Northeast Ohio Chapter
Welcome to the PKD Foundation’s Northeast Ohio Chapter Website!
Recruiting New Leadsership:
Your local Northeast Ohio PKD Chapter is currently seeking a volunteer Chapter Coordinator. This position is a vital leadership role that represents the PKD Foundation in the local community and acts as a liaison between the Foundation and local constituents. This volunteer position supports our mission of education, fundraising and support. As a local Chapter Coordinator, you will be one of the first to hear about mission critical updates when you join a network of over 60 Coordinators across the nation. We are seeking to fill this position soon so we can move forward with providing services and programs to your area. Some of the core responsibilities of this volunteer position are to connect PKD patients in your community and host two or more educational meetings a year.
If you can serve a two year term and have an hour a week to donate your time and talents to PKD patients in your area, we would welcome the opportunity to speak with you further. Please reply to me here at email@example.com for further information and again we hope to secure our next great volunteer very soon! Thank you!
Better Together at the PKD National Convention
June 20–22, 2014
Kansas City, Mo.
This June, the PKD community will unite in Kansas City for three days of relationship building, education and fun. Join us as we hear from experts in the field, including Gregory G. Germino, M.D. of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) at the National Institutes of Health and leading ARPKD expert Lisa Guay-Woodford, M.D. Whether you are a PKD patient, caregiver or family member we know you will walk away from the Convention with new connections, friends and practical tips for managing your health or supporting a loved one.
Visit pkdcure.org/convention to register and learn more.
Transplant Games of America
July 11 - 15, 2014
The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries. The games are more than an athletic event! They highlight the importance of organ donation and celebrate the lives of organ donors and recipients. For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.
The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families. If you plan to participate, please take our brief survey!
Managing PKD and Chronic Kidney Disease
Thursday, May 15, 2014
6:30 - 8 p.m.
Cleveland Clinic Beachwood
26900 Cedar Road
Beachwood, OH 44094
Dr. Richard Fatica, Department of Nephrology and Hypertension, Cleveland Clinic
Yvette Burrucker, RN, Cleveland Clinic
Mark Slater, PKD patient, recently listed on the Kidney Transplant Wait List
Light refreshments will be served. If you have questions, please email Sheila at NortheastOhioChapter@pkdcure.org.
The Northeast Ohio Chapter does not have any local events scheduled at this time. Please check back for any future events as they become planned.