News and Information
A note from your Chapter Coordinator:
I’m excited about the upcoming opportunities for our Chapter. Is there a topic you would like to see covered at a meeting? If so, please drop me a note! And don't miss our virtual conference, What's New in PKD: A Day of Learning on March 28th. Read below for more details.
SAVE THE DATE: Cruis'n For a Cure for PKD - Sunday, May 17at LaPorte County Fairgrounds, 2581 West S.R. 2, LaPorte, Indiana. All wheels are welcomed. Car show begins at noon CST and the 40-mile cruise begins at 2:30 p.m. Rain or shine: no pre-registration, just drive on in and be a part of this great event!
The Michigan City Walk concluded its 8th year. We raised $11,510! Way to go everyone...together we can do anything.
It is not too early to be thinking about the 2015 Walk for PKD! Join us on Saturday, Sept. 19. Watch your email for details and a link to register. I’d also like to welcome Debra Wheeland, our new Walk Coordinator.
Check out our Chapter webpage or Facebook page to see information on Chapter events and volunteer opportunities.
PKD Foundation News and Announcements
PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the button to learn more about the online education conference!
Local Events and Meetings
SAVE THE DATE!
What's New in PKD: A Day of Learning
Saturday, March 28
10:00 A.M. - 2:30 P.M. CDT
IU Health LaPorte Hospital - Heart and Vascular Center
LaPorte, IN 46350
Join us for the PKD Foundation's Educational Virtual Conference, broadcasting live to your Chapter! Experts in PKD will share the latest in PKD research.
Lunch will be served.
If you have any questions please email our Volunteer Chapter Coordinator, Laura at firstname.lastname@example.org.
Northern Indiana Cruis'n for a Cure for PKD
Sunday, May 17
LaPorte County Fairgrounds
Noon - 3 p.m.
2581 S. R.2
LaPorte, IN 46350
Join us for a car show and cruise as we raise funds to benefit the PKD Foundation. No tickets or pre-registration necessary. For more information click here or if you have questions, please contact Laura at email@example.com.
Kidney Korner......"You've got someone in your corner"
While having family and friends to turn to can make a huge difference for people dealing with chronic kidney disease (CKD) or life on dialysis, sometimes it isn’t enough. Talking to others who are going through the same experiences as you can be a much-needed opportunity to vent, share information, get advice and receive and provide support.
Nowadays, support groups can be found in all sorts of places. One great place to connect with others is on a conference call. This discussion forum with your kidney friends through the PKD Foundation is a place where people with chronic kidney disease, those on dialysis (either at home or at a center), as well as family members and friends of those with kidney disease, can talk. Some topics include: Share Your Experiences, Lifestyle, Education and Caregiver Support. Also, it ok if you don't feel comfortable sharing but want to hear others and what their experiences are. There is no wrong or stupid question or comment. Just kidney buddies chatting.
There’s no cost to join us, although you will need to register here to get your personal connections to join us. Give me a shout out if you have some ideas for a subject you would like to discuss as well.
Come join us! At our meetings, you will find a great group of caring, supportive people who all have been touched by PKD in some way and who are willing to share their knowledge of the disease. We also host guest speakers and leaders in the field of PKD that help us continue our ongoing educational awarenees program. Check back for updates and upcoming meetings and locations. Next date will be in spring April or May.
Northern Indiana Walk for PKD
The Northern Indiana Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Northern Indiana Walk for PKD!
Click here for some great memories from the 2014 Northern Indiana Walk for PKD!
Plan your own Event!
All of the events that take place in the Northern Indiana PKD Foundation Chapter, large or small, happen because someone decided to organize them. We often receive checks from people who have put together a craft fair, bake sale, gotten their business to sponsor a casual day or any of a dozen other things. You can send your money earned to the PKD Foundation immediately (no need to hold it) and it will be deposited right away for you. Just let us know if you need help with any of this.
There are also people who have decided they have the time and energy to put on a major event or who are connected to a church or school group who help them put on a major event. Many other charities are starting to connect with sororities, fraternities, or other social organizations to put on an annual event and you can too!
If you have an idea for an event that you would like to put together, or if you have a business, church or community group that may like to get involved, please contact us at firstname.lastname@example.org and we'll help you get the ball rolling.
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Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.