News and Information
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
We had an amazing time at the Transplant Games of America! Thank you to everyone that stopped by our booth and shared your transplant story with us. Congratulations to everyone that participated in the games!
Local Events and Meetings
Support and Walk Planning Meeting
Saturday, August 23
10:30 am - noon
Sentara Office Building
835 Glenrock Road
Norfolk, VA 23502
Join us to connect with other PKD patients and learn more about the Tidewater Walk for PKD.
To RSVP or if you have questions, please email David at firstname.lastname@example.org.
Tidewater Walk for PKD
Saturday, September 27
North Landing Park
For more information, click here!
May 19, 2014
Presented by Howard R. Winokuer, Ph.D.
Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.