News and Information
A Message From Your Chapter Coordinator
Hello everyone and welcome to the NYC Chapter webpage. My name is Sarah Giller and I’m so excited to have this opportunity to be the new Chapter Coordinator.
I didn’t have a clue about PKD when I was diagnosed about 20 years ago. It was quite a shock to everyone in my family. The disease progressed rapidly until the only options were either dialysis or a transplant. I have an extraordinarily wonderful and generous sister and she donated a kidney to me in 2007. It was truly a gift of life.
I turned to the PKD Foundation soon after my diagnosis mostly for information and to understand exactly what PKD is and how it would affect both me and my family. Then it became my support system. I met people and learned about what having a chronic disease was like and how I could live a full life in spite of it.
That’s what I hope this Chapter will continue to be – a place of information and support, a place where we help each other and our families to cope with PKD and where we work together towards what we all want – a cure for PKD.
However you want to participate and whatever the level of your involvement we welcome you to join us towards this goal.
Sunday, November 2, 2014
Are you a runner? Is someone you know a runner? Want a chance to run in a premier marathon?
We are looking to fill the last few spots in the 2014 TCS New York City Marathon within the next three weeks! Click here to view the participation options. Register today to secure your spot in this bucket list race. Hurry, before they are gone!
Most importantly, you will run with the satisfaction of knowing that you’re part of the fight against polycystic kidney disease through your fundraising commitment.
Run for PKD
Questions? Contact us at firstname.lastname@example.org or 816.268.8469.
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
Education Seminar - Managing Your Life with PKD
Saturday, Dec. 6, 2014
11:00 a.m. - 3:30 p.m.
Mount Sinai - Philips Ambulatory Care Center
10 Union Square E.
New York, NY 10012
Irina Barash, MD
Jennifer Egert, PhD
Dennis Finkielstein, MD
Kim Valenza, RE, CDE, CDN
Ariella Tomback, LMSW
Cardiovascular Health in Polycystic and Chronic Kidney Disease
Nutrition Recommendations for Patients with Polycystic and Chronic Kidney Disease
PKD Clinical Research Updates
Navigating Dialysis and Transplant
Managing Stress and Chronic Disease
If you have questions, need directions or would like to connect with our Volunteer Chapter Coordinator, please email Sarah at email@example.com.
New York City Walk for PKD
Sunday, October 25
Clinton Cove Park
For more information, click here!
Next Free Webinar
Tuesday, Nov. 11, 2014, 7:00 - 8:00 p.m. CDT
Presented by: Jacob Taylor, Clinical Dietician at Children's Mercy Hospital
The holiday season is fast approaching, which means lots of family get-togethers, dinners and company parties. With food being a primary focus during these social gatherings, it can be a challenge for people with kidney disease to stick with their kidney-friendly diet. Join us for this webinar to learn how to maintain your kidney diet, while still enjoying the most delicious time of the year. Jacob Taylor will also discuss his PKD Diet Study.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.