News and Information
PKD Foundation News and Announcements
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
The REPRISE clincial research study will evaluate the safety and efficacy of tolvaptan in participants with late stage 2 to early stage 4 chronic kidney disease (CKD) caused by autosomal dominany polycystic kidney disease (ADPKD).
For more information go to: www.RepriseStudy.com or check out the Study Factsheet.
For questions regarding the study please contact the Research Manager, Steph Hanzl, R.N., CCRP at email@example.com or 610.433.4100 ext. 490.
A Message From Your Chapter Coordinator
New Jersey Chapter Members:
My name is Alexandra "Alex" Coglianese, and I am honored, and most importantly, EXCITED, to have the opportunity to serve as the new Chapter Coordinator for the New Jersey Chapter of the PKD Foundation. Continue reading Alex's welcome letter
Local Events and Meetings
Education Seminar - PKD: From Diagnosis to Post-Transplant
Thank you to everyone who came to our first education meeting of the year! We had a wonderful turnout and are excited about all of the new faces! A special thank you to
the Robert Wood Johnson University Hospital physicians who attended our event and spoke to our Chapter regarding a variety issues effecting our chapter members from those who have been recently diagnosed with PKD, to those who are currently post-transplant and everything in between.
If you have questions about our Chapter meetings please email our Volunteer Chapter Coordinator, Alex at firstname.lastname@example.org or visit pkdcure.org/newjerseychapter for more information.
Sunday, November 1, 2015
Take on the Big Apple and run for PKD in the 2015 Bank of America Chicago Marathon to bring hope to those affected by polycystic kidney disease. The PKD Foundation is leading the fight to find treatments and a cure for millions of people worldwide who suffer from polycystic kidney disease.
For more information or to express your interest in the team, email us at email@example.com.
New Jersey Walk for PKD
October 4, 2015
Mercer County Park
Registration is now open!
To learn more about the New Jersey walk or to donate, click here.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
What are cilia and why do they matter?
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.
Latest National Webinar
Pain and PKD
Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.