News and Information
What can we do for you?
The Seattle Chapter wants to hear from YOU! Please take our SURVEY and let us know what programs interest you the most.
I look forward to hearing from you!
Seattle Chapter Coordinator
Hello, my name is Lara Macklin and I am excited you stopped by! As your Seattle area Chapter Coordinator I would like to thank you for taking the time to visit our site as this is where your local connection to the PKD Foundation begins. We are here to educate, inspire and support your efforts in managing PKD by connecting with others in the area, to learn about similar experiences, local resources and success stories. I can almost guarantee you will make some new friends as well! We are passionately dedicated to helping the Foundation find treatments, and ultimately a cure for PKD, so that no one has to suffer the full effects of this disease. There is also an on-line support group site to allow for open conversations about PKD, ask questions and share thoughts with other Seattle locals. The site will be moderated and all posts should be relevant to PKD. If you would like to join this group please click on the link below and subscribe. We look forward to "meeting you" on-line!
Thanks to Northwest Kidney Centers! NKC is a major supporter fo the Seattle Chapter. They always have a team at the Walk for PKD and invite us to their many events. While we all hope to never need their dialysis service, it sure is nice to know they're there AND will take good care of us! Thanks NKC!
PKD Foundation News and Announcements
We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding treatments and a cure. Baron's background in biomedical sciences and drug development will keep us moving forward with progress in research.
San Francisco Rock ‘n’ Roll Half Marathon
Sunday, March 29, 2015
Take a VIP running tour of the Golden Gate City at this year’s San Francisco Rock ‘n’ Roll Half Marathon to bring hope to those affected by PKD. Click here for more information.
Questions? Contact us at email@example.com or 816.268.8469.
Local Events and Meetings
The Seattle Chapter generally meets the first Saturday of each month. For more information, please email Lara at firstname.lastname@example.org.
Seattle Walk for PKD
The Seattle Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Seattle Walk for PKD!
Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.