St. Louis ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at stlouischapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

A note from your Chapter Coordinator:


The St. Louis Chapter is gearing up for a wonderful 2015 and we want you to join us! We strive to provide helpful information as you manage living with PKD. Our Chapter is here for you so contact us anytime at stlouischapter@pkdcure.org and visit our website for details of our meetings, fundraisers and virtual conference.

You are invited to our meeting on March 2 where you can meet others and get involved. We will discuss our Walk for PKD, memory board, fundraisers, and virtual conference.

Enjoy the Kidney Fight Trivia Night Fundraiser, May 16! Contact Kris Conant at 314-973-6597 to register. Entry fee is $140/table or $20 individually.

It isn’t too early to think about the 2015 Walk for PKD. Join us on Sunday, Sept.13 at Tower Grove Park. Registration opens in June. Watch your email for details and registration information.

 

PKD Foundation News and Announcements

 

 

What's New in PKD A Day of Learning

 

 

PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!

 

 

 

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Calendar Local Events and Meetings

Meeting Chapter Meetings

 

Save the dates! We have 2 meetings coming up March 2 and 28.  See below for details.

 

St. Louis Chapter - Education Meeting

Monday, March 2
7 p.m. - 8:30 p.m.

Exegy Inc.
349 Marshall Ave
Suite 100
Webster Groves, MO 63119

(Closest largest intersection is S Brentwood Blvd & Marshall Ave)

Directions:
There are two entrances into Owen Ridge Campus. Please use the lower entrance which is midway down the hill. (Hoping to have PKD sign at the entrance.) Drive straight back to the building on your right. Their will be a PKD sign on the door. The building is a secure building.  Enter the first set of doors. Then ring door bell located in the right corner on the wall or call Jean Sommer, Volunteer St. Louis Chapter Coordinator, at 618-210-1901 to be let inside.

 

Join us for the opportunity to connect with others affected by PKD! Bring your questions and concerns. Jean Sommer will share what she learned from Leadership Conference in February. We will discuss the Virtual Conference, Kidney Fight Trivia night, the Walk for PKD sponsorships, memoriam board and fundraising opportunities. We will also be introducing the book, 'Shift Your Fate,Life-Changing Wisdom for Proactive Kidney Patients' by Risa Simon.

 

Register Today

 

 

If you have any questions about event please email the Volunteer Chapter Coordinator, Jean, at stlouischapter@pkdcure.org.

 


 

What's New in PKD: A Day of Learning

Saturday, March 28, 2015
10 a.m. - 3 p.m. Central Time

Registration / Check-In  10 a.m - 10:30 a.m.

Location:
Exegy Inc. - Owen Ridge Campus
349 Marshall Ave
Webster Groves, MO 63119

Light breakfast, lunch and beverages provided. We will accept donations at the door to help cover refreshment costs.


Directions:
Closest intersection is S Brentwood Blvd & Marshall Ave
There are two entrances into Owen Ridge Campus. Please use the lower entrance which is midway down the hill. (Hoping to have PKD sign at the entrance.) Drive straight back to the building on your right. Their will be a PKD sign on the door. The building is a secure building.  Enter the first set of doors. Then ring door bell located in the right corner on the wall or call Jean Sommer, Volunteer St. Louis Chapter Coordinator, at 618-210-1901 to be let inside.

 

Register Today!

 

If you have any questions about event please email the Volunteer Chapter Coordinator, Jean, at stlouischapter@pkdcure.org.

 


 

 

St. Louis Walk for PKD

Facebook Profile Picture 

The St. Louis Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 St. Louis Walk for PKD

 Click here for some great memories from our 2014 St. Louis Walk for PKD!

 


 

Save the Date: Kidney Fight Trivia Night

Saturday, May 16, 2015

6:00pm

Machinists' District 9 Building
Bridgeton, MO 63044

 

Individual Ticket: $20

Table of 8: $140

For questions, please call Kris Conant 314-973-6597.

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Resources Resources

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Latest Free Webinar

Dr. Clifford MilesKidney Allocation System Q&A

Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center

On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.


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Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

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©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2015, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.