Chapter Info
Welcome to the PKD Foundation’s New England Chapter Website!
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Outstanding Education Award - 2012
Presented to the Chapter that supports outstanding local education programs, including advocacy efforts and awareness.
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John Gammill Achievement Award 2011
Presented to the Chapter that raised the most revenue throughout the year.
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One Hundred Grand Award 2011
Presented to the Walk Coordinator whose event exceeded $100,000 in net proceeds.
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The 2nd Annual Seacoast Bike Ride for PKD took place June 5, 2011 and raised over $4,000!
Have a look at our Flickr stream to see more photos. While you're there, check out what other chapters are up to!
Informational Webinars
Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our NEW learning center and to view our FREE educational webinars!
Recent News
Local PKD Support Groups continue to meet monthly in Manchester, NH and Johnston, RI. This is an excellent opportunity to meet other individuals whose lives have been affected by PKD in an informal setting.
If you have questions or concerns, please join us at these meetings. Friends and family are also encouraged to attend.
Johnston, Rhode Island - St. Robert Bellarmine Church - Third Wednesday of each month - 6:30 p.m. to 7:30 p.m.
Contact Information: John Barattini (401) 231-1337 or train246@earthlink.net
Manchester, New Hampshire - Manchester City Library, 405 Pine St., First Monday of each month - 7:00 p.m. to 8:00 p.m. Click here to view our Flyer.
Contact Information: Walter Michelsen at (603) 668-0095 or (603) 512-9678 or Nancy Rideout at (603) 746-5580 or (603) 848-1050 or email PKDSupport@gmail.com.
View Slides From Past New England Seminars!
On Saturday, November 5, 2011 the New England Chapter hosted another great Educational Program. Links to the presentations by Steven Gabardi, PharmD, FCCP, BCPS and Lisa McDevitt Potter, PharmD, FCCP, BCPS are below.
Click here to view Steven Gabardi's presentation, "What's in the Medicine Cabinet of Patients with Kidney Disease, with or without a Transplant?"
Click here to view Lisa McDevitt Potter's presentation, "Getting the Meds you Need, Insurance, Copays, and Assitance"
Click here to view Lisa McDevitt Potter's presentation, "Medication Management for ADPKD".
On March 26, 2011, the New England Chapter held its annual Educational Seminar. We were extremely fortunate to have had the following speakers at the seminar:
Dr. Ronald Perrone presented on the latest news concerning Clinical Trials of Drugs Targeted Towards PKD. Dr. Jim Rodrigue discussed the Psychological Aspects of Living with PKD. Transplant Coordinator, Deb Basler presented on the entire kidney transplant process. All three presenters were kind enough to allow us to post their presentations here. Finally we enjoyed a screening of a short PKD animated video created by students at the New England Institute of Art. They spoke briefly about their experience learning about PKD and the work they did. There is a link to view this video.
Click here to view Deb Basler's presentation slides
2009's educational seminar:
Learn More about PKD.
Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our NEW learning center and to view our FREE educational webinars!
Meetings
Local Events
Turpin Sisters Golf Tournament
to benefit the PKD Foundation
June 4, 2013
Wachusett Country Club
8:30am Registration
9:30am Shotgun Scramble-Style Tournament
Click here for more information.
Seacoast Ride for a Cure
to benefit the PKD Foundation
Sunday, June 9, 2013
Registration starts at 7:30am
Race starts at 8:30am
Join us for a picturesque bike ride along the NH coast to benefit research for Polycystic Kidney Disease (PKD). This is a beautiful 33 mile loop that is one of Bicycle Magazine's top 50 most scenic rides. It will thrill your senses and bring hope to those in need of a cure for PKD. It is a minimally supported ride for bikers 18 years and older.
$50 per rider in advance; $70 on-site registration (cash or check only).
Click here for more information.
Calling All New England Runners,
Walkers, & PKD Foundation Supporters!
Join Members of the New England Chapter
of the PKD Foundation for the
4th Annual Bayside Runner Mill Pond 5k
in beautiful & historic Plymouth, MA
When: Saturday, June 22nd, 2013 9:00 AM
Where: Start and finish near the Mill Pond footbridge (Summer St. public parking lot), Plymouth, MA.
Why: Thanks to the generosity of Bayside Runner, proceeds from the race will benefit the PKD Foundation
What: For all the details, please click here.
NOT UP FOR RUNNING OR WALKING THE 5K?? WE STILL NEED YOU!! Help make this event great by volunteering your time. We will need a dozen energetic and enthusiastic volunteers to assist in a variety of tasks on the day of the race. To sign up, please contact Judy Ehrlich at newenglandchapter@pkdcure.org.
Join us for the Rhode Island Walk for PKD on 9/29/2013. Registration is now open at walkforpkd.org/rhodeisland. There are also many great ways to help support the event as a volunteer including: day-of-event support, securing an in-kind donation, connecting us with a potential sponsor, communicating with participants, distributing promotional materials, serving on the planning committee and more. If you would like to volunteer please email us at rhodeislandwalk@pkdcure.org.
Also please join us for the Boston Walk for PKD on 9/29/2013. Registration is now open at walkforpkd.org/boston. There are also many great ways to help support the event as a volunteer including: day-of-event support, securing an in-kind donation, connecting us with a potential sponsor, communicating with participants, distributing promotional materials, serving on the planning committee and more. If you would like to volunteer please email us at bostonwalk@pkdcure.org
Media
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 Understanding Your Lab Results
April 10, 2013
Presented by
Terry Watnick, M.D.
Find out what lab tests are important to kidney patients, what constitutes normal and when your health team needs to take action.
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