News and Information
Welcome to the Our Virtual Chapter!
Thank you for visiting our Web page! Part of the PKD Foundation's mission is to provide programs of support and education to patients as we work towards a treatment and a CURE for PKD. We currently have 60+ Chapters that support PKD patients and their friends and families in cities across the country yet, we understand that we cannot meet the needs of all patients with our volunteer led Chapters alone. That is why we are launching the Virtual Chapter! Beginning January 2014, patients from all cities across the United States can join together, virtually, in support of each other. That is really what the Virtual Chapter is all about!
As we work to ensure that all patients have a place to find the education and support they need, we do want to hear from you! Take our brief survey and tell us how the Virtual Chapter can better assist you.
Walk Season is Here!
Join us for your local Walk for PKD and be the difference in 2015!
Local Events and Meetings
Virtual Chapter Meeting Webinar
Tuesday, Aug. 18, 7 - 8 p.m. CDT
Kidney stones can be painful and occur more often in PKD patients than in the general population. Tune in Tuesday, Aug. 18 at 7 p.m. CT to learn from Dr. Arlene Chapman, Dr. Bharathi Reddy and Dr. Anna Zisman about what kidney stones are, why they happen and what can be done to treat them.
Visit our library of Virtual Chapter Meetings to view recorded presentations!
If you have questions or suggestions for future topics, please contact us at VirtualChapter@pkdcure.org.
Learn More About PKD
Don’t miss out on our series of webinars designed to provide education and information about various medical and lifestyle issues related to polycystic kidney disease.
Click here to visit our learning center and to view our FREE educational webinars!
Unite to fight one of the most common genetic diseases worldwide. Polycystic kidney disease (PKD) affects millions of all ages and currently has no treatment or cure. You can help put a treatment within reach. Join the Run for PKD and raise funds and awareness to support the mission of the PKD Foundation. With your support, we can take steps toward a future without PKD.
Choose to participate in our Half Marathon Series, Marathon Series or participate in a local event while you fundraise for PKD! Learn more.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Oct. 21, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer David Baron, Ph.D., will discuss the new study looking at (pioglitazone) Actos as a potential drug therapy for PKD. Guest speaker Bonnie Blazer-Yost, Ph.D., principal investigator for the study, will join the discussion.
Next National Webinar
Wednesday, Oct. 14, 7 - 8 p.m. CDT
Presented by: Margot Troutt-Keys, LCSW
Join us for a discussion about the emotional toll PKD takes on a person and their family. Learn tips for coping and get advice for staying positive in the face of health adversity.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.