Your local PKD Phoenix Chapter is currently seeking a volunteer Walk Coordinator.
The Walk Coordinator will be responsible for organizing logistics for the Walk, recruiting volunteers, securing sponsorships, recruiting and encouraging team captains and participants, promoting the Walk within the community, and helping raise awareness of PKD and the Foundation. This position requires about 2 to 3 hours a week and more time as we approach the event date.
As a local Coordinator, you will be one of the first to hear about mission critical updates when you join a network of over 50 coordinators across the nation. The Foundation will provide you with support tools and an invitation to attend our annual Leadership Conference training in Kansas City February 21-23. If you have time and talents to donate to PKD patients in your area, we would welcome the opportunity to speak with you further.
Please contact Sue Full at firstname.lastname@example.org if you are interested in the Phoenix Walk Coordinator position.
The Phoenix Chapter wants to hear from YOU!
Please take our SURVEY and let us know what programs interest you the most.
My name is Risa Simon and I’m thrilled you stopped by! As your Phoenix Chapter Coordinator, I’d like to thank you for taking the time to visit our site, as this is where your local connection to the PKD Foundation begins.
Our vision is pure and simple: We exist to educate, inspire and support your efforts in managing your disease continuum. You don’t have to “go it alone.” When you become a part of your local Phoenix PKD Chapter, your presence will allow you to make friends with other PKD patients and families to learn more about their experiences and success stories. Our educational events also allow you to learn from PKD-centered nephrologists and other special speakers. These sessions will empower you to take charge of your life, rather than letting valuable time pass you by.
Our goal is to transform your fear into purposeful action.
Our mission: Is for all PKD patients and their families to become a part of the SOLUTION! We are passionately dedicated to helping the Foundation find treatments - and ultimately a cure for PKD, so no one has to suffer the full effects of this disease.
Our Local Presence & Purpose: is to empower your process, so you can live the best life possible.
So what are you waiting for? Take that first step (if you haven’t already), and join our team today by emailing me at: email@example.com.
Living the dream, in the spirit of a better tomorrow,
Risa Simon, Phoenix Chapter Coordinator
Transplant Games of America
July 11 - 15, 2014
The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries. The games are more than an athletic event! They highlight the importance of organ donation and celebrate the lives of organ donors and recipients. For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.
The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families. If you plan to participate, please take our brief survey!
Risa Simon, Volunteer Chapter Coordinator, recently shared her journey with PKD and how she is her own advocate on the Renal Support Network radio talk show Kidney Talk! You can listen to it here.
Learn More About PKD
Visit our Learning Center at your convenience and learn more about topics important to PKD patients!
Next Free Webinar
Straight Talk - Patients Share Their Unique Experiences with Dialysis and Transplantation
Thursday, March 27, 7:00 - 8:30 p.m. CDT
Do you have questions about renal replacement? Is your physician telling you it is time to prepare for dialysis or transplant? If you answer yes to these questions, our latest webinars may help you be your best advocate as you enter the conversation about renal replacement with your health care team.
Virtual Education Meeting - How to Manage a Healthy PKD Diet & Lifestyle
Saturday, March 15, 2014
9:00 - 10:30 AM
Call in Number: 712.775.7000
Access Code: 945416#
Join us from the comfort of your own home for a Virtual Education meeting focusing on How to Manage a Healthy PKD Diet & Lifestyle. We will share "wisdom tips" during a brief presentation followed by an open exchange of information.
If you have questions about this meeting or would like to connect with our Volunteer Chapter Coordinator, please email us at firstname.lastname@example.org.
The Phoenix Chapter does not have any local events scheduled at this time. Please check back for any future events as they become planned.
Straight Talk About Transplantation
February 4, 2014
Presented by Melissa Blevins, RN, MS
What happens after you are told you need a kidney transplant? Melissa Blevins, RN, MS, will walk us through the process beginning when your physician tells you it is time to consider a kidney transplant.