News and Information
A note from your Chapter Coordinator:
The Tampa Chapter is finally hitting the calendar ahead of time to help make 2015 a success! Our PKD patients and their friends and families continue to be our top priority. We hope that you will continue to keep checking back at our Chapter webpage and local calendar. And be sure to follow our Facebook and Twitter pages so you too can stay-up to-date with new information, scientific studies, breaking news, and our national and local events. Managing PKD is tough, and having the PKD Foundation at your side, we hope will provide you a valuable resource to learn, as well as possibly find that much needed support. Our Chapter is here for you, with many folks that have been involved for years, so please contact us anytime at TampaChapter@pkdcure.org.
We have planned our first Support meetings at Panera Bread, which we call our “Quarterly Coffee Break” which occur quarterly on the third Wednesday of that particular month. These meetings are a great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions! Mark your calendar and plan to attend our first Support meeting of the year on Wednesday, March 18 to discuss “Diet & Exercise Challenges.” Also, please don't miss our first educational seminar, which will broadcast the live event “What's New in PKD: A Day of Learning.” You’ll be able to relax, watch and listen with others facing PKD and be able to discuss the seminar’s topics before and after the event. This will be held in downtown Tampa on March
It is not too early to be thinking about the 2015 Walk for PKD! Join us in early October at the beautiful Fort Desoto Park for this year’s Tampa Walk for PKD! Registration opens in June. Watch your email for details and a link to register. We are always looking for new volunteers, so if this sounds appealing to you please feel free to contact us! I am truly looking forward to seeing you this year!
PKD Foundation News and Announcements
PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss complications associated with PKD including aneurysms, hypertension, cardiovascular issues, cardiac valve abnormalities and polycystic liver disease. Click the image to learn more about the online education conference!
Local Events and Meetings
Upcoming meeting dates:
Quarterly Coffee Break - Diet and Exercise Challenges
Wednesday, March 18
6:30 - 7:30 p.m.
13256 North Dale Mabry
Tampa, FL 33618
Chapter support meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome. Please email our volunteer Chapter Coordinator, Celia at TampaChapter@pkdcure.org for more information and to RSVP.
What's New in PKD: A Day of PKD Learning
Saturday, March 28, 2015
10 a.m. - 4 p.m.
PKD Foundation Chapters are invited to participate in this exclusive, online educational conference! PKD experts from across the United States will discuss topics that are important to PKD patients.
Registration for this event will open as soon as a location is finalized! Check back for details and to register!
Tampa Walk for PKD
The Tampa Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Tampa Walk for PKD!
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Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.