St. Louis ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. Just contact us at stlouischapter@pkdcure.org to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

News and Information News and Information 

 

PKD Patient Handbook

June 2015

The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.

Download your digital copy today!

A note from your Chapter Coordinator:

The St. Louis Chapter strives to provide helpful information as you manage living with PKD. We meet the 2nd Monday of the month. Our Chapter is here for you so contact us anytime at stlouischapter@pkdcure.org  for details of our education, support, or event planning meetings and fundraisers.

Our Chapter hosted education events and support/education meetings such as: "A Day of Learning" virtual conference, "I have PKD! Now What?", Clinical Trials, and "What is new with the PKD Foundation". 

We host several fundraisers which include: Kidney Fight Trivia Night (April 30, 2016), percentage of food bill at a selected restaurant, and the Walk for PKD (fall).

The St. Louis Chapter is actively collecting donations through Dec. 31, 2015 for our Sept. 13 Walk for PKD. Please continue to raise money or donate on behalf of our Chapter. Every dollar is important. 

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Calendar Local Events and Meetings

Meeting Chapter Meetings

Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn from local medical professionals in our community at our educational meetings? Would you like to see more events happening in your local county or community? 

The local volunteers of the St. Louis Chapter meet the second Monday of the month except during winter break (December, January, and February) and the Walk for PKD month (October 2016). We and are available for support and to share our experiences about living with PKD. If you would like to speak with someone, or attend a chapter get together or meeting, please email stlouischapter@pkdcure.org.

St. Louis Chapter Education Meeting

Monday, March 14
7 to 8:30 p.m.

Topic
: Chronic Kidney Disease: Part 1
Speaker: Bahar Bastani, M.D.

Please join the St. Louis Chapter for part 1 of a 2-part series to learn more about chronic kidney disease (CKD). Bahar Bastani, M.D. of St. Louis University Care Physician Group, will present on the following: CKD, kidney stones, and 'what happens after you have been told you need a kidney transplant?'

Chronic Kidney Disease: Part 2 is scheduled for April 11. Bahar Bastani, M.D. will present on kidney transplants, immunosuppressive drugs, and post transplant care.

DirectionsOwen Ridge Campus has two entrances. Please use the lower entrance (bottom of the hill). Go to the second building on the right. It is a secure building. Please text or call 618-210-1901 to be let inside. Leave a message if I don't answer.

Registration coming soon.


2016 St. Louis Chapter Schedule

  • Monday, April 11 - Bahar Bastani, M.D., nephrologist from St. Louis University Care Physician Group will present Part-2 of the Chronic Kidney Disease (CKD) series: Kidney transplant, Immunosuppressive drugs, and Post transplant care.
  • Saturday, April 30 - Kidney Fight Trivia Night fundraiser: Doors open 6:00 p.m. at District 9 Machinists’ Hall, 12365 St. Charles Rock Rd., Bridgeton, Mo. Cost $20 per person or $160 per table of 8 people.
  • Monday, May 9 - Seth Goldberg, M.D., nephrologist from Washington University/Barnes Jewish Hospital, will present Living Kidney Donation: Benefits of finding a living donor, Kidney paired donation, How to find a living donor, and the process of being a living donor.
  • May - Details coming soon. Percentage of food bill fundraiser of Applebees at various locations.
  • Monday, June 13Seth Goldberg, M.D., nephrologist from Washington University/Barnes Jewish Hospital, will present 'Reading and understanding your labs' and 'What happens to your body at the different stages of kidney failure.'
  • Monday, July 11 - Ice cream social - Breyer’s vanilla ice cream with topping choices of Oreo cookies, M&M’s, and/or Reece’s peanut butter cups. Gary and Jean Sommer will go over their notes and present highlights from the 2016 PKD National Convention.
  • Monday, Aug. 8 - Chocolate cake social - enjoy eating chocolate cake while listening to Gary and Jean Sommer go over their notes and present highlights from the 2016 PKD National Convention.
  • Monday, Sept. 12 - Walk planning meeting
  • Sunday, Oct. 16 - St. Louis Walk for PKD
  • Monday, Nov. 7 - guest speaker and topic to be announced.

If you missed our last Chapter meeting, take a moment to review the minutes. 

10.12.2015 Chapter Education Meeting Minutes - Hypertension

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2016 St. Louis Kidney Fight Trivia Night

April 30, 2016

6 to 11 p.m.

 

Machinists’ District 9 Building

12365 St. Charles Rock Rd.

Bridgeton, MO 63044

 

Join us for our annual Kidney Fight Trivia Night to raise funds for the PKD Foundation! Entry fee is $20 per person or $160 per table of 8. To reserve a table, donate an item to the silent auction, or ask about sponsorships, contact Kris Conant at 314.973.6597 or KidneyFightTriviaNight@gmail.com

To view the flyer, click here.

For the Sponsorship Ad Space form, click here.


St. Louis Walk for PKD

          

Thank you to all who joined us for the 2015 St. Louis Walk for PKD!

We enjoyed connecting with all of you. Check back soon for information on the 2016 St. Louis Walk for PKD!                                             

 

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Would you like to get involved with planning events?

Would you like to see more events happening in your local county or community? Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD, restaurant percentage of food sales fundraiser, Kidney Fight Trivia Night events, or spreading PKD awareness. Email Jean Sommer, Chapter Coordinator at stlouischapter@pkdcure.org for more information.

 


Resources Resources

Sign Up to Receive Information From Your Chapter


Next Webinar Wednesday

Webinar Wednesdays with CSO David Baron, Ph.D.Journal article review on ARPKD research

Wednesday, Jan. 20, 12 - 1 p.m. CST

David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.

Register


Latest National Webinar

Dr. David BaronThe sequence of drug development

Presented by: David Baron, Ph.D., PKD Foundation CSO

Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.

Watch now

Watch previous webinars here.


Blog

PKD Connection


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.