ARPKD First Steps

You're child has been diagnosed, and you have read up on the basics of ARPKD. Now it's time to take those first steps towards becoming your child's main healthcare advocate. The following information has been developed to help you and your family feel more confident about the ins and outs of an ARPKD diagnosis.


The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.
National Headquarters: 8330 Ward Parkway, Suite 510, Kansas City, MO 64114. Phone: 1.800.PKD.CURE
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Founded in 1982, our vision is that one day,
no one will suffer the full effects of polycystic kidney disease.

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