New Jersey ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at newjerseychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

A Message From Your Chapter Coordinator

New Jersey Chapter Members:

My name is Alexandra "Alex" Coglianese, and I am honored, and most importantly, EXCITED, to have the opportunity to serve as the new Chapter Coordinator for the New Jersey Chapter of the PKD Foundation. Continue reading Alex's welcome letter

 


PKD Foundation News and Announcements

 

What's New in PKD A Day of Learning

PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!

 

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Calendar Local Events and Meetings

 Meeting Chapter Meetings

Education Seminar - PKD: From Diagnosis to Post-Transplant

Tuesday, March 17
7 pm - 8:45 pm

 

Location:
South Brunswick Public Library
110 Kingston Lane
Monmouth Junction, NJ 08852

Register Today!

The New Jersey Chapter is excited to kick-off our first Educational Event of 2015 with a 2 hour event at the South Brunswick Public Library on Tuesday, March 17th from 7:00-8:45pm.  

We are honored to have Robert Wood Johnson University Hospital physicians attending our event and speaking to our chapter regarding a variety issues effecting our chapter members from those who have been recently diagnosed with PKD, to those who are currently post-transplant and everything in between. Additionally, we will hold a Q&A session at the end of each of their respective lectures so that our chapter members can ask the all-important questions effecting them and their families. Light refreshments will be served! Looking forward to seeing you all.

If you have questions, please email Alex at newjerseychapter@pkdcure.org or visit pkdcure.org/newjerseychapter for more information.

                      


Save the Date:

New Jersey Chapter's 2nd Annual Bar Hop

Saturday, June 20

12 p.m. - 6 p.m.

Casey Prakapas's Personal Page for 2015 DIY for PKD

Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. Check out the participating bars and their specials below! - See more at: http://pkdcure.kintera.org/faf/donorReg/donorPledge.asp?ievent=1129562&lis=1&kntae1129562=C51551F4FA9041E5B994BB569D5CAF8D&supId=362445931#sthash.ENEnfGSL.dpuf

Casey Prakapas's Personal Page for 2015 DIY for PKD

Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. Check out the participating bars and their specials below! - See more at: http://pkdcure.kintera.org/faf/donorReg/donorPledge.asp?ievent=1129562&lis=1&kntae1129562=C51551F4FA9041E5B994BB569D5CAF8D&supId=362445931#sthash.ENEnfGSL.dpuf

Casey Prakapas's Personal Page for 2015 DIY for PKD

Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. Check out the participating bars and their specials below! - See more at: http://pkdcure.kintera.org/faf/donorReg/donorPledge.asp?ievent=1129562&lis=1&kntae1129562=C51551F4FA9041E5B994BB569D5CAF8D&supId=362445931#sthash.ENEnfGSL.dpuf

Casey Prakapas's Personal Page for 2015 DIY for PKD

Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. Check out the participating bars and their specials below! - See more at: http://pkdcure.kintera.org/faf/donorReg/donorPledge.asp?ievent=1129562&lis=1&kntae1129562=C51551F4FA9041E5B994BB569D5CAF8D&supId=362445931#sthash.ENEnfGSL.dpuf

Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. For more information and to check out the participating bars and their specials, click here!


New Jersey Walk for PKD

 Facebook Profile Picture

The New Jersey Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 New Jersey Walk for PKD!

Click here for some great memories from the 2014 New Jersey Walk for PKD!

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Resources Resources

Sign Up to Receive Information From Your Chapter


Latest Free Webinar

Dr. Clifford MilesKidney Allocation System Q&A

Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center

On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.