Northeast Ohio ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at northeastohiochapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 News and Information News and Information

2016 Transplant Games of America
Cleveland Convention Center

June 11 - June 14 

The Donate Life Transplant Games is a multi-sport festival event produced by the Transplant Games of America for individuals who have undergone life-saving transplant surgeries. Competition events are open to living donors, organ transplant recipients, bone marrow, corneal and tissue transplant recipients. More than an athletic event, the Donate Life Transplant Games highlight the critical importance of organ, eye, and tissue donation, while celebrating the lives of organ donors and recipients. 

Volunteers are needed - 4 hour shifts. If you are interested in volunteering, please contact Sheila at jsbradac@roadrunner.com


PKD Patient Handbook

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

 


Lisa is a music teacher at Liberty Elementary School in North Ridgeville, Ohio, and the student council organized a fundraiser to raise money for the PKD Foundation, raising nearly $500 to help fight PKD.

Lisa Cormack has three children, and her girls, Jaina (age four) and Chesley (age 1), have ARPKD. Her son, Dougie (age 2), is a carrier of the gene. When Jaina was diagnosed last summer, her blood pressure was more than double what it should be for a child. Her kidneys were larger than a normal adult kidney, her liver had fibrosis on it and her heart was thickened on the left side from high blood pressure.

"We had no idea she even had this disease, let alone could be in such poor health," Lisa said. "Since ARPKD is a recessive disease, my husband and I didn't know we were carriers and could possibly pass such a deadly disease on to our children. We are very lucky to have such healthy children today. We pray every day their kidneys last as long as they can, seeing as the average age for transplants for this disease is 10 years old."

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Calendar Local Events and Meetings


Meeting Chapter Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Although the Northeast Ohio Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator, Sheila, at northeastohiochapter@pkdcure.org.

Check back for meeting updates!

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Northeast Ohio Walk for PKD

                               

  
   Sept. 17, 2016
   Bedford Reservation, Egbert Shelter

 Register Today!

 

 If you are interested in volunteering with the Northeast Ohio Walk for PKD, contact the Walk team at walkforpkd@pkdcure.org.

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Resources Resources

Latest Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Conversation with a researcher

Bradley Yoder, Ph.D., discusses the results of his recently completed PKD Foundation-funded project "In vivo analysis of cilia mechanosensation in the kidney."

Watch now

Learn more about Webinar Wednesdays or watch previous webinars here.


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.