News and Information
PKD Foundation News and Announcements
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Save the date:
June 27, 2015
3:30 to 4:30 p.m.
The Well Coffeehouse
700 Old Hickory Blvd
Brentwood, TN 37027
Coffee, Tea and PKD!
Come join us for a relaxed cup of coffee and meet friends in the PKD community. These support meetings are planned bi-monthly and provide great opportunity to meet others and share experiences. The meetings will be at The Well Coffeehouse, 700 Old Hickory Blvd in Brentwood - about 1 mile off I-65 Exit 74-B (Old Hickory Blvd). We would like to plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions! Mark your calendar and plan to attend our next support meeting on the 4th Saturday afternoon of every other month at 3:30 pm on the following dates:
Online registration for this event is now closed however, everyone is welcome to attend! Please contact our Volunteer Chapter Coordinator, Carol at firstname.lastname@example.org if you would like to attend or have questions about this event. Hope to see you there.
Upcoming meeting dates:
For any questions about our meetings please email our Volunteer Chapter Coordinator Carol at email@example.com.
Nashville Walk for PKD
October 31, 2015
Registration is now open!
To learn more about the Nashville walk or to donate, click here.
Plan your own Event!
All of the events that take place in the Nashville PKD Foundation Chapter, large or small, only happen because someone decided to organize them. We are always receiving checks for $50 to $500 from people who have put together a craft fair, bake sale, gotten their business to sponsor a casual day or any of a dozen other things.
There are also people who have decided they have the time and energy to put on a major event or who are connected to church or school group who help them put on a major event. Many other charities are starting to connect with sororities, fraternities, or other social organizations to put on an annual event and you can too!
If you have an idea for an event that you would like to put together, or if you have a business, church or community group that may like to get involved, please contact us at firstname.lastname@example.org and we'll help you get the ball rolling.
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Next Webinar Wednesday
What are cilia and why do they matter?
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.
Latest National Webinar
Pain and PKD
Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.