News and Information
A Message From Your Chapter Coordinator
Greetings from Minnesota! I recently became the Chapter Coordinator for our state. I have PKD and am currently one of the subjects in the Tolvaptan study. PKD has had quite an impact on my family as my uncle died at 55 and my dad at 72 from complications of this disease. I am interested in doing all I can to raise awareness of the struggle patients and families face with PKD. Please join with me in our work to find a cure for PKD. Contact me with any questions. I look forward to meeting as many of you as possible.
July 11 - 15, 2014
The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries. The games are more than an athletic event! They highlight the importance of organ donation and celebrate the lives of organ donors and recipients. For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.
The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families. If you plan to participate, please take our brief survey!
Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.
Local Events and Meetings
We do not have any local meetings scheduled at this time but do want to hear from you. If you have questions, or would like to connect with us, please email Pam at firstname.lastname@example.org.
Check back for updates!
Twin Cities Walk for PKD
Saturday, September 27
For more information, click here!
May 19, 2014
Presented by Howard R. Winokuer, Ph.D.
Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.