News and Information
Are you in need of support or just looking to speak with another PKD patient, family member or caregiver? Sandy Grossman is our Support Leader and she will do her best to meet your needs and get you in touch with the right person. Contact Sandy at firstname.lastname@example.org and let her know what you need!
Are you interested in PKD Advocacy? Concerned about PKD patients' needs being heard in Congress and the Senate? Please contact us for volunteer opportunities.
PKD Foundation News and Announcements
We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding treatments and a cure. Baron's background in biomedical sciences and drug development will keep us moving forward with progress in research.
Local Events and Meetings
Hudson Valley Chapter Meeting
Chapter support meetings are another opportunity for you to have your questions and concerns about PKD addressed. We will do our best to provide you with answers or direct you to someone that can assist you. Everyone is welcome!
Although the Hudson Valley Chapter does not have any meetings planned at this time, we would still love to hear from you! If you have any questions concerning support meetings, please email our Volunteer Chapter Coordinators, Darien and Josephine, at email@example.com.
Hudson Valley Chapter Meet & Greets!
Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn about which medical professionals in the community specialize in PKD? Would you like to see more events happening in your local county or community? Interested in getting more involved with your local chapter?
The local volunteers of the Hudson Valley Chapter meet about every month, and are available for support and to share their experiences about living with PKD. If you would like to speak with someone, or attend a chapter get together, please email firstname.lastname@example.org.
Would you like to get involved with planning events?
Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD or Cocktails for a Cure events. Email email@example.com for more information.
Event Planning Conference Call Meeting
Tuesday, February 3
7:30 p.m. - 9 p.m.
This conference call meeting is open to anyone who is interested in getting more involved with the Hudson Valley Chapter, helping to plan events, or looking for support or general information about PKD. To participate, please call (641) 715-3200 and use the participant access code: 395781#. If you have questions or would like to connect with our Volunteer Chapter Coordinators, please email us at HudsonValleyChapter@pkdcure.org.
Event Planning Meeting
Tuesday, February 24
7:30 p.m. - 9 p.m.
This meeting is open to anyone who is interested in getting more involved with the Hudson Valley Chapter, helping to plan events, or looking for support or general information about PKD. It will be held in Peekskill, NY; if you are able to attend in person, please email HudsonValleyChapter@pkdcure.org for more information. If you would like to participate via conference call, please call (641) 715-3200 and use the participant code: 395781#.
Cocktails for a Cure
Thursday, May 7th
6 - 10 p.m.
Vintage Restaurant and Lounge 171 Main StreetWhite Plains, NY 10601
Join others in the Hudson Valley community as we honor Diane Newman Kahn and show our appreciation of her support of the PKD Foundation. Diane has served the Hudson Valley Chapter and entire PKD Foundation community over the past 11 years.
Your support will fund critical research to discover a treatment and cure for polycystic kidney disease. Join us for an evening of refreshing cocktails, delectable hors'deourves, and live entertainment by The Past Masters as we toast to a cure for PKD. Click here for more information.
$40 per person
Please register by May 1, 2015
Hudson Valley Walk for PKD
The Hudson Valley Chapter wants to thank everyone for participating and fundraising for the 2014 Walk for PKD. We had a very successful day and appreciate all of the support. We look forward to seeing you this fall at the 2015 Hudson Valley Walk for PKD!
Latest Free Webinar
Presented by Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center
On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he answers your questions, both pre-submitted and submitted in real time, during the webinar.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.