you. Please email us at LongIslandChapter@pkdcure.org. Check back for updates!
At our meetings, you will find a great group of caring, supportive people who all have been touched by PKD in some way and who are willing to share their knowledge of the disease. We also host guest speakers and leaders in the field of PKD that help us continue our ongoing educational awareness program.
In order to best meet the needs of our members who hail from Suffolk, Nassau and Queens, we alternate where our meetings are held between an eastern and western location.
Waldbaum's Dialysis Center
100 Community Drive
Great Neck, NY
Meetings held in Nassau County are in the 2nd floor conference room of the Waldbaum's Dialysis Center. It is located just north of North Shore Hospital off Community Drive. (The address is 100 Community Drive, Great Neck, NY).
Take the Long Island Expressway to the Lakeville Road/Community Drive exit. Turn onto Community Drive, proceed north past the hospital to the Lake Success Business Park. It will be on your left about 1/4 mile past the hospital. Turn left into the Business Park and proceed up the hill. The Dialysis Center will be right in front of you - park where there is an open space.
The Sachem Public Library
150 Holbrook Road
The Sachem Public Library is located at 150 Holbrook Road in Holbrook, New York. The library building is approximately half way between the Long Island Expressway and Portion Road on the west side of Holbrook Road across from the Nokomis Elementary School.
Getting to the library from the L.I.E. west of exit 61: Take Exit 61 off the Expresway and take a left (to go north) on Holbrook Road at the second traffic light on the Service Road. The library is appoximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Nokomis Elementary School.
Getting to the library from the L.I.E. east of exit 62: Take Exit 62 off the Expressway and stay on the service road until the first traffic light after you pass the Symbol Technologies building. Take a right on Holbrook Road (to go north) at the traffic light. The library is approximately 1/2 mile north of the L.I.E. on the left side of Holbrook Road across from the Norkomis Elementary School.
Long Island Walk for PKD
The Long Island Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
Next Free Webinar
Tuesday, Nov. 11, 2014, 7:00 - 8:00 p.m. CDT
Presented by: Jacob Taylor, Clinical Dietician at Children's Mercy Hospital
The holiday season is fast approaching, which means lots of family get-togethers, dinners and company parties. With food being a primary focus during these social gatherings, it can be a challenge for people with kidney disease to stick with their kidney-friendly diet. Join us for this webinar to learn how to maintain your kidney diet, while still enjoying the most delicious time of the year. Jacob Taylor will also discuss his PKD Diet Study.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.