News and Information
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Local Events and Meetings
Chapter meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Twin Cities Chapter Education Seminar
Saturday, May 14
1 to 4 p.m.
200 First St. SW
Rochester, MN 55905
Topic: Nutrition, PKD clincial trials and recently funded grants
Rebecca Schaffer, RDN, LD, Clinical Dietician, Mayo Clinic
Troy Ofstie, RN, CCRP, Nurse Study Coordinator, Mayo Clinic
David Baron, Ph.D. , Chief Scientific Officer, PKD Foundation
We hope you'll join us for our education seminar in May. We are having three great guest speakers that will talk about nutrition, clinical trials, and grants recently funded by the PKD Foundation. The speakers are Rebecca Schaffer, RDN, LD; Troy Ofstie, RN, CCRP; and David Baron, Ph.D.
If you have any questions concerning this meeting, please contact Volunteer Education Coordinator Binu at email@example.com.
Twin Cities Walk for PKD
Save the date!
Sept. 17, 2016
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Latest Webinar Wednesday
Total Kidney Volume (TKV) is a key biomarker for PKD clinical studies. Learn exactly what it means, how it is calculated and why it is an important tool for the development of new therapies for the treatment of PKD.
Learn more about Webinar Wednesdays or watch previous webinars here.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.