New England Chapter
Welcome to the PKD Foundation’s New England Chapter Website!
Outstanding Chapter Award
Presented to the Chapter that has
consistently met objectives related to
the Chapter mission areas of Education,
Fundraising and Support.
Better Together at the PKD National Convention
June 20–22, 2014
Kansas City, Mo.
This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.
Visit pkdcure.org/convention to register and learn more.
Transplant Games of America
July 11 - 15, 2014
The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries. The games are more than an athletic event! They highlight the importance of organ donation and celebrate the lives of organ donors and recipients. For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.
The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families. If you plan to participate, please take our brief survey!
Education Seminar - PKD: On the Horizon
Saturday, May 10, 2014
9:30 AM - 2:00 PM
New England Organ Bank
60 First Avenue
Waltham, MA 02451
Jackie Hancock, Jr., PKD Foundation Chief Executive Officer
Dr. Ron Perrone, Tufts Medical Center
Dr. Martha Pavlakis, Beth Israel Deaconess Medical Center
Ms. Poonhar L. Poon, RD, Tufts Medical Center
Registration fees are $10 per person / $18 per family. Registration will be available at the door, $12 per person.
If you would like to connect with our Volunteer Chapter Coordinators, Judy and Dean, please email us at firstname.lastname@example.org.
View slides from previous New England Chapter Educational Seminars!
Local PKD Support Group continues to meet monthly in Manchester, NH. This is an excellent opportunity to meet other individuals whose lives have been affected by PKD in an informal setting.
If you have questions or concerns, please join us at these meetings. Friends and family are also encouraged to attend.
Manchester, New Hampshire - Manchester City Library, 405 Pine St., First Monday of each month - 7:00 p.m. to 8:00 p.m. Click here to view our Flyer.
Contact Information: Walter Michelsen at (603) 668-0095 or (603) 512-9678 or Nancy Rideout at (603) 746-5580 or (603) 848-1050 or email PKDSupport@gmail.com.
Support in Rhode Island - If you are looking to connect with others, have questions or concerns, and live in Rhode Island, please contact John Barattini at (401) 231-1337 or email@example.com.
Save the Date!
3rd Annual Turpin Sisters Golf Tournament
Thursday, June 5, 2014
Wachusett Country Club187 Prospect StreetWest Boylston, MA 01853 Click here for more information.