Keep Updated

PKD Foundation welcomes new CEO, Andy Betts

We are excited to announce we have a new CEO, Andy Betts. After an in-depth national search to identify the best person to lead the Foundation, our Board’s executive search committee concluded that Andy’ expertise and experience are key to moving us closer […]

PKD Foundation |

Washington summary November 2016

Congress returned to Washington, D.C. on Nov. 14.  After another break for Thanksgiving, Congress will resume work at the end of November. FY17 Appropriations The continuing resolution (CR) that keeps the government working expires on Dec. 9.  Congress is expected […]

PKD Foundation |

New partnership with PKD Foundation of Australia to fund research

We are pleased to announce a new partnership with the PKD Foundation of Australia to co-fund a fellowship grant over the next two years. The two-year grant aims to increase the pipeline of researchers focused on polycystic kidney disease (PKD). […]

PKD Foundation |

My wife’s mother needed a kidney, and I was a match

Steven Russolillo earned two new titles this year: “husband” to his wife, Shelly, and “kidney buddy” to his mother-in-law, Batya. Polycystic kidney disease (PKD) runs in Shelly’s family, and in the summer of 2013, Batya’s kidneys started failing. A series […]

PKD Foundation |

Washington summary October 2016

Congress has begun its extended recess and will not return to Washington until November 14. The pre-election period provides another opportunity for PKD advocates either to schedule meetings with their two senators and representative or to attend political events prior […]

PKD Foundation |

Washington summary September 2016

Congress returned from its extended recess on Sept. 6, 2016. FY17 Appropriations Congress will not complete work on the bills to fund the NIH and the FDA for fiscal year 2017 (FY17, starting Oct. 1, 2016) until after the November elections. […]

PKD Foundation |

Washington summary August 2016

Congress continues its extended recess and will not return to Washington until Sept. 6, 2016. Many critical issues will not be finalized until after the November elections. Only one bill must be passed prior to Oct. 1, 2016. A continuing […]

PKD Foundation |

Washington summary July 2016

Congress has begun its extended recess and will not return to Washington until Sept. 6. Political conventions will occur in the last two weeks of July. August may provide an opportunity for PKD advocates either to schedule meetings with their […]

PKD Foundation |

Webinar Wednesday: A closer look at clinical studies

In our July, 2016, Webinar Wednesday, Chief Scientific Officer David Baron, Ph.D, discussed the clinical study process. Dr. Baron talked about how clinical studies are designed and how enrollment decisions are made. Watch the webinar

PKD Foundation |

Campaign raises over half a million dollars to advance PKD research

Thanks to the generosity of our strong PKD community, the 2016 Matching Gift Challenge raised $537,900. Hear from PKD Foundation Chief Scientific Officer David Baron, Ph.D., about how the funds raised with this campaign will impact PKD research.

PKD Foundation |

Meet with your elected officials in August

Did you know? Many members of Congress use August recess to hold constituent meetings in their home district offices. Now is the time to schedule your meeting with your elected officials! Share how PKD affects you and your family and […]

PKD Foundation |