Contact us

Thank you for your interest in learning more about PKD and the PKD Foundation. We look forward to hearing from you soon!

Please note: We do not employ any medical professionals and cannot answer specific medical questions – other than what has been provided by medical advisors on our website and in educational materials, such as PKD Progress. For specific questions regarding your healthcare, please consult your nephrologist.

Contact information

PKD Foundation
1001 E. 101st Terrace, Suite 220
Kansas City, MO 64131

Our office hours are from 8 a.m. to 5 p.m. Central

Toll free phone: 1.800.PKD.CURE (753.2873)
Local phone: 816.931.2600
Fax: 816.931.8655

Staff directory

Executive Leadership

Andy Betts
Chief Executive Officer

David Baron, Ph.D.
Chief Scientific Officer

Angela Connelly
Chief Marketing and Communications Officer

Ray Smith, CPA, MBA
Chief Financial Officer


Ray Smith, CPA, MBA
Chief Financial Officer

Trisha Krause
Accounting Manager


Desiree White
Database Administration Manager

Michael Carter
Database Coordinator

Jessica Gillis
Database Coordinator/Matching Gifts Contact

LaTonya Hood
Database Assistant


Janea Roberts
Regional Development Director

Pat Smithson
Regional Development Director

Jason Wyssmann
Director of Development

Sue Full
Walk for PKD Manager

Julie Russell
Walk for PKD Specialist

Ian Christensen
Fundraising Events Assistant

Danielle Rose
Walk for PKD Coordinator

Reid Samuel
Development Coordinator

Human Resources (HR)

Fredricka McKibben
Human Resources/Office Manager

Information Technology (IT)

Jamey Rose
Director of Information Technology

Marketing and communications

Angela Connelly
Chief Marketing and Communications Officer

Angelike Gaunt
Marketing and Communications Manager

Sara Bristow
Interactive Marketing Specialist

Blaire Ginsburg
Marketing and Communications Coordinator

Tiffany Scantlebury
Graphic Designer

Research and education

David Baron, Ph.D.
Chief Scientific Officer

Alexis Denny
Research and Development Manager

Nicole Harr
Advocacy and Patient Services Manager

Terri Potter
Advocacy and Patient Services Coordinator

Emily Bates
Administrative Coordinator