News and Information
A note from your Chapter Coordinator:
It’s a new year and a fresh start for the Phoenix Chapter! With a renewed vision and new leadership, we are planning to take this Chapter in fresh and exciting directions. As always, our focus is on PKD patients, their families and friends.
We are in the process of planning support group and educational meetings, so watch for details to follow! If you have ideas on speakers or subjects you want covered, please let us know. And don't miss What's New in PKD: A Day of Learning on March 28. See below for more details.
It is not too early to be thinking about the 2015 Walk for PKD, to be held this fall to raise funds and awareness! Big changes here too! New location, new leadership team … we’re renewing and evolving! Join us for our kickoff and planning meetings starting in March. Stay tuned for the exact times and locations. Registration opens in June. Watch your email for details and a link to register.
We hope the information provided here is helpful to you as you manage living with PKD. Be sure to visit our Website too: www.pkdcure.org/phoenixchapter. Our Chapter is here for you so please contact us anytime at PhoenixChapter@pkdcure.org.
What’s New in PKD: A Live Broadcast Day of Learning –Virtual Conference
Date: March 28, 2015
Time: 8:00 AM – 1:00 PM
Location: Mayo Clinic Hospital – Phoenix Campus
5777 East Mayo Boulevard
Phoenix, AZ 85054
First Floor Meeting Room #1-212
2015 Phoenix Walk for PKD Brainstorming Session
Location: Mayo Clinic Cafeteria
Time: To be held immediately after the conclusion of the What’s New in PKD Webinar
Phoenix Walk for PKD
Date: Fall 2015
Exact date, location and time to be determined
PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the button to learn more about the online education conference!
Chapter Awareness Event:
The Phoenix Chapter Coordinators will be bringing about PKD awareness at the Southwest Nephrology Conference by hosting a booth at the Conference on Friday, February 27th.
Volunteers from our Chapter:
Local Events and Meetings
SAVE THE DATE!
What's New in PKD: A Day of Learning
Saturday, March 28
8 a.m. - 12:30 p.m.
8 a.m. - 12:30 Presentations
12:30 - 1:30 p.m. Walk and Chapter Strategy Session
Mayo Clinic Hospital - Phoenix Campus
Meeting Room #1-212 (1st floor)
5777 East Mayo Blvd.
Phoenix, AZ 85054
PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss topics that are important to PKD patients.
Immediately after the Webinar, we will be adjorning to the hospital Cafeteria area for a 2015 Phoenix Chapter/Walk for PKD Brainstorming session! Everyone is invited to help us take the Chapter and Walk to the next level!
If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinators, Terri & Monica, at email@example.com.
Phoenix Walk for PKD
The Phoenix Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Phoenix Walk for PKD!
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Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.