Orange County ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at orangecountychapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 


 

News and Information News and Information

Get to Know Your Coordinator

Why I volunteer- Yvonne DiCarlo Clemens
"So, while I'm waiting for my miracle pill, I want to do all I can to help those in need of transplants. I'm getting involved with the PKD Foundation to increase awareness, education, support, advocacy and fund raising so that dialysis will become a thing of the past. I do this for myself, my children, my grandchildren, and for you".

Click here to read all of Yvonne's story. 


 

PKD Foundation News and Announcements

 

What's New in PKD A Day of Learning

 

PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!

 

  


San Francisco Rock ‘n’ Roll Half Marathon

Sunday, March 29, 2015

 

Take a VIP running tour of the Golden Gate City at this year’s San Francisco Rock ‘n’ Roll Half Marathon to bring hope to those affected by PKD. Click here for more information.

Questions? Contact us at runforpkd@pkdcure.org or 816.268.8469.

↑ Top


Calendar Local Events and Meetings

Meeting Chapter Meetings

 

What's New in PKD: A Day of Learning

Saturday, March 28, 2015
 8 a.m. - 12:30 p.m.

 

Location:
UCLA Santa Monica - Auditorium
1250 16th Street
Santa Monica, CA 90404

 PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss topics that are important to PKD patients. This year, we will be focusing on complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Dr. Rastogi will be joining us to speak for the first half hour of the event!

Please RSVP by calling (800) 516-5323.

If you have any questions about the event please email our Volunteer Chapter Coordinator, Dwight at losangeleschapter@pkdcure.org.

 

↑ Top


Resources Resources

Sign Up to Receive Information From Your Chapter


Latest Free Webinar

WatchPreimplantation Genetic Diagnosis (PGD) 101

Presented by Lawrence Grunfeld, M.D., clinical associate professor of Obstetrics and Gynecology at the Mount Sinai School of Medicine and co-director of Reproductive Medicine Associates of New York

Preimplantation genetic diagnosis, known as PGD, is a screening test used to determine if genetic or chromosomal disorders are present in embryos produced through in vitro fertilization (IVF).

In this webinar, Lawrence Grundfeld, M.D. speaks and answers questions about PGD as it relates to PKD. He is also joined by two families who have chosen to use PGD in family planning.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


↑ Top

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.