News and Information
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
It’s a new year and a fresh start for the Phoenix Chapter! With a renewed vision and new leadership, we are planning to take this Chapter in fresh and exciting directions. As always, our focus is on PKD patients, their families and friends.
We are in the process of planning support group and educational meetings, so watch for details to follow! If you have ideas on speakers or subjects you want covered, please let us know.
It is not too early to be thinking about the 2015 Walk for PKD, to be held this fall to raise funds and awareness! Big changes here too! New location, new leadership team … we’re renewing and evolving! Stay tuned for the exact times and locations. Registration opens in June. Watch your email for details and a link to register.
We hope the information provided here is helpful to you as you manage living with PKD. Our Chapter is here for you so please contact us anytime at PhoenixChapter@pkdcure.org.
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Phoenix Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinators, Terri and Monica at firstname.lastname@example.org.
Check back for updates!
Phoenix Walk for PKD
October 18, 2015
Registration is now open!
To learn more about the Phoenix walk or to donate, click here.
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Next Webinar Wednesday
What are cilia and why do they matter?
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.
Latest National Webinar
Pain and PKD
Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.