What is PKD?
Autosomal dominant polycystic kidney disease, ADPKD, is one of the most common, life-threatening genetic diseases. In ADPKD, fluid-filled cysts develop and enlarge in both kidneys, eventually leading to kidney failure.
What are the symptoms?
What are cysts?
How Is ADPKD diagnosed?
What are the stages of ADPKD?
What causes ADPKD?
What are the related health complications?
Autosomal recessive polycystic kidney disease, ARPKD, is a rare genetic disorder occurring in approximately 1 in 20,000 children. It affects boys and girls equally and can cause death in the first month of life.
What are the symptoms of ARPKD?
How is ARPKD diagnosed?
What causes ARPKD?
What are the related health complications with ARPKD?
What’s going on in PKD research
Living with PKD
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Washington Summary: Key issues for the 115th Congress
The 115th Congress convened on Jan. 3, 2017 Some changes are occurring in the key committees and subcommittees that deal with PKD issues: House Energy and Commerce Senate HELP Two Appropriations Committees When we have a complete list of committee […]
Washington summary: 21st Century Cures is signed into law and more
The 114th Congress is history. The new Congress convenes on January 3, 2017. 21st Century Cures Before adjourning, Congress gave final approval to the 21st Century Cures Act (now known as H.R. 34). President Obama signed the bill into law […]
Obama signs 21st Century Cures into law
On Dec. 13, President Obama officially signed 21st Century Cure into law. The bill passed through Congress in the past two weeks with strong bipartisan support, with the House voting in favor 392-26 and the Senate in favor 94-5. This […]
PKD Foundation welcomes new CEO, Andy Betts
We are excited to announce we have a new CEO, Andy Betts. After an in-depth national search to identify the best person to lead the Foundation, our Board’s executive search committee concluded that Andy’ expertise and experience are key to moving us closer […]
Washington summary November 2016
Congress returned to Washington, D.C. on Nov. 14. After another break for Thanksgiving, Congress will resume work at the end of November. FY17 Appropriations The continuing resolution (CR) that keeps the government working expires on Dec. 9. Congress is expected […]
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