News and Information
My name is Mark Ruffin and I have gladly accepted the position of Chapter Coordinator for the San Antonio Chapter for the PKD Foundation. I have worked closely with my wife, Patti, over the last 13 years while she continues to be the San Antonio Walk for PKD Coordinator in the overall effort to END PKD. In assisting her during this time, I’ve gotten to know many people in the San Antonio area and across the nation who worked tirelessly to lead the fight to find a cure for PKD. They have always been inspirational and dedicated. I am privileged to join them in their efforts in a new role.
Some background information on me: I grew up in North Carolina, graduated from college in Raleigh (North Carolina State University) in 1971, and then went work for AT&T. I worked for AT&T (then called Western Electric) in North Carolina. In 1974, I was transferred to Houston, Texas, then moved to Dallas, and finally ended up in San Antonio, retiring in 2012. Most of my early volunteer efforts while employed at AT&T involved supporting engineering studies for minorities and being a science fair judge on a couple of occasions (humbling!). As I mentioned earlier, I’ve provided volunteer support for the San Antonio Chapter for the PKD Foundation for about 13 years.
As the new Chapter Coordinator (and with your continued guidance and support), I will work with the PKD Foundation in the local community and acts as a liaison between the Foundation and local constituents (e.g. patients, families, health professionals, sponsors, volunteers, etc.) to embrace the Foundation mission.
I want to thank the PKD Foundation for their past and continued support. I look forward to building a better relationship with them and with my “volunteer partners” in other parts of the country whom I’ve gotten to know over the past few years. Any guidance or inputs to help me in this endeavor will be appreciated. You can contact me via email at firstname.lastname@example.org or call me at 210 414-6679.
Remember: Without you, nothing happens.
The San Antonio Chapter attended an advocacy workshop presented by the Texas Renal Coalition to prepare for Texas Kidney Day Tuesday, February 10. San Antonio Chapter volunteers Dene and Leon Kyrish and Patti Ruffin are pictured with Senator Leticia Van De Putte.
San Antonio Chapter Awareness Event
Wednesday, April 20
10 a.m. to 1 p.m.
Baptist Health System 18th Annual Block Party
Baptist Healthlink Fitness & Wellness Center
288 W. Bitters
San Antonio, TX 78216
Network with other groups and organizations from the healthcare community. We will have a table to facilitate awareness of PKD and promote the upcoming San Antonio Walk for PKD happening on Sept. 10.
Volunteers are welcome! Contact Mark, Chapter Coordinator, at email@example.com if you are interested.
San Antonio Chapter Awareness Event
Leap into Wellness
Thursday, April 21
11 a.m. to 2 p.m.
University of Texas Health Science Center at San Antonio
7703 Floyd Curl Drive
San Antonio, TX 78229
Annual Wellness Day at the University of Texas Health Science Center San Antonio campus. The San Antonio Chapter will have a table at the event and answer questions about PKD and the PKD Foundation.
Volunteers are needed! Contact Mark, Chapter Coordinator, at firstname.lastname@example.org if you are interested.
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Kroger Neighbor to Neighbor Donation Program
Did you know that every time you shop for groceries, you could be raising money to support PKD Research? YES you can! Every time you shop at a Kroger, you can help the PKD Foundation earn a piece of $1,000,000.00. Setting this up is easy. You'll need your Kroger Plus Card and go to krogercommunityrewards.com. Find the PKD Foundation & sign up. It's that easy!
Local Events and Meetings
Chapter Support Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
If you have any questions concerning our Chapter meetings, please email Volunteer Chapter Coordinator Mark at email@example.com.
San Antonio Walk for PKD
Thank you for joining us for the 2015 San Antonio Walk for PKD!
Save the date!
Sept. 10, 2016
O.P. Schnabel Park, Graff Pavilion
Sign Up to Receive Information From Your Chapter
Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.