News and Information
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
Support & Walk for PKD Planning Meeting
Monday, August 11
7 - 8:30 pm
1500 S. Lindbergh Blvd. (Lindbergh & Clayton)
Ladue, MO 63131
Join us for the opportunity to connect with others affected by PKD! Bring your questions and concerns. We will also be planning the upcoming St. Louis Walk for PKD. Hope to see you there!
If you have questions or would like to connect with our Volunteer Chapter Coordinator, please email us at firstname.lastname@example.org.
St. Louis Walk for PKD
Sunday, September 14
Tower Grove Park, Sons of Rest Pavilion
For more information, click here!
May 19, 2014
Presented by Howard R. Winokuer, Ph.D.
Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.