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Living with PKD

These sessions will provide information to those who are newly diagnosed or are living with PKD. Session topics include the stages of kidney failure, PKD clinical trials, how to get the most out of your doctor and more. Featured speaker Terry Watnick, M.D. is an Associate Professor of Medicine in the Division of Nephrology at the University of Maryland School of Medicine and is the Chair of the PKD Foundation Scientific Advisory Committee. Look for her sessions in the agenda below!

Friday, June 20

Time

Topic

Speaker

Category

Noon

Registration Opens

 

 

3 p.m. - 4 p.m.

Get the Most Out of Your Doctor's Time

Terry Watnick, M.D.

 

4:10 p.m. - 5:10 p.m.

Stages of Chronic Kidney Disease

Wendy Brown, M.D.

 

4:10 p.m. - 5:10 p.m.

United Network for Organ Sharing (UNOS) Update

Clifford Miles, M.D.

 

5:10 p.m. - 7 p.m.

Exhibit Hall Open and Research Poster Presentations

 

 

7 p.m. - 9 p.m.

Celebration Dinner

Jared Grantham, M.D.
Gregory Germino, M.D.

 


Saturday, June 21

Time

Topic

Speaker

Category

7:30 a.m. - 9 a.m.

Advocacy Breakfast and Foundation Update

Jackie D. Hancock, Jr., CRFE
Frank Condella, Jr.
Paul Conway

 

9 a.m. - 9:30 a.m.

Exhibit Hall Open

 

 

9:30 a.m. - 10:30 a.m.

The Latest in PKD Clinical Studies

Marie Hogan, M.D., Ph.D.

 

10:45 a.m. - 11:45 a.m.

Learn the Facts: Polycystic Liver Disease

Marie Hogan, M.D., Ph.D.

 

11:45 a.m. - 12:15 p.m.

Exhibit Hall Open

 

 

12:15 p.m. - 1:20 p.m.

Building Your Financial House for PKD Families

Kari M. Lusby, CFP®, AIFA®

 

1:20 p.m. - 1:45 p.m.

Exhibit Hall Open

 

 

1:45 p.m. - 2:45 p.m.

ADPKD Science Update

Terry Watnick, M.D.

 

3 p.m. - 4 p.m.

Minimize Pain, Maximize Life

Theodore Steinman, M.D.

 

3 p.m. - 4 p.m.

Self Care for the Caregiver

Wendy Brooks, RN
Sarah King, RN

Caregivers & Spouses

3 p.m. - 5 p.m.

Interactive Sessions

  • Eating Healthy on a Budget
  • Staying Healthy: Balance of Mind and Body
  • Breathe and Meditate: Finding Calm in the Midst of Illness
  • Yoga in Chairs

 

 

4:15 p.m. - 5:15 p.m.

Alternative Therapies for PKD

Benjamin Cowley, Jr., M.D.
Terry Watnick, M.D.

 

5:15 p.m. - 6:15 p.m.

Special Interest Group Discussion: Pick a topic and join the conversation!

 

 

6:15 p.m.

Dinner on your own. Be sure to visit the Kansas City Convention and Visitors Association Table for the inside scoop on where to eat dinner and what to do in Kansas City!

 

 

6:30 p.m. - 8 p.m.

Investors' Reception — Invitation Only

 

Foundation Partners


Sunday, June 22

Time

Topic

Speaker

Category

8 a.m. - 9 a.m.

Breakfast — come as you please and enjoy connecting with each other over kidney-friendly food.

 

 

8 a.m. - 9 a.m.

Investors' Breakfast — Invitation Only

 

Foundation Partners

9 a.m. - 10:30 a.m.

From Promise to Progress: Accelerating Treatments to Patients Update Panel Discussion

Benjamin Cowley, Jr., M.D.
Terry Watnick, M.D.
Arlene Chapman, M.D.
Lorrie Rome, MS

 

10:30 a.m. - Noon

Getting Involved in the PKD Foundation — How to Fight for the Cause!