News and Information
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Our 5th Annual Cocktails for a Cure was held on May 7. More than 100 people attended and raised $17,000! Thank you to everyone who supported the event and helped us honor Diane Newman Kahn for her volunteerism and support of the Hudson Valley Chapter. A special thank you to David Patterson and Jay Sweeney for performing at the event.
The 12th Annual Hudson Valley Walk for PKD will be held on Sunday, Sept. 20 at the Rockland Lake State Park in Valley Cottage, NY. We are excited to announce that the Walk will be a 5K, and is open to walkers and runners! The Walk for PKD is a family-friendly event for adults and children, with music, kid activities and lunch provided by NoCo Catering.
On Walk day, kids can participate in the Penny Kids Dash – a short, fun run included as part of the day’s events. Participation in the Penny Kids Dash is open to all registered children 12 and under. The Penny Kids Dash is a great way for kids to feel more involved on the Walk/Run Day. Many kids have also used the Penny Kids Dash as a fun way to raise funds for the PKD Foundation, with activities such as collecting pennies and other coins, a lemonade stand, car wash or doing chores for donations.
Interested in getting involved with the Hudson Valley Chapter? Email firstname.lastname@example.org for information on our next Chapter meeting. Whether you would like to volunteer, need support, or just want to chat, you are welcome to join any of our Chapter meetings. A conference call option is always available if you cannot attend in person.
Are you in need of support or just looking to speak with another PKD patient, family member or caregiver? Sandy Grossman is our Support Leader and she will do her best to meet your needs and get you in touch with the right person. Contact Sandy at email@example.com and let her know what you need!
Are you interested in PKD Advocacy? Concerned about PKD patients' needs being heard in Congress and the Senate? Please contact us for volunteer opportunities.
Local Events and Meetings
Hudson Valley Chapter Meet & Greets!
Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn about which medical professionals in the community specialize in PKD? Would you like to see more events happening in your local county or community? Interested in getting more involved with your local chapter?
The local volunteers of the Hudson Valley Chapter meet about every month, and are available for support and to share their experiences about living with PKD. If you would like to speak with someone, or attend a chapter get together, please email firstname.lastname@example.org.
Would you like to get involved with planning events?
Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD or Cocktails for a Cure events. Email email@example.com for more information.
Hudson Valley Walk for PKD
Thank you to all who joined us for the 2015 Hudson Valley Walk for PKD!
We had a great time! Check out some of our favorite memories from Walk day here. Check back soon for information on the 2016 Hudson Valley Walk for PKD.
2016 Hudson Valley Cocktails for a Cure
May 12, 2016
6 to 10 p.m.
Vintage Lounge & Restaurant171 Main StreetWhite Plains, NY 10601
Join us for our fifth annual Hudson Valley Cocktails for a Cure at Vintage Lounge & Restaurant! Come enjoy drinks, hor d'ouvres and live entertainment to raise funds for the PKD Foundation. For more information, please contact Darien DaCosta at firstname.lastname@example.org. For sponsorship information, click here or contact Darien DaCosta.
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Next Webinar Wednesday
Wednesday, Jan. 20, 12 - 1 p.m. CST
David will breakdown a published scientific journal article to explain it in simple, straightforward terms. He will discuss an article by K. J. Kelly, et al. in PLOS ONE titled: Improved structure and function in autosomal recessive polycystic rat kidneys with renal tubular cell therapy.
Latest National Webinar
Presented by: David Baron, Ph.D., PKD Foundation CSO
Why does a drug therapy take so long to find? Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D. as he uses his decades of experience in drug development to explain the process as it relates to PKD.
Watch previous webinars here.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.