South Florida ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.


News and Information News and Information

A Note from your coordintor

South Florida Chapter Shines ON!

The South Florida Chapter started 2016 welcoming our wonderful partnership with DaVita/Kidney Smart. A Kidney Smart meeting was held at the DaVita/ Hallandale Beach location on Saturday Jan. 23, Roxanna Carmenate-Pupo, MSW presented a clear and very informative power point session. Bagels, fruit and giveaways courtesy of Kidney Smart  were appreciated.

*Our next meeting is being planned for April 9 in Coral Springs.  A meeting will be planned in the future for the Lake Worth area. We are actively planning to make the meeting locations convenient to all those who wish to attend! 

PKD Patient Handbook


The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!


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Calendar Local Events and Meetings

Meeting Chapter Meetings

Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!  

Although we don't have any meetings scheduled at this time we would still like to hear from you. If you have any questions concerning the Chapter, contact our Volunteer Chapter Coordinator, Susan at

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Sixth Annual Miami Kidney Casino

May 13

7 to 11 p.m.

Coral Gables Museum
285 Aragon Avenue
Coral Gables, FL 33134


Join 'All In' Presenting Sponsor, The Haggard Law Firm, for the 6th Annual Kidney Casino for a Cure. Enjoy an evening of gaming, live music, drinks and hors d'oeuvres for a cause at the Coral Gables Museum. Proceeds benefit the PKD Foundation. Tickets are $100 per person. Includes two drinks and 'fun money.'

For more information, click here for the event website.

South Florida Walk for PKD


Thank you to all who joined us for the 2015 South Florida Walk for PKD!

We had a great time! Check out some of our favorite memories from Walk day here.                              

   Save the date!
   Nov. 6, 2016
   TY Park


 For more information contact Volunteer Walk Coordinator, Georgina Habermann at


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Resources Resources

Sign Up to Receive Information From Your Chapter

Latest Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Total kidney volume and PKD

Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.

Watch now

Learn more about Webinar Wednesdays or watch previous webinars here.

Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


PKD Connection

Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.