News and Information
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Local Events and Meetings
Quarterly Coffee Break
Wishing PKD Chapter Members a Happy Holiday!
Wednesday, Dec. 17, 2014
6:30 p.m. - 7:30 p.m.
13256 North Dale Mabry
Tampa, FL 33618
Stop by for some Holiday Cheer to kick-off our First Quarterly Coffee Break. We will vote on who has the Best - Brightest Holiday Shirt or Sweater to win a Basket of Seasonal Goodies!
Online registration for this event is closed, however, everyone is welcome to join! If you are interested in attending this event please contact out Volunteer Chapter Coordinator, Celia at email@example.com.
Tampa Walk for PKD
The Tampa Chapter wants to thank you for joining us at our Walk for PKD. We had a very successful day and appreciate all of those that donated or came out to the walk. Registration for the event is now closed, but donations are still being accepted through December 31.
Latest Free Webinar
Presented by Ronald D. Perrone, M.D., HALT study principal investigator
This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.