Contact us

Thank you for your interest in learning more about PKD and the PKD Foundation. We look forward to hearing from you soon!

Please note: We do not employ any medical professionals and cannot answer specific medical questions – other than what has been provided by medical advisors on our website and in educational materials, such as PKD Progress. For specific questions regarding your healthcare, please consult your nephrologist.

Contact information

PKD Foundation
1001 E. 101st Terrace, Suite 220
Kansas City, MO 64131

Our office hours are from 8 a.m. to 5 p.m. Central

Toll-free phone: 1.800.PKD.CURE (753.2873)
Local phone: 816.931.2600
Email: pkdcure@pkdcure.org
Fax: 816.931.8655

Staff directory

Executive Leadership

Andy Betts
Chief Executive Officer

David Baron, Ph.D.
Chief Scientific Officer

Ray Smith, CPA, MBA
Chief Financial Officer

Accounting

Ray Smith, CPA, MBA
Chief Financial Officer

Trisha Krause
Accounting Manager

Database

Desiree White
Integrated Information Systems Director

Michael Carter
Database Coordinator

Jessica Bond
Quality Assurance Coordinator/Matching Gift Contact

LaTonya Hood
Database Assistant

Development

Janea Roberts
Regional Development Director

Pat Smithson
Regional Development Director

Jason Wyssmann
Director of Development

Sue Full
Special Events Director

Julie Russell
Walk for PKD Specialist

Ian Christensen
Fundraising Events Coordinator

Danielle Rose
Walk for PKD Coordinator

Kit Dawson
Prospect Research Specialist

Reid Samuel
Donor Relations Specialist

Human Resources (HR)

Fredricka McKibben
Human Resources/Office Manager

Marketing and communications

Angelike Gaunt
Director of Marketing and Content Strategy

Sara Bristow
Interactive Marketing Specialist

Blaire Ginsburg
Marketing and Communications Coordinator

Tiffany Scantlebury
Graphic Designer

Research and education

David Baron, Ph.D.
Chief Scientific Officer

Alexis Denny
Research and Development Manager

Nicole Harr
Advocacy and Patient Services Manager

Emily Bates
Administrative Coordinator