PKD National Convention 2016

Top

Learn the latest on PKD from the experts

Terry Watnick, M.D.Whether you're a patient, parent, caregiver or health care professional, the PKD National Convention 2016 has something for everyone. You'll hear from experts on PKD research, transplants, pain management, lifestyle and nutrition and much more! Check back in the coming months for the full agenda and list of speakers.

  General sessions

 Show all

Friday, June 24, 2016
TimeTopic  
10 a.m. - 2 p.m. Registration opens!    
2:15 - 2:45 p.m. Welcome and opening session    
3 - 4 p.m. Keeping your new kidney healthy    
3 - 4 p.m. Managing your health as PKD progresses    
3 - 4 p.m. Learn the facts: The basics of ADPKD and ARPKD    
4:15 - 5:15 p.m. Diet and nutrition for the ESRD and dialysis PKD patient    
4:15 - 5:15 p.m. Pain and PKD    
5:15 - 7 p.m. Reception, exhibit hall opening and research poster presentations    
7 - 9 p.m. Celebration dinner    
Saturday, June 25, 2016
TimeTopic  
8 - 9 a.m. Exhibit hall open    
9 - 10 a.m. Nutrition and water for those living with PKD – expert panel    
9 - 10 a.m. Transplant A-Z    
10:10 - 11 a.m. Life insurance: Financial security for your loved ones    
10:10 - 11 a.m. Beyond the kidneys: How PKD affects your body    
10:10 - 11 a.m. Nephrectomy: If, when and how    
11 - 11:30 a.m. Exhibit hall open    
11:30 a.m. - 12:30 p.m. Caregiver health: Caring for yourself as you care for someone with PKD    
11:30 a.m. - 12:30 p.m. Get the health care you deserve: Tips for effective communication with your health care team    
12:30 - 1:30 p.m. Lunch and general session: Clinical trials – why you should participate    
1:30 - 2 p.m. Exhibit hall open    
2 - 2:50 p.m. Nuts and bolts of dialysis    
2 - 2:50 p.m. Learn the facts: Immunosupressive drugs    
2 - 2:50 p.m. Blood pressure A-Z – expert panel    
2:50 - 3:10 p.m. Exhibit hall open    
3:10 - 4 p.m. Learn the facts: Polycystic liver disease    
3:10 - 4 p.m. Living a full life while on dialysis    
4:10 - 5 p.m. Your patient experience – findings from survey results    
Sunday, June 26, 2016
TimeTopic  
9 - 10 a.m. Help us change the world – how you can be the hero in the fight to end PKD    
10 - 11 a.m. Voices of PKD brunch: Inspirational tales of courage and hope    
11 a.m. - noon Ask the doc panel: Get your questions answered by the experts    

 Show all

  Parent sessions

 Show all

Friday, June 24, 2016
TimeTopic  
10 a.m. - 2 p.m. Registration opens!    
2:15 - 3:30 p.m. Welcome and opening session    
3:40 - 5:15 p.m. Learn the facts: The basics of ADPKD and ARPKD in children    
5:15 - 7 p.m. Reception, exhibit hall opening and research poster presentations    
7 - 9 p.m. Celebration dinner    
Saturday, June 25, 2016
TimeTopic  
8 - 9 a.m. Exhibit hall open    
9 - 11 a.m. Congenital hepatic fibrosis and other non-renal manifestations of ADPKD and ARPKD in children    
11 - 11:30 a.m. Exhibit hall open    
11:30 a.m. - 12:30 p.m. Diet and nutrition for childen with ADPKD and ARPKD    
12:30 - 1:30 p.m. Lunch and general session: Clinical trials – why you should participate    
1:30 - 2 p.m. Exhibit hall open    
2 - 2:50 p.m. Dialysis and transplantation in children    
2:50 - 3:10 p.m. Exhibit hall open    
3:10 - 5 p.m. Ask the doc: Get your questions answered by the experts    
Sunday, June 26, 2016
TimeTopic  
9 - 10 a.m. Help us change the world – how you can be the hero in the fight to end PKD    
10 - 11 a.m. Voices of PKD brunch: Inspirational tales of courage and hope    
11 a.m. - noon Parent-to-parent Q&A    

 Show all

  Youth sessions

 Show all

Friday, June 24, 2016
TimeTopic  
10 a.m. - 2 p.m. Registration opens!    
2:15 - 2:45 p.m. Youth welcome: Meet and greet    
3 - 4 p.m. How does PKD affect me?    
4:15 - 5:15 p.m. Staying positive through tough times    
5:15 - 7 p.m. Reception, exhibit hall opening and research poster presentations    
7 - 9 p.m. Celebration dinner    
Saturday, June 25, 2016
TimeTopic  
7:30 - 9:45 a.m. First ride experience at Disney's Animal Kingdom®: Safari ride and breakfast    
11 - 11:30 a.m. Exhibit hall open    
11:30 a.m. - 12:30 p.m. PKD clinical trials – what you should know    
12:30 - 1:30 p.m. Lunch and general session: Clinical trials – why you should participate    
1:30 - 2 p.m. Exhibit hall open    
2:50 - 3:10 p.m. Exhibit hall open    
Sunday, June 26, 2016
TimeTopic  
9 - 10 a.m. Help us change the world – how you can be the hero in the fight to end PKD    
10 - 11 a.m. Voices of PKD brunch: Inspirational tales of courage and hope    
11 a.m. - noon You're in charge: How to start managing your own health care    

 Show all