News and Information
The Phoenix Chapter Wants to Hear From YOU!
My name is Risa Simon and I'm thrilled you stopped by! As your Phoenix Chapter Coordinator, I'd like to thank you for taking the time to visit our site, as this is where your local connection to the PKD Foundation begins.
Our vision is pure and simple: We exist to educate, inspire and support your efforts in managing your disease continuum. You don't have to "go it alone." When you become a part of your local Phoenix PKD Chapter, your presence will allow you to make friends with other PKD patients and families to learn more about their experiences and success stories. Our educational events also allow you to learn from PKD-centered nephrologists and other special speakers. These sessions will empower you to take charge of your life, rather than letting valuable time pass you by.
Our goal is to transform your fear into purposeful action.
Our mission: Is for all PKD patients and their families to become a part of the SOLUTION! We are passionately dedicated to helping the Foundation find treatments - and ultimately a cure for PKD, so no one has to suffer the full effects of this disease.
Our Local Presence & Purpose: is to empower your process, so you can live the best life possible.
So what are you waiting for? Take that first step (if you haven't already), and join our team today by emailing me at: email@example.com.
Living the dream, in the spirit of a better tomorrow,
Risa Simon, Phoenix Chapter Coordinator
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
Risa Simon, Volunteer Chapter Coordinator, recently shared her journey with PKD and how she is her own advocate on the Renal Support Network radio talk show Kidney Talk! You can listen to it here.
Local Events and Meetings
The Phoenix Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you have questions or would like to connect with our Volunteer Chapter Coordinator, please email us at firstname.lastname@example.org.
Check back for updates!
Phoenix Walk for PKD
Saturday, November 2
For more information, click here!
May 19, 2014
Presented by Howard R. Winokuer, Ph.D.
Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.