News and Information
Thank you for joining us at the Portland Walk for PKD!
The Walk may be over but fundraising will remain open until Dec. 31. Click the button below to make a donation to the Portland Walk today!
What can we do for you?
The Portland Chapter is here for YOU! Our Volunteer Coordinators plan education, support and fundraising events to support PKD families in the Portland area and to support the Mission of the PKD Foundation. It is very important to us to know how we can be of service to you and your family. Please connect with us if there is anything we can do for you. YOU are always welcome!
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Portland Chapter Education Meeting
Monday, November 9
6:30 to 8:30 p.m.
Topic: PKD and Nutrition
Speaker: Maureen McCarthy
Oregon Health & Science University Transplant Dietician
Legacy Good Samaritan - Wilcox Building, Room A
1041 NW 22nd Avenue
(Intersection of NW Marshall and NW 22nd)
Portland, OR 97210
Join us for our November Education meeting! Maureen McCarthy, Transplant Dietician, discusses diet during all stages of PKD. To learn more about Maureen McCarthy, click here.
If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator Alex, at firstname.lastname@example.org.
Portland Walk for PKD
Thank you to all who joined us for the Portland Walk for PKD!
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Oct. 21, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer David Baron, Ph.D., will discuss the new study looking at (pioglitazone) Actos as a potential drug therapy for PKD. Guest speaker Bonnie Blazer-Yost, Ph.D., principal investigator for the study, will join the discussion.
Next National Webinar
Wednesday, Oct. 14, 7 - 8 p.m. CDT
Presented by: Margot Troutt-Keys, LCSW
Join us for a discussion about the emotional toll PKD takes on a person and their family. Learn tips for coping and get advice for staying positive in the face of health adversity.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.