Keep Updated

Washington summary September 2016

Congress returned from its extended recess on Sept. 6, 2016. FY17 Appropriations Congress will not complete work on the bills to fund the NIH and the FDA for fiscal year 2017 (FY17, starting Oct. 1, 2016) until after the November elections. […]

PKD Foundation |

Washington summary August 2016

Congress continues its extended recess and will not return to Washington until Sept. 6, 2016. Many critical issues will not be finalized until after the November elections. Only one bill must be passed prior to Oct. 1, 2016. A continuing […]

PKD Foundation |

Washington summary July 2016

Congress has begun its extended recess and will not return to Washington until Sept. 6. Political conventions will occur in the last two weeks of July. August may provide an opportunity for PKD advocates either to schedule meetings with their […]

PKD Foundation |

Webinar Wednesday: A closer look at clinical studies

In our July, 2016, Webinar Wednesday, Chief Scientific Officer David Baron, Ph.D, discussed the clinical study process. Dr. Baron talked about how clinical studies are designed and how enrollment decisions are made. Watch the webinar

PKD Foundation |

Campaign raises over half a million dollars to advance PKD research

Thanks to the generosity of our strong PKD community, the 2016 Matching Gift Challenge raised $537,900. Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D., about how the funds raised with this campaign will impact PKD research.

PKD Foundation |

Meet with your elected officials in August

Did you know? Many members of Congress use August recess to hold constituent meetings in their home district offices. Now is the time to schedule your meeting with your elected officials! Share how PKD affects you and your family and […]

PKD Foundation |

Our new cookbook is here!

The wait is over! Our new cookbook, Cooking Well: Delicious everyday recipes for the PKD family, is now available in the PKD store. Find simple, delicious PKD-friendly recipes to help you make healthy choices without sacrificing taste. Head on over […]

PKD Foundation |

Washington summary June 2016

FY17 Appropriations Congress will not complete work on the bills to fund the NIH and the FDA for fiscal year 2017 (starting Oct. 1, 2016) until after the November elections. Yet, the Appropriations Committees continue to work on their respective […]

PKD Foundation |

Response to the shooting in Orlando

We are all shocked and saddened by the tragedy in Orlando on June 12, and share our deepest condolences to the people of Florida in their grief. The PKD National Convention will be taking place in Orlando soon, and we want […]

PKD Foundation |

Welcome to our new website

Greetings and welcome to our brand new website! Feel free to click around and explore new pages and the resources we have to offer, but first, read up on a few highlights on our new features: Our new site is mobile-friendly […]

PKD Foundation |

Washington summary May 2016

FY17 appropriations The House and Senate Appropriations Committees are working on their respective bills to fund the NIH and the FDA for fiscal year 2017 (starting Oct. 1, 2016). In April, the House Appropriations Committee approved its bill that includes […]

PKD Foundation |