News and Information
Save the date: PKD National Convention 2016
Join us June 24 to 26, 2016, at the PKD National Convention in Orlando. You'll discover ways to manage your or a loved one's health from an all-star assembly of PKD experts.
PKD Patient Handbook
The newly updated PKD handbook is now available! The revised handbook has undergone extensive reviews and updating by PKD experts. Topics include PKD signs and symptoms, diet and nutrition, kidney failure, transplantation and more.
Download your digital copy today!
Our 5th Annual Cocktails for a Cure was held on May 7. More than 100 people attended and raised $17,000! Thank you to everyone who supported the event and helped us honor Diane Newman Kahn for her volunteerism and support of the Hudson Valley Chapter. A special thank you to David Patterson and Jay Sweeney for performing at the event.
The 12th Annual Hudson Valley Walk for PKD will be held on Sunday, Sept. 20 at the Rockland Lake State Park in Valley Cottage, NY. We are excited to announce that the Walk will be a 5K, and is open to walkers and runners! The Walk for PKD is a family-friendly event for adults and children, with music, kid activities and lunch provided by NoCo Catering.
On Walk day, kids can participate in the Penny Kids Dash – a short, fun run included as part of the day’s events. Participation in the Penny Kids Dash is open to all registered children 12 and under. The Penny Kids Dash is a great way for kids to feel more involved on the Walk/Run Day. Many kids have also used the Penny Kids Dash as a fun way to raise funds for the PKD Foundation, with activities such as collecting pennies and other coins, a lemonade stand, car wash or doing chores for donations.
Interested in getting involved with the Hudson Valley Chapter? Email firstname.lastname@example.org for information on our next Chapter meeting. Whether you would like to volunteer, need support, or just want to chat, you are welcome to join any of our Chapter meetings. A conference call option is always available if you cannot attend in person.
Are you in need of support or just looking to speak with another PKD patient, family member or caregiver? Sandy Grossman is our Support Leader and she will do her best to meet your needs and get you in touch with the right person. Contact Sandy at email@example.com and let her know what you need!
Are you interested in PKD Advocacy? Concerned about PKD patients' needs being heard in Congress and the Senate? Please contact us for volunteer opportunities.
Local Events and Meetings
Hudson Valley Chapter Meet & Greets!
Would you like the opportunity to meet others with PKD, receive or give support, share experiences, or learn about which medical professionals in the community specialize in PKD? Would you like to see more events happening in your local county or community? Interested in getting more involved with your local chapter?
The local volunteers of the Hudson Valley Chapter meet about every month, and are available for support and to share their experiences about living with PKD. If you would like to speak with someone, or attend a chapter get together, please email firstname.lastname@example.org.
Hudson Valley Chapter - PKD Awareness Day Meet & Greet
Thursday, Sept. 3
7 to 9 pm
Vintage Restaurant & Lounge
171 Main Street
White Plains, NY 10601
Thursday, Sept. 3 is PKD Awareness Day. Join us as we bring awareness to PKD together. Meet other people affected by PKD in the Hudson Valley community, share your experiences and stories, and get motivated for the Hudson Valley Walk for PKD on Sept. 20. Appetizers will be served.
If you have any questions about this event, please email email@example.com.
Would you like to get involved with planning events?
Please let us know if you would like to help plan an event in your area, whether it is an educational meeting or a fundraising event, or if you would like to get involved in planning the Walk for PKD or Cocktails for a Cure events. Email firstname.lastname@example.org for more information.
Sunday, November 1, 2015
Take on the Big Apple and run for PKD in the 2015 Bank of America Chicago Marathon to bring hope to those affected by polycystic kidney disease. The PKD Foundation is leading the fight to find treatments and a cure for millions of people worldwide who suffer from polycystic kidney disease.
For more information or to express your interest in the team, email us at email@example.com.
Hudson Valley Walk for PKD
September 20, 2015
Rockland Lake State Park
Registration is now open!
To learn more about the Hudson Valley walk or to donate, click here.
Sign Up to Receive Information From Your Chapter
Next Webinar Wednesday
Wednesday, Aug. 19, 12 - 1 p.m. CDT
PKD Foundation Chief Scientific Officer, David Baron, Ph.D., will explain how cysts form and why they are so problematic. He will also take time at the end of his presentation to answer your questions.
Next National Webinar
Tuesday, Aug. 18, 7 - 8 p.m. CDT
Kidney stones can be painful and occur more often in PKD patients than in the general population. Tune in Tuesday, Aug. 18 at 7 p.m. CT to learn from Dr. Arlene Chapman, Dr. Bharathi Reddy and Dr. Anna Zisman about what kidney stones are, why they happen and what can be done to treat them.
PKD Discussion forums provide a place for patients, family and friends to make connections, ask questions and share stories and experiences.