News and Information
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
A note from your Chapter Coordinator:
The Tampa Chapter is finally hitting the calendar ahead of time to help make 2015 a success! Our PKD patients and their friends and families continue to be our top priority. We hope that you will continue to keep checking back at our Chapter webpage and local calendar. And be sure to follow our Facebook and Twitter pages so you too can stay-up to-date with new information, scientific studies, breaking news, and our national and local events. Managing PKD is tough, and having the PKD Foundation at your side, we hope will provide you a valuable resource to learn, as well as possibly find that much needed support. Our Chapter is here for you, with many folks that have been involved for years, so please contact us anytime at email@example.com.
We have planned our first Support meetings at Panera Bread, which we call our “Quarterly Coffee Break” which occur quarterly on the third Wednesday of that particular month. These meetings are a great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions!
It is not too early to be thinking about the 2015 Walk for PKD! Join us in early October at the beautiful Fort Desoto Park for this year’s Tampa Walk for PKD! Registration opens in June. Watch your email for details and a link to register. We are always looking for new volunteers, so if this sounds appealing to you please feel free to contact us! I am truly looking forward to seeing you this year!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Tampa Chapter Support Meeting
Thursday, Feb. 18
6:30 to 7:30 p.m.
Panera Bread in Carrollwood
13256 N. Dale Mabry Hwy.
Tampa, FL 33618
Join us to kick-off the New Year with our first annual coffee break! It's time to catch up with old friends and make some new ones. Learn about the exciting upcoming PKD Foundation and local events and how your voice can be heard on Capitol Hill.
If you have any questions about this meeting, please contact Celia, the Volunteer Chapter Coordinator Celia at firstname.lastname@example.org.
Tampa Walk for PKD
Thank you for joining us at the 2015 Tampa Walk for PKD!
We had a great time connecting with all of you. Check back soon for information on the 2016 Tampa Walk for PKD!
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Next Webinar Wednesday
Wednesday, Jan. 20, 12 - 1 p.m. CST
David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.