New Jersey ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at newjerseychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

PKD Foundation News and Announcements

 

What's New in PKD: A Day of LearningWhat's New in PKD 2015: A Day of Learning

On March 28, 2015, PKD Foundation Chapters were invited to participate in an exclusive, online educational conference! PKD experts from across the United States discussed topics that are important to PKD patients. This year's focus was complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Not everyone that has PKD will experience every complication associated with the disease however, understanding these issues will help you to be your best advocate when you visit your physicians.

 

 


REPRISE Study

The REPRISE clincial research study will evaluate the safety and efficacy of tolvaptan in participants with late stage 2 to early stage 4 chronic kidney disease (CKD) caused by autosomal dominany polycystic kidney disease (ADPKD). 

For more information go to: www.RepriseStudy.com or check out the Study Factsheet.

For questions regarding the study please contact the Research Manager, Steph Hanzl, R.N., CCRP at steph.hanzl@necresearch.org or 610.433.4100 ext. 490.


 

A Message From Your Chapter Coordinator

New Jersey Chapter Members:

My name is Alexandra "Alex" Coglianese, and I am honored, and most importantly, EXCITED, to have the opportunity to serve as the new Chapter Coordinator for the New Jersey Chapter of the PKD Foundation. Continue reading Alex's welcome letter

 

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Calendar Local Events and Meetings

 Meeting Chapter Meetings

Education Seminar - PKD: From Diagnosis to Post-Transplant

 

Thank you to everyone who came to our first education meeting of the year! We had a wonderful turnout and are excited about all of the new faces! A special thank you to 
the Robert Wood Johnson University Hospital physicians who attended our event and spoke to our Chapter regarding a variety issues effecting our chapter members from those who have been recently diagnosed with PKD, to those who are currently post-transplant and everything in between. 

If you have questions about our Chapter meetings please email our Volunteer Chapter Coordinator, Alex at newjerseychapter@pkdcure.org or visit pkdcure.org/newjerseychapter for more information.

                      


2nd Annual Bar Hop to Stop PKD

Saturday, June 20

12 p.m. - 7:30 p.m.

Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. Check out the participating bars and their specials below! - See more at: http://pkdcure.kintera.org/faf/donorReg/donorPledge.asp?ievent=1129562&lis=1&kntae1129562=C51551F4FA9041E5B994BB569D5CAF8D&supId=362445931#sthash.ENEnfGSL.dpuf

Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. To view the flyer and to learn more about the participating bars and their specials, click here! For more information, email Alex Coglianese, New Jersey Chapter Coordinator at NewJerseyChapter@pkdcure.org

 


2015 TCS New York City Marathon

Sunday, November 1, 2015

Take on the Big Apple and run for PKD in the 2015 Bank of America Chicago Marathon to bring hope to those affected by polycystic kidney disease. The PKD Foundation is leading the fight to find treatments and a cure for millions of people worldwide who suffer from polycystic kidney disease. 

For more information or to express your interest in the team, email us at runforpkd@pkdcure.org.

 


New Jersey Walk for PKD

 

Walk for PKD    Save the Date

       October 4, 2015

     Mercer County Park

 

     Registration Opens

          June 1, 2015

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Resources Resources

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Latest Free Webinar

What's New in PKD: A Day of LearningWhat's New in PKD 2015: A Day of Learning

On March 28, 2015, PKD Foundation Chapters were invited to participate in an exclusive, online educational conference! PKD experts from across the United States discussed topics that are important to PKD patients. This year's focus was complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Not everyone that has PKD will experience every complication associated with the disease however, understanding these issues will help you to be your best advocate when you visit your physicians.


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PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Phone: 800.443.9441 | Fax: 843.216.6100
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©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.