Virtual ChapterConnect. Support. Educate.

With the help of PKD Foundation Chapters in cities across the country and beyond, the PKD Foundation provides a forum for patients who want to join in the fight to find a treatment and cure for PKD. If you live in an area that does not have a local Chapter, the Virtual Chapter provides an opportunity for you to connect with patients and join the fight from your very own computer. Just contact us at virtualchapter@pkdcure.org  to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

 

 

News and Information News and Information

Welcome to the Our Virtual Chapter!

Thank you for visiting our Web page! Part of the PKD Foundation's mission is to provide programs of support and education to patients as we work towards a treatment and a CURE for PKD.  We currently have 60+ Chapters that support PKD patients and their friends and families in cities across the country yet, we understand that we cannot meet the needs of all patients with our volunteer led Chapters alone. That is why we are launching the Virtual Chapter!  Beginning January 2014, patients from all cities across the United States can join together, virtually, in support of each other. That is really what the Virtual Chapter is all about!

As we work to ensure that all patients have a place to find the education and support they need, we do want to hear from you! Take our brief survey and tell us how the Virtual Chapter can better assist you.

Take Our Survey


Transplant Games of AmericaTransplant Games of America

Houston, Texas
July 11 - 15, 2014

The Transplant Games of America is a multi-sport festival event for individuals that have undergone life-saving transplant surgeries. The games are more than an athletic event! They highlight the importance of organ donation and celebrate the lives of organ donors and recipients. For more information about the 2014 Transplant Games of America and to register to participate, visit www.transplantgamesofamerica.org.

The PKD Foundation plans to attend the 2014 games to celebrate with PKD patients that have received a kidney transplant, living kidney donors and their families. If you plan to participate, please take our brief survey!

Take Our Survey


Walk for PKD 2014Walk Season is Here!

Registration for fall Walks is now open. With more than 50 Walks across the country and the Virtual Walk, we can all unite to fight PKD.

If there is not a Walk in your area, the Virtual Walk is for you. Pick a day, time and location that works for you and Walk for PKD. If you are unable to walk, you can use the Virtual Walk to raise money and awareness for PKD.

For more information on the Virtual Walk, email us at virtualwalk@pkdcure.org or check out us out at the Virtual Walk page.

Find Your Walk and Register Now!

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Calendar Local Events and Meetings

Meeting Virtual Chapter Meeting - I Have PKD, Now What?

Learn the six most important steps you can take NOW to improve your physical and emotional health as you grapple with how to live the best life possible with a chronic disease.

Due to technical difficulties, we are going to re-record this broadcast and will post the new recording as quickly as possible.  Please check back for the recording.

If you have questions, please contact Nicole at VirtualChapter@pkdcure.org.


Webinar Learn More About PKD

Don’t miss out on our series of  webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.

Click here to visit our  learning center and to view our FREE educational webinars!


Virtual Walk for PKD

Walk your way in your local community

For more information, click here!

Register Today


Run for PKDRun for PKD

Unite to fight one of the most common genetic diseases worldwide. Polycystic kidney disease (PKD) affects millions of all ages and currently has no treatment or cure. You can help put a treatment within reach. Join the Run for PKD and raise funds and awareness to support the mission of the PKD Foundation. With your support, we can take steps toward a future without PKD.

Choose to participate in our Half Marathon Series, Marathon Series or participate in a local event while you fundraise for PKD! Learn more.

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Resources Resources

Latest Webinar

Dr. Howard WinokuerTalking to Your Children About PKD

May 19, 2014
Presented by Howard R. Winokuer, Ph.D.

Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.

Watch Now


Blogs

PKD Will Not Beat Me


Discussion Forums

PKD Discussion ForumsPKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.

Join the Conversation


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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.