News and Information
A Note from your coordintor
South Florida Chapter Shines ON!
The South Florida Chapter started 2016 welcoming our wonderful partnership with DaVita/Kidney Smart. A Kidney Smart meeting was held at the DaVita/ Hallandale Beach location on Saturday Jan. 23, Roxanna Carmenate-Pupo, MSW presented a clear and very informative power point session. Bagels, fruit and giveaways courtesy of Kidney Smart were appreciated.
*Our next meeting is being planned for April 9th in Coral Springs. A meeting will be planned in the future for the Lake Worth area.* We are actively planning to make the meeting locations convenient to all those who wish to attend!
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
South Florida Chapter Education Meeting
Saturday, April 9
10 to 12:30 p.m.
Topic: Kidney Smart Education
We hope you'll plan to attend our upcoming education meeting on Kidney Smart Education. There will also be question and answer time available at the meeting. Light refreshments will be served and a chance for fun giveaways. Free parking is available.
Location: Complete Dialysis Care
7467 West Sample Road
Coral Springs, FL 33065
If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinator, Susan at firstname.lastname@example.org.
South Florida Walk for PKD
Thank you to all who joined us for the 2015 South Florida Walk for PKD!
We had a great time! Check out some of our favorite memories from Walk day here.
Save the date!
Nov. 6, 2016
For more information contact Volunteer Walk Coordinator, Georgina Habermann at email@example.com.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Jan. 20, 12 - 1 p.m. CST
David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.