News and Information
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Lisa is a music teacher at Liberty Elementary School in North Ridgeville, Ohio, and the student council organized a fundraiser to raise money for the PKD Foundation, raising nearly $500 to help fight PKD.
Lisa Cormack has three children, and her girls, Jaina (age four) and Chesley (age 1), have ARPKD. Her son, Dougie (age 2), is a carrier of the gene. When Jaina was diagnosed last summer, her blood pressure was more than double what it should be for a child. Her kidneys were larger than a normal adult kidney, her liver had fibrosis on it and her heart was thickened on the left side from high blood pressure.
"We had no idea she even had this disease, let alone could be in such poor health," Lisa said. "Since ARPKD is a recessive disease, my husband and I didn't know we were carriers and could possibly pass such a deadly disease on to our children. We are very lucky to have such healthy children today. We pray every day their kidneys last as long as they can, seeing as the average age for transplants for this disease is 10 years old."
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Northeast Ohio Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator, Sheila, at email@example.com.
Check back for meeting updates!
Northeast Ohio Walk for PKD
Thank you to all who joined us for the 2015 Northeast Ohio Walk for PKD!
We had a great time! Check out some of our favorite memories from the Walk here. Information on the 2016 Northeast Ohio Walk for PKD coming soon!
If you are interested in volunteering with the Northeast Ohio Walk for PKD, contact the Walk team at firstname.lastname@example.org.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Jan. 20, 12 - 1 p.m. CST
David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.