News and Information
PKD Awareness Day, September 3, 2015!
San Antonio is working to bring awareness to PKD on Thursday, September 3! Tune in to Great Day San Antonio at 9 a.m. on Thursday morning. Patti Ruffin, Walk for PKD Coordinator, Dr. Pergola from Renal Associates and Greta Ellis, Team Captain will be interviewed.
Stop by Bird Bakery on Thursday or Friday and purchase PKD cupcakes! Proceeds benefit the San Antonio Walk for PKD.
Watch our Awareness day video!
Fox 29 Focus on South Texas features San Antonio Walk for PKD
San Antonio Walk Coordinator, Patti Ruffin, Dr. Pablo Pergola, and Walk volunteer Greta Ellis were interviewed by Erin Nichols on Fox 29 Focus on South Texas. This team of volunteers were able to talk about PKD, transplants, live donation and promote the fun activities happening with the San Antonio Walk for PKD taking place on Sept. 12, 2015.
Click here to watch the interview in full!
Visit walkforpkd.org/sanantonio to find out more about the San Antonio Walk for PKD.
Save the date: PKD National Convention 2016
Join us June 24 to 26, 2016, at the PKD National Convention in Orlando. You'll discover ways to manage your or a loved one's health from an all-star assembly of PKD experts.
A message from our Volunteer Chapter Coordinator:
I'm excited to join the team and truly looking forward to being the volunteer coordinator for our San Antonio Chapter. The Walk is always a fun event, and our 2015 Walk in September is going to be fantastic. The money and awareness that is raised through the Walk for PKD is very important to me personally. As a young man I saw the effects of PKD first hand. I saw my beautiful, talented, and intelligent mother in pain and agony. The effect on our family was a tremendous hardship, and we faced some very difficult years. Once diagnosed properly, and with the right treatment her spirit and health have improved. Now that I have the opportunity, I see the importance of being involved with the PKD community. I look forward to meeting all of you, and feel free to reach out to me anytime.
The San Antonio Chapter attended an advocacy workshop presented by the Texas Renal Coalition to prepare for Texas Kidney Day Tuesday, February 10. San Antonio Chapter volunteers Dene and Leon Kyrish and Patti Ruffin are pictured with Senator Leticia Van De Putte.
PKD Foundation News and Announcements
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter Support Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the San Antonio Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator at email@example.com.
Check back for meeting updates!
San Antonio Walk's 3nd Incentive Week
Sunday, Aug. 23 - Saturday, Aug. 29
Register and start fundraising today to participate in the San Antonio Walk for PKD Incentive Weeks. The third and final incentive week will be held from Sunday, Aug. 23 to Saturday, Aug 29. Prizes will be given as follows:
- Most money raised by individual will receive a $25 Grimaldi's Restaurant gift card and jewelry
- Team Captain that adds the most team members will win a Bill Miller BBQ gift basket (value $100)
- Child (under 15) who raises the most money will receive four tickets to the San Antonio Zoo
Here are some useful links to help you:
Second Incentive winners:
- Team captain to raise the most money - Congratulations to Dianne Glover, winner of a Bird Bakery gift certificate and large jar of Bird Bakery homemade granola.
- Top individual for fundraising - It's a tie! Congratulations to Dorcella and Al Sunday from We are Family, winners of $15 Magnolia Pancake Haus gift certificate and a Copalli Café Mini-Cini coffee cake (value $16).
You must be registered to participate in the incentive weeks. The San Antonio Walk for PKD is Saturday, Sept. 12 at OP Schnabel Park, Graff Pavilion. For event updates, please visit walkforpkd.org/sanantonio.
Good luck and thanks for your support!
A few general reminders and fun facts:
- Tell your “story” with PKD on your personal and team page.
- TEAM SPIRIT: We encourage you to have team spirit (unique tee shirts, caps, etc.).
- SAN ANTONIO INCENTIVES FOR ALL! For every $100 raised (up to a maximum of $2,000), you will receive a “ticket” at the time of registration for big prizes at the time of the Walk (tickets must be in the boxes by 9:15 am).
- MEMORY BOARD: We will honor family members and friends that have trailed the way for those currently “living with PKD”. If you would like to have a person included in our Memory Board, please send the photograph to firstname.lastname@example.org by September 8, 2015.
Promote PKD Awareness Day and support the San Antonio Walk for PKD
Sept. 3 and 4
Bird Bakery, San Antonio
Bird Bakery in San Antonio is graciously promoting PKD Awareness Day, Sept. 3 - 4. If you stop in and buy the PKD Awareness cupcakes (chocolate or vanilla with vanilla buttercream frosting - in PKD colors, of course!) part of the proceeds from this two day PKD Awareness event will benefit the San Antonio Walk for PKD. You can call ahead to order some to take to your offices, your doctor's offices and don't forget your family and friends! birdbakery.com
San Antonio Walk for PKD
September 12, 2015
O.P. Schnabel Park, Graff Pavilion
Registration is now open!
To learn more about the San Antonio walk or to donate, click here.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Sept. 16, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer David Baron, Ph.D., will discuss the function of the kidney and why they're so important.
Latest National Webinar
Kidney stones can be painful and occur more often in PKD patients than in the general population. Dr. Arlene Chapman, Dr. Bharathi Reddy and Dr. Anna Zisman will help you understand what kidney stones are, why they happen and what can be done to treat them.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.