New Jersey ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at newjerseychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information 

PKD Foundation News and Announcements

Michael PsilakisFood Network's One-on-One Interview with Chopped All-Stars Part 3 Winner, Chef Michael Psilakis

May 13, 2015

Chef Michael Psilakis won part 3 of the Chopped All-StarsTournament and will be in the finale with the chance to win $75,000 for his charity of choice, the PKD Foundation. Food Network did an exclusive one-on-one interview with chef Michael after his big win about being on the show and why he's competing for the PKD Foundation.

Read the exclusive Food Network interview with Chef Michael Psilakis


REPRISE Study

The REPRISE clincial research study will evaluate the safety and efficacy of tolvaptan in participants with late stage 2 to early stage 4 chronic kidney disease (CKD) caused by autosomal dominany polycystic kidney disease (ADPKD). 

For more information go to: www.RepriseStudy.com or check out the Study Factsheet.

For questions regarding the study please contact the Research Manager, Steph Hanzl, R.N., CCRP at steph.hanzl@necresearch.org or 610.433.4100 ext. 490.


 A Message From Your Chapter Coordinator

New Jersey Chapter Members:

My name is Alexandra "Alex" Coglianese, and I am honored, and most importantly, EXCITED, to have the opportunity to serve as the new Chapter Coordinator for the New Jersey Chapter of the PKD Foundation. Continue reading Alex's welcome letter

↑ Top


Calendar Local Events and Meetings

 Meeting Chapter Meetings

Education Seminar - PKD: From Diagnosis to Post-Transplant

 

Thank you to everyone who came to our first education meeting of the year! We had a wonderful turnout and are excited about all of the new faces! A special thank you to 
the Robert Wood Johnson University Hospital physicians who attended our event and spoke to our Chapter regarding a variety issues effecting our chapter members from those who have been recently diagnosed with PKD, to those who are currently post-transplant and everything in between. 

If you have questions about our Chapter meetings please email our Volunteer Chapter Coordinator, Alex at newjerseychapter@pkdcure.org or visit pkdcure.org/newjerseychapter for more information.


Walk Planning Conference Call

Wednesday, May 27      

7 p.m. ET

Join us for a conference call to discuss plans for the 2015 New Jersey Walk for PKD. For more information, please contact Stacey McClain at newjerseywalk@pkdcure.org.

To join the call:

  • Call 855-212-0212
  • Enter the meeting ID: 848-360-606
  • Press # and wait to be joined into the conference call

2nd Annual Bar Hop to Stop PKD

Saturday, June 20

12 p.m. - 7:30 p.m.

Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-6pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. Check out the participating bars and their specials below! - See more at: http://pkdcure.kintera.org/faf/donorReg/donorPledge.asp?ievent=1129562&lis=1&kntae1129562=C51551F4FA9041E5B994BB569D5CAF8D&supId=362445931#sthash.ENEnfGSL.dpuf

Join us on Saturday, June 20, 2015 in Hoboken, New Jersey from 12pm-7:30pm for the New Jersey Chapter's 2nd Annual Bar Hop to Stop PKD! The four bar pub crawl kicks off at 12:00 p.m. at Wicked Wolf, 120 Sinatra Drive, Hoboken, New Jersey. To view the flyer and to learn more about the participating bars and their specials, click here! For more information, email Alex Coglianese, New Jersey Chapter Coordinator at NewJerseyChapter@pkdcure.org

 


2015 TCS New York City Marathon

Sunday, November 1, 2015

Take on the Big Apple and run for PKD in the 2015 Bank of America Chicago Marathon to bring hope to those affected by polycystic kidney disease. The PKD Foundation is leading the fight to find treatments and a cure for millions of people worldwide who suffer from polycystic kidney disease. 

For more information or to express your interest in the team, email us at runforpkd@pkdcure.org.


New Jersey Walk for PKD

 

Walk for PKD    Save the Date

       October 4, 2015

     Mercer County Park

 

     Registration Opens

           June 2015

↑ Top


 

Resources Resources

Sign Up to Receive Information From Your Chapter


Latest Free Webinar

David BaronPKD Foundation's Chief Scientific Officer Webinar

Hear from our new Chief Scientific Officer David Baron, Ph.D., who is also a PKD patient. David shares what we have gained from our PKD research work to date and where we are headed with the Accelerating Treatments to Patients program.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


↑ Top

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.