Welcome to the PKD Foundation’s PKD Parents Chapter Website!
Julia Roberts - Cell 404-731-8931; firstname.lastname@example.org
Atlanta, GA - Julia’s two children, Gage and Quinn have ARPKD and a vision disorder called Ocularmotor Apraxia. They were diagnosed when Quinn was born in 2001. Gage, born in 1999, was on dialysis for 6 months and received a kidney from a family friend in March 2007. Another family friend donated to Quinn on her 8th birthday in September 2009. Both kids are thriving despite their diagnosis. Their journal is being chronicled at http://www.kidneysandeyes.com.
Michele Karl - Cell 914-522-6193; home 914-948-4495; email@example.com
White Plains, NY - Michele has three sons: Max is 8, Nate is 5, and Gabriel is 2. Max and Gabe have ARPKD. They were diagnosed in 2006 when Gabe was born at 34 weeks gestation. Subsequently Max was diagnosed but did not have any symptoms at the time. Nate who is now 5 does not have ARPKD. Both boys currently are being treated for high blood pressure, but have good kidney function. Michele recently started a blog at http://threepeas.wordpress.com.
ARPKD Study Enrollees Needed
Please click here for more information on the study and how to enroll
Learn More about PKD.
Don’t miss out on our series of quarterly webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our NEW learning center and to view our FREE educational webinars!
The PKD Parents Chapter does not have any meetings scheduled at this time but we do want to hear from you. If you would like to connect with our Volunteer Chapter Coordinators, please email us at firstname.lastname@example.org.
The PKD Parents Chapter does not have any local events scheduled at this time. Please check back for any future events as they become planned.
The Empowered PKD Patient: Proactive Strategies to Secure Your Best Life Possible
October 23, 2013
Presented by Risa Simon, CMC
If you've been told to "Do Nothing" until you "Get Sicker" — or simply sense yourself floating in a sea of uncertainty, then join this enlightening session and learn from author, mentor and preemptive transplant recipient, Risa Simon, as she reveals life-changing insights doctors rarely share with their patients. If you (or a loved one) are looking to avoid the need for dialysis, or fear the long wait for a kidney might squelch transplant opportunities, look no further.