News and Information
PKD Foundation News and Announcements
March 17, 2015
Saintsation Kriste was a guest speaker at the Polycystic Kidney Disease (PKD) Foundation's Leadership Conference in Kansas City, Mo., from Feb. 20-22. There were more than 100 people in attendance; two representatives from each state and some representatives from Canada. Attendees were chapter coordinators and leaders across the country with goals of updating each other on ongoing kidney research and continuing to raise awareness of PKD.
Read more about Kriste
A note from your Chapter Coordinator:
The Tampa Chapter is finally hitting the calendar ahead of time to help make 2015 a success! Our PKD patients and their friends and families continue to be our top priority. We hope that you will continue to keep checking back at our Chapter webpage and local calendar. And be sure to follow our Facebook and Twitter pages so you too can stay-up to-date with new information, scientific studies, breaking news, and our national and local events. Managing PKD is tough, and having the PKD Foundation at your side, we hope will provide you a valuable resource to learn, as well as possibly find that much needed support. Our Chapter is here for you, with many folks that have been involved for years, so please contact us anytime at TampaChapter@pkdcure.org.
We have planned our first Support meetings at Panera Bread, which we call our “Quarterly Coffee Break” which occur quarterly on the third Wednesday of that particular month. These meetings are a great opportunity to meet others and share experiences. We always plan a topic for discussion and are open to hear what would interest you the most. Email us anytime with suggestions! Mark your calendar and plan to attend our first Support meeting of the year on Wednesday, March 18 to discuss “Diet & Exercise Challenges.” Also, please don't miss our first educational seminar, which will broadcast the live event “What's New in PKD: A Day of Learning.” You’ll be able to relax, watch and listen with others facing PKD and be able to discuss the seminar’s topics before and after the event. This will be held in downtown Tampa on March
It is not too early to be thinking about the 2015 Walk for PKD! Join us in early October at the beautiful Fort Desoto Park for this year’s Tampa Walk for PKD! Registration opens in June. Watch your email for details and a link to register. We are always looking for new volunteers, so if this sounds appealing to you please feel free to contact us! I am truly looking forward to seeing you this year!
Local Events and Meetings
What's New in PKD: A Day of PKD Learning
Saturday, March 28, 2015
Thank you to all of those that came out to the exclusive, online educational conference! A special thank you to the PKD experts from across the United States who discuessed topics that are important to PKD patients. We enjoyed learning and connecting with those that came to the event!
If you have questions about the event please email our Volunteer Chapter Coordinator at firstname.lastname@example.org.
Tampa Walk for PKD
Save the Date
October 17, 2015
Fort De Soto State Park, Shelter 14
June 1, 2015
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Latest Free Webinar
Presented by Lawrence Grunfeld, M.D., clinical associate professor of Obstetrics and Gynecology at the Mount Sinai School of Medicine and co-director of Reproductive Medicine Associates of New York
Preimplantation genetic diagnosis, known as PGD, is a screening test used to determine if genetic or chromosomal disorders are present in embryos produced through in vitro fertilization (IVF).
In this webinar, Lawrence Grundfeld, M.D. speaks and answers questions about PGD as it relates to PKD. He is also joined by two families who have chosen to use PGD in family planning.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.