News and Information
PKD Foundation News and Announcements
PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!
Local Events and Meetings
Philadelphia Chapter Awareness Event
Kidney Action Day
Friday, April 24
10 a.m. - 2 p.m.
Municipal Services Building Plaza
1401 John F. Kennedy Blvd.
Philadelphia, PA 19102
Join the fight to prevent kidney disease and Pair Up with the American Kidney Fund and the Philadelphia Department of Public Helath at Kidney Action Day. Bring your friends and family to this fun-filled, family-friendly event.
For more information go to: www.KidneyActionDay.org
If you have any questions about the event please email our Volunteer Chapter Coordinator, Jamielynn at firstname.lastname@example.org.
Philadelphia Walk for PKD
The Philadelphia Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Philadelphia Walk for PKD!
Click here for some great memories from our 2014 Philadelphia Walk for PKD!
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Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.