News and Information
Thank you for joining us at the St. Louis Walk for PKD!
The Walk may be over but fundraising will remain open until Dec. 31. Click the button below to make a donation to the St. Louis Walk today!
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
The St. Louis Chapter strives to provide helpful information as you manage living with PKD. We meet the 2nd Monday of the month. Our Chapter is here for you so contact us anytime at email@example.com for details of our education, support, or event planning meetings and fundraisers.
Our Chapter hosted education events and support/education meetings such as: "A Day of Learning" virtual conference, "I have PKD! Now What?", Clinical Trials, and "What is new with the PKD Foundation".
We host several fundraisers which include: Kidney Fight Trivia Night (April 30, 2016), percentage of food bill at a selected restaurant, and the Walk for PKD (fall).
The St. Louis Chapter is actively collecting donations through Dec. 31, 2015 for our Sept. 13 Walk for PKD. Please continue to raise money or donate on behalf of our Chapter. Every dollar is important.
Local Events and Meetings
St. Louis Chapter Meet & Greets!
Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn from local medical professionals in our community at our educational meetings? Would you like to see more events happening in your local county or community? Interested in getting more involved with your local chapter?
The local volunteers of the St. Louis Chapter meet the second Monday of the month except during winter break (December, January, and February) and the Walk for PKD month (October 2016). We and are available for support and to share our experiences about living with PKD. If you would like to speak with someone, or attend a chapter get together or meeting, please email firstname.lastname@example.org.
2016 St. Louis Kidney Fight Trivia Night
April 30, 2016
6 to 11 p.m.
Machinists’ District 9 Building
12365 St. Charles Rock Rd.
Bridgeton, MO 63044
Join us for our annual Kidney Fight Trivia Night to raise funds for the PKD Foundation! Entry fee is $20 per person or $160 per table of 8. To reserve a table, donate an item to the silent auction, or ask about sponsorships, contact Kris Conant at 314.973.6597 or KidneyFightTriviaNight@gmail.com.
St. Louis Walk for PKD
Thank you to all who joined us for the St. Louis Walk for PKD!
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Nov. 18, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer David Baron, Ph.D., will explain the genetics of ADPKD and ARPKD. He will include a overview of some of the genetic research currently being conducted.
Next Free National Webinar
Wednesday, Dec. 2, 2015, 7 to 8 p.m. CST
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD. Also included will be a discussion of clinical trials – why they are important and how to find out about them.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.