News and Information
Shop with AmazonSmile this holiday season to benefit the PKD Foundation. When you shop at AmazonSmile, Amazon will donate 0.5% of the purchase price to the PKD Foundation. Learn more and start your shopping at smile.amazon.com.
Local Events and Meetings
Chapter Support Meeting
Dealing With Kidney Disease
Monday, Jan. 26, 2015
7:00 p.m. - 7:45 p.m. CST
Join us from the comfort of your own home for a Virtual Education meeting focusing on you and kidney disease, now what. We will share tricks of the trade followed by an open exchange of information. If you have any questions please email our Volunteer Chapter Coordinator, Laura at firstname.lastname@example.org.
Northern Indiana Walk for PKD
The Northern Indiana Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
Cruis'n for a Cure for PKD
Sunday, May 17
12 p.m. - 3 p.m.
LaPorte County Fairgrounds2581 S. R.2LaPorte, IN 46350
Save the date for a car show and cruise as we raise funds to benefit the PKD Foundation. No tickets or pre-registration necessary. For more information or if you have questions, please contact Laura at email@example.com.
Plan your own Event!
All of the events that take place in the Northern Indiana PKD Foundation Chapter, large or small, happen because someone decided to organize them. We often receive checks from people who have put together a craft fair, bake sale, gotten their business to sponsor a casual day or any of a dozen other things. You can send your money earned to the PKD Foundation immediately (no need to hold it) and it will be deposited right away for you. Just let us know if you need help with any of this.
There are also people who have decided they have the time and energy to put on a major event or who are connected to a church or school group who help them put on a major event. Many other charities are starting to connect with sororities, fraternities, or other social organizations to put on an annual event and you can too!
If you have an idea for an event that you would like to put together, or if you have a business, church or community group that may like to get involved, please contact us at firstname.lastname@example.org and we'll help you get the ball rolling.
Latest Free Webinar
Presented by Ronald D. Perrone, M.D., HALT study principal investigator
This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.