Pittsburgh ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at pittsburghchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.



News and Information News and Information


Walk for PKD 2014Walk Season is Here!

Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.

Find Your Walk and Register Now!


Transplant Games of AmericaTransplant Games of America


We had an amazing time at the Transplant Games of America!  Thank you to everyone that stopped by our booth and shared your transplant story with us.  Congratulations to everyone that participated in the games!


View Slideshow!



Chapter members recently recorded an interview with radio DJ Sean McDowell to promote our walk and to help get the word out about PKD.  Dr. Kumar of Allegheny General Hospital's transplant program discussed the medical aspects of the disease and chapter members had an opportunity to share their stories. The interview will be broadcast on Sunday August 31 at 7 am on local radio stations WDVE, 3WS, and 104.7.  Pictured L-R, George Santel, Nancy Kaminski, Tom Kaminski, Dr.Kumar, Jean Bost and in front, Sean McDowell.   


Pittsburgh Chapter Volunteer Coordinator, Kristee Adams, will present information about PKD and PKD Foundation at the CNSW Conference on Sept. 12.  This presentation will provide CME credits for nephrology social workers attending the conference. The conference will be held at University of Pittsburgh Medical Center East.


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Calendar Local Events and Meetings

Meeting Chapter Support Meetings

Tuesday, July 8
6:30 p.m. - 8:30 p.m.

Hiland Presbyterian Church
Pittsurgh, PA  15229

Join us for our quarterly meeting where you can meet others affected by PKD. At the end of our meeting, we would welcome you to stay where we will make some final preparations for the Walk for PKD. Volunteers are always appreciated!

RSVP Today!

If you have questions or would like to connect with our Volunteer Chapter Coordinator, please email Kristee at pittsburghchapter@pkdcure.org.

50 Mile Bike Run for Walk Team LaRussa

Sunday, August 31, 2014

Registration: 10 a.m.

Bikes Leave: 11 a.m.

Kinloch VFD Lower Burrell #1
915 New York Avenue
New Kensington, PA 15068


Join us for this fun family friendly event with a rally ride, music, clowns, prizes and much more! Single riders are $25 and doubles are $30. For more information and to pre-register, please contact Russell Waltz at PKDRally@comcast.net or 724-571-5014. 

Pittsburgh Walk for PKD

Saturday, September 13

For more information, click here!

Register Today


UNO DoughRaiser 

Saturday, September 13

UNO Chicago Grill

Please join us after the Walk for lunch at UNO Chicago Grill, at the Waterfront. Bring one of these coupons and a portion of your total bill will be donated to the Pittsburgh Walk for PKD. The coupon is good all day and for dine in or take out.

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Resources Resources

Latest Webinar

Dr. Howard WinokuerTalking to Your Children About PKD

May 19, 2014
Presented by Howard R. Winokuer, Ph.D.

Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.

Watch Now


PKD Will Not Beat Me

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.