Nebraska ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at nebraskachapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information 

A Note from the Coordinator:

Greetings from the Nebraska Chapter, 

As we anxiously await spring we have already been discussing and planning Nebraska Chapter and Walk events.  We are excited to have more volunteers wanting to get involved.  We can do so much more together, UNITE TO FIGHT PKD.    Please be watching for emails and Facebook messages of upcoming events. 

 We would love to have everyone involved in the Chapter and Walk.  If you have an interest, please let me know and you will be welcomed. This year's PKD National Convention will be held in Orlando Florida at Disney.  This is a great event where you get to hear and meet the experts of PKD, meet the PKD Foundation Staff and the many people like us who live with PKD either themselves or their family.  

Upcoming events:

June 24-26- PKD National Convention Orlando Florida.  National Convention 

September 5 (Labor Day)- Omaha Storm Chasers baseball game at Noon.  It will be PKD Awareness Day.  If we have a group of 20 or more, we can get discounted tickets. 

Nebraska Chapter Walk- TBA (late September or early October) 

I hope to get acquainted with more of you this year.  I am always available by email or phone. 

UNITE TO FIGHT PKD,

Kim Beger
PKD Foundation Nebraska Chapter
Volunteer Coordinator


PKD Patient Handbook

 

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

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Calendar Local Events and Meetings

Meeting Chapter Support Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

If you have any questions concerning the Nebraska Chapter, please email Volunteer Chapter Coordinator Kim at nebraskachapter@pkdcure.org

 

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 Nebraska Walk for PKD

           

   Save the date!
   Oct. 8, 2016
   Walnut Creek Recreation Area

  

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Resources Resources

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Latest Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Total kidney volume and PKD

Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.

Watch now

Learn more about Webinar Wednesdays or watch previous webinars here.


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


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PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.