News and Information
PKD Foundation News and Announcements
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
The St. Louis Chapter strives to provide helpful information as you manage living with PKD. We meet the 2nd Monday of the month. Please join us! Our Chapter is here for you so contact us anytime at firstname.lastname@example.org and visit our website for details of our education, support, or event planning meetings and fundraisers.
Our Chapter hosted education events and support/education meetings such as: "A Day of Learning" virtual conference, "I have PKD! Now What?", Clinical Trials, and "What is new with the PKD Foundation".
We host several fundraisers (Kidney Fight Trivia Night in the spring, California Pizza Kitchen in June, and the Walk for PKD in September) throughout the year.
On July 13, we are having an Ice Cream Social Meeting. Three St. Louis Chapter Members have volunteered to share their kidney transplant experiences. Kris received her kidney from her brother 6 1/2 years ago. Mary received her kidney from her daughter 4 1/2 years ago. Roz received a kidney from a deceased donor 10 months ago.
It isn’t too early to think about 2015 Walk for PKD. Join us on Sunday, Sept. 13 at Tower Grove Park. On-line registration opens June 10.
Local Events and Meetings
Ice Cream Social and Support Meeting
Monday, July 13
7 - 8:30 p.m.
Exegy, Inc. - Owen Ridge Campus
349 Marshall Ave.
Webster Groves, MO 63119
Join us for this month's ice cream social and support meeting! We will be discussing kidney transplant and two St. Louis Chapter members have volunteered to share their kidney transplant experiences. Kris received her kidney from her brother six and a half years ago. Roz received a kidney from a deceased donor ten months ago.
Owen Ridge Campus has two entrances. Please use the lower entrance at the bottom of the hill. (Note: If you use the top entrance, it will be difficult to find the building). You will be pulling directly into a huge parking lot which will be mostly empty. It is the second building on the right and there will be a PKD sign on the door. It is a secure building so please call or text Jean at 618.210.1901 to be let inside.
Save the date for our next meeting:
Monday, August 10 - Walk Planning Meeting
California Pizza Kitchen Event
Tuesday, Wednesday and Thursday
June 16, 17, 18, 2015
Dine in or carry out at one of four California Pizza Kitchens to raise funds for the 2015 St. Louis Walk for PKD. Bring this flyer and present it to your server and 20% of your bill will be donated to the PKD Foundation. For more information, please click here.
West County Mall109 W County Mall314.909.0333 Saint Louis Galleria1493 St. Galleria314.863.4500 Chesterfield284 Chesterfield Mall636.536.6910 Creve Coeur10590 Old Olive St.314.567.7835.
St. Louis Walk for PKD
September 13, 2015
Tower Grove Park
Registration is now open!
To learn more about the St. Louis walk or to donate, click here.
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Next Webinar Wednesday
What are cilia and why do they matter?
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will discuss what cilia are and why they matter. He will also take time at the end of his presentation to answer your questions.
Latest National Webinar
Pain and PKD
Chronic pain is a major factor affecting the quality of life of a PKD patient and one that is difficult to manage. Dr. Theodore Steinman has spent years working with PKD patients to help them manage their pain and get back to life. In this webinar, Dr. Steinman covers the latest in PKD pain treatment and how to manage daily pain at the various stages of PKD.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.