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Welcome to the Portland chapter page!
My name is Alexandra Hagen and I am your chapter coordinator. Thank you for visiting the Portland Chapter page This is where your local connection to the PKD Foundation begins. We are here to educate, inspire and support your efforts in managing PKD by connecting with others in the area, to learn about similar experiences, local resources and success stories. You will probably make some new friends as well!
I started the chapter about five years ago when two of us called the foundation to see what we could do to help. Before we knew it, we two were the chapter! We ran it and were the only ones at the meetings at first. Many things have changed since then. Since 2011, our chapter membership, activities, and interests have grown, and our PKD walks have raised $50K!!!!
This year our walk coordinator is a team of two fantastic leaders, Julie and Michelle. They will have more to share with you soon. If you would like to be a part of their committee for the 2016 PKD walk, please let us know!
Each year, we have four meetings. Two of them are in the late winter/early spring. The other two are in the fall. We ask speakers to come give a short presentation and then allow for question and answer time. We have a progressive chapter that likes to hear from experts about everything from diet to dialysis to kidney paired exchanges to legislative advocacy to alternative medicine to the latest in clinical trials. We ask the speakers to join us so we can learn more about PKD and play an active role in our health. Below are the dates for this year's meetings. We hope to start up some regular meet and greets so please stay tuned.
Our community in Portland is as diverse as the disease itself and passionately dedicated to helping the Foundation find treatments, and ultimately a cure for PKD.
Please join our yahoo group email@example.com
We look forward to meeting you!
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Portland Chapter Education Meeting
Monday, Sept. 12 - Summary of the Kidney Patient Summit and review the 2016 Portland Walk for PKD - Register
Monday, Nov. 14 - Healthy Eating for PKD patients - Register
If you have any questions about the Chapter, please contact Volunteer Chapter Coordinator Alex at firstname.lastname@example.org.
Portland Walk for PKD
Thank you to all who joined us for the 2015 Portland Walk for PKD!
We had a great time! Check out some of our favorite memories from the Walk here.
Save the date!
Oct. 1, 2016
Oaks Amusement Park
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Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.