News and Information
A Note from your Coordinator:
Hi everyone, Welcome to 2016: a new year of hope and tons of promise for PKD progress!
It's hard to believe that in a relatively short amount of time, 15 years to be exact, we, the PKD Memphis community, have managed to raise just under $1,000,000 for vital PKD research and education programs that are helping to improve the quality of life for those battling this life threatening disease. We hope that you share our excitement and enthusiasm for this amazing feat as we prepare for a big '15 to $1Million' celebration with two great fund raising events this year: Kidney Casino Night, and our 15th Annual Liberty Mutual Invitational Driving Home A Cure For PKD Golf Tournament. Our lofty goal is to raise $100,000 this year to help us sail past that incredible $1Million mark without ever looking back. Our inaugural Kidney Casino Night will take place at the Infiniti of Memphis Showroom on Friday evening August 26, 2016. All gaming will be run by experienced dealers on professional felted tables. The Riverboat gambling themed event will feature everyone's favorite casino games including Black Jack, Roulette, Craps, Let it Ride, and Three Card Poker! We will have live music, extensive light bites, wine, beer, a fun photo booth, area, and 'Fish Bowl Auction' of great items to win after purchasing or redeeming chips secured throughout the night. Sponsorship opportunities are available for naming rights to each gaming table as well as for our food and beverages. Volunteers are needed to help secure auction items, sponsors, and to bring lots of friends, family, and coworkers to our party! More information will become available soon so please watch for email blasts and website links for early bird registration details. Feel free to contact me with any questions in the meantime at email@example.com.
The 15th Annual LMI Driving Home A Cure for PKD Golf Tournament will be held at TPC Southwind Monday, August 29, 2016. For those of you who are not golfers, please plan on joining us for our Annual Dinner Awards Banquet held immediately after the tournament. This year's celebratory dinner will be especially exciting as we celebrate our 15 to $1Million! As always, we will show our appreciation and thank all our generous event participants for their support. Additionally, we take this opportunity to honor those who are currently fighting PKD and remember those who have succumbed to this devastating disease. We will also name our 2016 'Spirit of the Flame Award' recipient for volunteer service above and beyond the rest. Please stay tuned for a complete list of special guests , honorees, and speakers planning to celebrate this extraordinary event with us this year. Registration for both the golf event and dinner will be available at www.pkdcure.org/lmimemphis . For more information please contact me at firstname.lastname@example.org.
One last thought.....if anyone is interested in resuming support and education meetings please let me know. I will be more than happy to pool our thoughts regarding the best time, place, etc. to meet. I find that face to face meetings are always informative, inspiring, and comforting to all who attend. We, the PKD community, do not live in a vacuum. We are, and always will be, 'better together.' I'm just a quick email or phone call away so please do not hesitate to contact me at any time.
Memphis Chapter Coordinator
Tis the Season... To Raise Funds for PKD!
An End PKD Bracelet is the perfect gift for you or anyone you know who is passionate about the PKD cause. With a choice of PKD teal or PKD purple, each comes with an adjustable elastic wrist band and wooden bead to assure a comfortable fit. The cost is $10 each including shipping and handling. Checks should be made payable to the PKD Foundation Memphis Chapter and mailed to:
PKD Foundation Memphis Chapter
c/o Karyn Waxman
8999 Farmoor Road
Germantown, TN 38139
For more information and order requests please email email@example.com.
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter Educational Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
We normally meet the fourth Tuesday of the month. Check back for meeting dates and times!
If you have any questions about the Memphis Chapter, please contact Volunteer Chapter Coordinator Karyn at firstname.lastname@example.org.
Virtual Walk for PKD
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Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.