News and Information
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
FREE PKD Education Seminar
Saturday, April 9
10 a.m. to noon
University of California Santa Barbara
Alumni Hall (on 2nd floor)
Mosher Alumni House
Santa Barbara, CA 93106
Thomas Weimbs, Ph.D.
John Elder, M.D.
Mr. Dwight Odland
We have teamed up with the PKD research team at UC Santa Barbara to put on a free Education Seminar on Saturday morning, April 9 – Join us!
Make a long day or a weekend out of it – visit beautiful Santa Barbara and learn the latest about PKD research going on right here at UCSB. We will also have a nephrologist (Dr. John Elder) speaking about medications, lifestyle recommendations, and pain management.
The meeting is from 10am-Noon at Alumni Hall, which is on the 2nd floor of the Mosher House, on the UCSB campus. Parking is free and we’ll have light refreshments.
Parking: complimentary reserved parking is available in Lot 12.
If you have any questions concerning Chapter meetings, please email our Volunteer Chapter Coordinator, Dwight at email@example.com.
Los Angeles Walk for PKD
Thank you to all who joined us for the 2015 Los Angeles Walk for PKD!
We had a great time connecting with everyone. Check out some of our favorite memories from the Walk here.
Check back soon for information on the 2016 Los Angeles Walk for PKD!
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Next Webinar Wednesday
Wednesday, Jan. 20, 12 - 1 p.m. CST
David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.