New England ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at newenglandchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

A note from your Chapter Coordinator:


Greetings from your New England PKD Chapter,

Winter has finally arrived in New England. Typically, Chapter Leadership spends the first few months of the year planning our activities for spring, summer and fall. Our 2016 Walk Committee is just forming now and always looking for volunteers. While Walk and other planning is in process, we want to share a new set of events being introduced: “PKD Meet & Greets.” These are local events being planned throughout our region. The idea is to pick a coffee house, or other establishment, and schedule a 2-3 hour time slot for people with PKD, and their family and friends, to come together to share stories and experiences. We ran our first event in Lynnfield, Ma. back in December and it was very successful. There is no agenda or presentation. We’ll have volunteers from the Chapter in attendance to share PKD Foundation news and events, but the real value is in talking to other people in our PKD community.

We want to hold these events throughout our region. It is helpful to have a local volunteer help to find a location for the event. If you are interested in helping plan a “Meet & Greet” in your area, please write us at newenglandchapter@pkdcure.org. Be on the lookout for announcements of future locations and please try to join us. You may learn something new about PKD, or share something new with a new acquaintance and help them in their PKD journey. Chapter leadership is also planning some education events for later in the spring; watch your email for more information soon.

Thank you,

Dean Lotito and Judy Ehrlich


PKD Patient Handbook

 

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!


Calendar Local Events and Meetings

Meeting Chapter Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

If you have any questions concerning the Chapter, please email our Volunteer Chapter Coordinators Judy or Dean at newenglandchapter@pkdcure.org.

View slides from previous New England Chapter Educational Seminars!


Meeting Local PKD Support Group

Local PKD Support Group continues to meet monthly in Manchester, NH. This is an excellent opportunity to meet other individuals whose lives have been affected by PKD in an informal setting.  Friends and family are also encouraged to attend.

Manchester, New Hampshire - Manchester City Library, 405 Pine St., First Monday of each month - 7:00 p.m. to 8:00 p.m. 

Contact Information: Walter Michelsen  at (603) 668-0095 or (603) 512-9678 or Nancy Rideout at (603) 746-5580 or (603) 369-8791 or email PKDSupport@gmail.com.

Support in Rhode Island - If you are looking to connect with others and live in Rhode Island, please contact John Barattini at (401) 231-1337 or ripkd07@gmail.com


 Fifth Annual Turpin Sisters Golf Tournament

June 6

8:30 a.m.

Wachusett Country Club
187 Prospect Street

West Boylston, MA 

Save the date for the 5th Annual Turpin Sisters Golf Tournament. Proceeds from this event will support the PKD Foundation.

 

 

For event or sponsorship information, please visit the event website or email Nancy and Kristen at turpspkd@gmail.com.


Boston and Rhode Island Walks for PKD

                        

           Boston                       Rhode Island
   Sept. 11, 2016                 Sept. 17, 2016
   Artesani Park             Bristol Town Beach

                             Register Today                          Register Today!                    

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Resources Resources

Latest Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Conversation with a researcher

Bradley Yoder, Ph.D., discusses the results of his recently completed PKD Foundation-funded project "In vivo analysis of cilia mechanosensation in the kidney."

Watch now

Learn more about Webinar Wednesdays or watch previous webinars here.


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.