Portland ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at portlandchapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.


 News and Information News and Information

What can we do for you?Alex Hagen

Welcome to the Portland chapter page!

My name is Alexandra Hagen and I am your chapter coordinator. Thank you for visiting the Portland Chapter page This is where your local connection to the PKD Foundation begins.  We are here to educate, inspire and support your efforts in managing PKD by connecting with others in the area, to learn about similar experiences, local resources and success stories. You will probably make some new friends as well!

I started the chapter about five years ago when two of us called the foundation to see what we could do to help. Before we knew it, we two were the chapter! We ran it and were the only ones at the meetings at first. Many things have changed since then. Since 2011, our chapter membership, activities, and interests have grown, and our PKD walks have raised $50K!!!!

This year our walk coordinator is a team of two fantastic leaders, Julie and Michelle. They will have more to share with you soon. If you would like to be a part of their committee for the 2016 PKD walk, please let us know!

Each year, we have four meetings. Two of them are in the late winter/early spring. The other two are in the fall. We ask speakers to come give a short presentation and then allow for question and answer time. We have a progressive chapter that likes to hear from experts about everything from diet to dialysis to kidney paired exchanges to legislative advocacy to alternative medicine to the latest in clinical trials. We ask the speakers to join us so we can learn more about PKD and play an active role in our health. Below are the dates for this year's meetings. We hope to start up some regular meet and greets so please stay tuned.

Our community in Portland is as diverse as the disease itself and passionately dedicated to helping the Foundation find treatments, and ultimately a cure for PKD. 

Please join our yahoo group pkdportland-subscribe@yahoogroups.com

We look forward to meeting you!

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PKD Patient Handbook


The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!


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Calendar Local Events and Meetings

Meeting Chapter Meetings 

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome! 

Portland Chapter Education Meeting 

Upcoming meetings:

Monday, Sept. 12 - Summary of the Kidney Patient Summit and review the 2016 Portland Walk for PKD - Register
Monday, Nov. 14 - Healthy Eating for PKD patients - Register

If you have any questions about the Chapter, please contact Volunteer Chapter Coordinator Alex at portlandchapter@pkdcure.org.

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 Portland Walk for PKD


   Oct. 1, 2016
   Oaks Amusement Park

   Register Today!

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Resources Resources

Latest Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Conversation with a researcher

Bradley Yoder, Ph.D., discusses the results of his recently completed PKD Foundation-funded project "In vivo analysis of cilia mechanosensation in the kidney."

Watch now

Learn more about Webinar Wednesdays or watch previous webinars here.

Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


PKD Connection

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.