News and Information
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
It’s a new year and a fresh start for the Phoenix Chapter! With a renewed vision and new leadership, we are planning to take this Chapter in fresh and exciting directions. As always, our focus is on PKD patients, their families and friends.
We are in the process of planning support group and educational meetings, so watch for details to follow! If you have ideas on speakers or subjects you want covered, please let us know.
It is not too early to be thinking about the 2015 Walk for PKD, to be held this fall to raise funds and awareness! Big changes here too! New location, new leadership team … we’re renewing and evolving! Stay tuned for the exact times and locations. Registration opens in June. Watch your email for details and a link to register.
We hope the information provided here is helpful to you as you manage living with PKD. Our Chapter is here for you so please contact us anytime at firstname.lastname@example.org.
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
We do not have any meetings scheduled at this time but we would still like to hear from you. Please contact Volunteer Chapter Coordinators Terri and Monica at email@example.com with any questions you may have.
Phoenix Walk for PKD
Thank you for joining us at the 2015 Phoenix Walk for PKD!
We had a great time connecting with everyone.
Save the date!
Oct. 16, 2016
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Next Webinar Wednesday
Wednesday, Jan. 20, 12 - 1 p.m. CST
David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.