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PKD Teens

This special group of sessions is for teens and young adults ages 13-20 who are diagnosed with PKD. This group will enjoy age-appropriate conversations and presentations to address the concerns, frustrations, and questions about having PKD at a young age. Session topics include how to keep a positive attitude for a positive life and how to be a typical teen while staying healthy. There is also an opportunity for a special fun outing in Kansas City. Don't miss this exciting opportunity to connect with peers from across the country! Featured speaker Melissa Cadnapaphornchai, M.D. treats children with renal disorders at The Kidney Center at Children's Hospital Colorado, and has served as Director of Pediatric Research at the University of Colorado Anschutz Medical Campus Polycystic Kidney Disease Research Group since 2001. Her sessions will give the teens tools and information to help them stay positive and healthy as well as how to participate in clinical trials as youth and teens. Don't miss this opportunity to hear from Dr. Melissa and connect with teens just like you!

This group is designed for youth who have been diagnosed with ARPKD or ADPKD. However, teens that have not been diagnosed but have PKD in their family are welcome to join.

Friday, June 20






Registration Opens



3 p.m. - 4 p.m.

Positive Attitude, Positive Life

Melissa Cadnapaphornchai, M.D.


4:10 p.m. - 5:10 p.m.

Get Proactive for the Cause!

PKD Foundation Staff


5:10 p.m. - 7 p.m.

Exhibit Hall Open and Research Poster Presentations



7 p.m. - 9 p.m.

Celebration Dinner

Jared Grantham, M.D.
Gregory Germino, M.D.


Saturday, June 21





7:30 a.m. - 9 a.m.

Advocacy Breakfast and Foundation Update

Jackie D. Hancock, Jr., CRFE
Frank Condella, Jr.
Paul Conway


9 a.m. - 9:30 a.m.

Exhibit Hall Open



9:30 a.m. - 10:30 a.m.

You Are Not Alone (Even if it Feels Like it)

Greg Mainolfi
MaryKatherine Michiels-Kibler


10:45 a.m. - 11:45 a.m.

Clinical Trials and Youth

Melissa Cadnapaphornchai, M.D.
MaryKatherine Michiels-Kibler


11:45 a.m. - 12:15 p.m.

Exhibit Hall Open



Noon - 4 p.m.

PKD Teen Outing



12:15 p.m. - 1:20 p.m.

Building Your Financial House for PKD Families

Kari M. Lusby, CFP®, AIFA®


1:20 p.m. - 1:45 p.m.

Exhibit Hall Open



3 p.m. - 4 p.m.

Self Care for the Caregiver

Wendy Brooks, RN
Sarah King, RN

Caregivers & Spouses

3 p.m. - 5 p.m.

Interactive Sessions

  • Eating Healthy on a Budget
  • Staying Healthy: Balance of Mind and Body
  • Breathe and Meditate: Finding Calm in the Midst of Illness
  • Yoga in Chairs



5:15 p.m. - 6:15 p.m.

Special Interest Group Discussion: Pick a topic and join the conversation!



6:15 p.m.

Dinner on your own. Be sure to visit the Kansas City Convention and Visitors Association Table for the inside scoop on where to eat dinner and what to do in Kansas City!



6:30 p.m. - 8 p.m.

Investors' Reception — Invitation Only


Foundation Partners

Sunday, June 22





8 a.m. - 9 a.m.

Breakfast — come as you please and enjoy connecting with each other over kidney-friendly food.



8 a.m. - 9 a.m.

Investors' Breakfast — Invitation Only


Foundation Partners

9 a.m. - 10:30 a.m.

How to Become Your Own Advocate

Richard Capling, D.O.
Bradley Warady, M.D.


10:30 a.m. - Noon

Getting Involved in the PKD Foundation — How to Fight for the Cause!



PKD Foundation

©, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.