News and Information
PKD Foundation News and Announcements
April 22, 2015
Chef Michael Psilakis will be competing against fellow celebrity chefs on Food Network's fourth season of Chopped All-Stars. Michael's episode airs Tuesday, May 12 at 9 p.m. Central Time. If he advances and wins in the final competition round on May 26, Michael will donate $75,000 to the PKD Foundation, his charity of choice.
Read more about Chef Michael Psilakis
A note from your Chapter Coordinator:
SAVE THE DATE: Cruis'n For a Cure for PKD - Sunday, May 17at LaPorte County Fairgrounds, 2581 West S.R. 2, LaPorte, Indiana. All wheels are welcomed. Car show begins at noon CST and the 40-mile cruise begins at 2:30 p.m. Rain or shine: no pre-registration, just drive on in and be a part of this great event!
The Michigan City Walk concluded its 8th year. We raised $11,510! Way to go everyone...together we can do anything.
It is not too early to be thinking about the 2015 Walk for PKD! Join us on Saturday, Sept. 19. Watch your email for details and a link to register. I’d also like to welcome Debra Wheeland, our new Walk Coordinator.
Check out our Chapter webpage or Facebook page to see information on Chapter events and volunteer opportunities.
Local Events and Meetings
Sunday, May 17
LaPorte County Fairgrounds
Noon - 3 p.m.
2581 S. R.2
LaPorte, IN 46350
Join us for a car show and cruise as we raise funds to benefit the PKD Foundation. No tickets or pre-registration necessary. For more information click here or if you have questions, please contact Laura at firstname.lastname@example.org.
Save the date!
Mastering the Health of Your Kidney's
Monday, June 8
6:30 to 8 p.m.
Luhr County Park
3178 S. 150th Street
LaPorte, IN 46350
Learn about Health and Nutrition through good food choices and proper mediation. In addition, the ins and outs before and after kidney transplant.
Our speaker Patty Leonard is a Registered Nurse and Certified Diabetes Educator with IU Health La Porte. She was diagnosed with Polycystic Kidney Disease at age 21 then 24 years later at age 45 received a kidney transplant from her living brother’s donation. Polycystic Kidney Disease has affected her family over generations and there have been some great times, scary times and laughter-filled times.
Patty will be presenting her personal story along with educational information on diabetes & kidney disease along with any questions regarding her own personal transplant.
If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator Laura at email@example.com.
Check back for updates and online registration!
Kidney Korner......"You've got someone in your corner"
While having family and friends to turn to can make a huge difference for people dealing with chronic kidney disease (CKD) or life on dialysis, sometimes it isn’t enough. Talking to others who are going through the same experiences as you can be a much-needed opportunity to vent, share information, get advice and receive and provide support.
Nowadays, support groups can be found in all sorts of places. One great place to connect with others is on a conference call. This discussion forum with your kidney friends through the PKD Foundation is a place where people with chronic kidney disease, those on dialysis (either at home or at a center), as well as family members and friends of those with kidney disease, can talk. Some topics include: Share Your Experiences, Lifestyle, Education and Caregiver Support. Also, it ok if you don't feel comfortable sharing but want to hear others and what their experiences are. There is no wrong or stupid question or comment. Just kidney buddies chatting.
There’s no cost to join us, although you will need to register here to get your personal connections to join us. Give me a shout out if you have some ideas for a subject you would like to discuss as well.
Come join us! At our meetings, you will find a great group of caring, supportive people who all have been touched by PKD in some way and who are willing to share their knowledge of the disease. We also host guest speakers and leaders in the field of PKD that help us continue our ongoing educational awarenees program. Check back for updates and upcoming meetings and locations. Next date will be in spring April or May.
Northern Indiana Walk for PKD
Save the Date
September 19, 2015
Creek Ridge County Park
June 1, 2015
Plan your own Event!
All of the events that take place in the Northern Indiana PKD Foundation Chapter, large or small, happen because someone decided to organize them. We often receive checks from people who have put together a craft fair, bake sale, gotten their business to sponsor a casual day or any of a dozen other things. You can send your money earned to the PKD Foundation immediately (no need to hold it) and it will be deposited right away for you. Just let us know if you need help with any of this.
There are also people who have decided they have the time and energy to put on a major event or who are connected to a church or school group who help them put on a major event. Many other charities are starting to connect with sororities, fraternities, or other social organizations to put on an annual event and you can too!
If you have an idea for an event that you would like to put together, or if you have a business, church or community group that may like to get involved, please contact us at firstname.lastname@example.org and we'll help you get the ball rolling.
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Latest Free Webinar
On March 28, 2015, PKD Foundation Chapters were invited to participate in an exclusive, online educational conference! PKD experts from across the United States discussed topics that are important to PKD patients. This year's focus was complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Not everyone that has PKD will experience every complication associated with the disease however, understanding these issues will help you to be your best advocate when you visit your physicians.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.