Webinars

From free educational Webinars to presentations developed for the National Conventions on PKD, these informational videos are designed to give you the information you want and need most … presented in an easy-to-follow manner by experts in the field.

 

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Next Free Webinar

Kidney Allocation System Q&ADr. Clifford Miles

Wednesday, Dec. 4, 2014, 6 - 7 p.m. CST

Presented by: Clifford Miles, M.D., UNOS Kidney Transplantation Committee Region 8 Representative; Assistant Professor of Internal Medicine; Transplant Nephrologist, University of Nebraska Medical Center

On Dec. 4, 2014, the United Network for Organ Sharing (UNOS) and the Organ Procurement and Transplantation Network (OPTN) implemented a new system for allocating deceased donor kidneys to those on the transplant waiting list. Questions have come in asking how the new Kidney Allocation System (KAS) will affect PKD patients. Join us for a conversation with Dr. Clifford Miles, UNOS Kidney Transplantation Committee Region 8 representative, where he will answer your questions, both pre-submitted and submitted in real time, during the webinar. To submit a question for Dr. Miles, please send it to education@pkdcure.org with the subject line "KAS Webinar."

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Previous Webinars

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The HALT-PKD Study:
What Do the Results of this Study Mean for Me?

Dec. 4, 2014

Presented by Ronald D. Perrone, M.D., HALT study principal investigator

This webinar shared the results of the HALT-PKD clinical trials, which were announced on Nov. 15, 2014, at the American Nephrology (ASN) Kidney Week meeting. This was the first prospective, randomized clinical interventional study for adults with autosomal dominant polycystic kidney disease (ADPKD). These studies are important to the PKD community because neither the optimal blood pressure target levels, nor the best medications for control of blood pressure in ADPKD, were known when the study was started in 2006 (the study was completed in June 2014). Currently, the complications of hypertension, including stroke and heart attack, affect many more individuals with ADPKD than ADPKD-specific complications such as liver cysts or brain aneurysms.

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Jacob Taylor

Holiday Eating

Nov. 11, 2014

Presented by Jacob Taylor, Clinical Dietician at Children's Mercy Hospital

The holiday season is fast approaching, which means lots of family get-togethers, dinners and company parties. With food being a primary focus during these social gatherings, it can be a challenge for people with kidney disease to stick with their kidney-friendly diet. In this webinar you'll learn how to maintain your kidney diet, while still enjoying the most delicious time of the year. Jacob Taylor will also discuss his PKD Diet Study.

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Kelly Welsh

Reading Nutrition Labels

Oct. 14, 2014

Presented by Kelly Welsh, Renal Dietitian

Kelly Welsh, Renal Dietitian, presents a webinar about reading nutrition labels! If you have ever been confused by the information provided on food labels and would like to learn how to use the information provided to help you manage your kidney friendly diet…this webinar is for you!

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Dr. Neera Dahl

The Basics of PKD

Sept. 4, 2014

Presented by Neera Dahl, M.D., Ph.D., Assistant Professor of Medicine (Nephrology) at the Yale School of Medicine

Join us for an interactive discussion about PKD including a general overview of both ADPKD and ARPKD, common symptoms and frequently asked questions. Great for newly diagnosed patients as well as those who want to support a friend or family member with PKD.

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Webinar

Talking to Your Children About PKD

May 19, 2014

Presented by Howard R. Winokuer, Ph.D.

Dealing with the reality of PKD is a very difficult situation. It is challenging to know how to talk to your children, even young adults, about PKD. As a result of attending this webinar, you will understand how to talk with your teen or young adult about PKD. Our presenter for this webinar is Howard R. Winokuer, Ph.D. Fran Towey, Jr., and his daughter Katie will also join us to share their story of being diagnosed with PKD as a teen.

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Webinar

Straight Talk - Patients Share Their Unique Experiences with Dialysis and Transplantation

March 27, 2014

Presented by PKD Patients

Do you have questions about renal replacement? Is your physician telling you it is time to prepare for dialysis or transplant? If you answer yes to these questions, our latest webinar will help you be your best advocate as you enter the conversation about renal replacement with your health care team.

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Melissa Blevins

Straight Talk About Transplantation

Feb. 4, 2014

Presented by Melissa Blevins, RN, MS

What happens after you are told you need a kidney transplant? Melissa Blevins, RN, MS, will walk us through the process beginning when your physician tells you it is time to consider a kidney transplant. Learn more about what to look for in a transplant center, the medical professional team that will answer your questions and help you navigate the process, tests and evaluations required for transplant recipients and living donors, transplant costs, insurance coverage and much more. Transplant recipients will also share their experiences and our expert panel will answer questions following the presentation.

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Sara Howard

Straight Talk About Dialysis

Jan. 7, 2014

Presented by Sara Howard, RN, BSN Fresenius Medical Care

The PKD Foundation presents a free webinar to answer your questions about dialysis treatment options. Sara Howard, RN, BSN from Fresenius Medical Care will help us understand the dialysis process and compare dialysis options. The information presented will help you be your best advocate when approaching dialysis. PKD patients also share their experiences with dialysis and all of our presenters answer questions following the presentation.

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George Sifakis

The Affordable Care Act and Insurance Marketplace: What Every PKD Patient Needs to Know

Dec. 12, 2013

Presented by:
Jermaine Burkhalter, Centers for Medicare & Medicaid Services
George Sifakis, Axela LLC

Do you have questions about the Affordable Care Act (ACA) and the Insurance Marketplace? Join us and learn more about how the ACA will impact families dealing with chronic illness such as PKD and how to navigate the new Insurance Marketplace. Expert health professionals from the Centers for Medicare & Medicaid Services provide an overview of the ACA and the most current information about purchasing insurance through the Insurance Marketplace.

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Risa Simon

The Empowered PKD Patient: Proactive Strategies to Secure Your Best Life Possible

Oct. 23, 2013

Presented by Risa Simon, CMC

If you've been told to "Do Nothing" until you "Get Sicker" — or simply sense yourself floating in a sea of uncertainty, then join this enlightening session and learn from author, mentor and preemptive transplant recipient, Risa Simon, as she reveals life-changing insights doctors rarely share with their patients. If you (or a loved one) are looking to avoid the need for dialysis, or fear the long wait for a kidney might squelch transplant opportunities, look no further.

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Dr. Arlene Chapman

Tolvaptan FDA Response and Clinical Trials Webinar

Sept. 12, 2013

Presented by Arlene Chapman, M.D.

In this special webinar, Dr. Arlene Chapman reviews the FDA's response to tolvaptan. Otsuka Pharmaceutical Development & Commercialization, Inc. received a Complete Response Letter (CRL) from the U.S. Food and Drug Administration (FDA) regarding the new drug application for tolvaptan to treat adult patients with ADPKD.

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Kelly Welsh

Kidney Nutrition Essentials and Today's Trends

July 18, 2013

Presented by Kelly Welsh, Renal Dietitian

In this webinar patients with kidney issues will learn the building blocks of a solid nutrition plan. We'll also discuss some of what's trending in nutrition today to discover the pros and cons for kidney patients.

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Quick Notes on PKD: Kidney Nutrition Essentials NEW!


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Understanding Your Lab Results

April 10, 2013

Presented by Terry Watnick, M.D., Division of Nephrology, The University of Maryland School of Medicine

Find out what lab tests are important to kidney patients, what constitutes normal and when your health team needs to take action.

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PKD/CHF & Other Cystic Diseases: From Diagnosis to Daily Living

PKD/CHF & Other Cystic Diseases: From Diagnosis to Daily Living
A Conference for Parents and Caregivers

April 5-7, 2013

Sponsored by the PKD Foundation and Mount Sinai Hospital

Two-day conference for parents and caregivers of children dealing with ARPKD, advanced complications of ADPKD in young children, other cystic kidney diseases or congenital hepatic fibrosis (CHF). Topics covered include: daily living with cystic kidney disease, nutrition, dialysis, transplantation and treatment options.

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What's New in PKD: A Live Broadcast Day of PKD Learning

What's New in PKD 2013: A Day of PKD Learning

March 9, 2013

Experts from the Kidney Institute at the University of Kansas Medical Center share the latest information in polycystic kidney disease research, clinical trials, our Accelerating Treatments to Patients initiative and more.

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Natalie Torentinos

What the Affordable Care Act Means to the PKD Community

Dec. 13, 2012

Presented by Natalie Torentinos, Associate, Axela Government Relations, Washington, D.C.

The Affordable Care Act will change health care for millions of Americans – including PKD patients and their families. This webinar outlines the key aspects of the act which will be the focus for Congress and the Administration during this next term.

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Dr. Thomas Pearson

Kidney Transplants in Children

Oct. 16, 2012

Presented by Dr. Thomas Pearson Associate Director of the Emory Transplant Center and Director of the Kidney Transplant Program at Emory University Hospital in Atlanta.

The kidney transplant process in children poses some unique aspects as opposed to an adult transplant. This webinar focuses on the transplant process in children including pre and post issues including living donation and immunosuppressants.

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Dr. Pearson provided answers to the most frequently asked questions during the webinar available for download here.

Quick Notes on PKD: Pediatric Transplantation NEW!


Dr. Ron Perrone

Keeping a Positive Attitude with PKD

June 26, 2012

Presented by Valen Keefer

When faced with a chronic condition, it's easy to get down. So how do you stay positive? In this webinar, PKD advocate Valen Keefer talks about her experience with PKD and how she keeps a positive attitude. From perseverance to a grateful heart, there are things all of us can do to make sure we stay on the up side. As Valen says, “PKD will not beat me!” Find out how she lives that in her daily life.

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Dr. Ron Perrone

PKD Clinical Trials Update

April 24, 2012

Presented by Ron Perrone, M.D., Professor of Medicine at Tufts University of School of Medicine.

PKD clinical trials are an important part of the PKD Foundation's "Accelerating Treatments to Patients" initiative. There are currently many ongoing clinical trials for polycystic kidney disease patients - each providing help and hope to the 12.5 million people worldwide affected by PKD. In this webinar, Dr. Ron Perrone provides updates on ongoing PKD clinical trials, shares information from trials which have completed and explains the importance of getting involved in a clinical trial.

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Dr. Benjamin Cowley

2012 PKD Research Update

Jan. 24, 2012

Presented by Benjamin Cowley, Jr., M.D., Professor of Medicine and the Chief of Nephrology and Hypertension at the University of Oklahoma Health Sciences Center

We have made great strides in important PKD research, getting us closer to a treatment than ever before. In this webinar, Dr. Benjamin Cowley, Jr. will share the latest on what is happening in the field of PKD research.

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Julia Roberts

Day to Day Living with ARPKD

Oct. 11, 2011

Presented by Julia Roberts

Many parents don't know what the future holds when they have a child diagnosed with ARPKD (Autosomal Recessive Polycystic Kidney Disease) or other cystic kidney diseases. ARPKD advocate and mother Julia Roberts hosts this webinar to help guide you through some key things to be aware of when raising an ARPKD child.

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Robert Weiss

Cardiovascular Issues and PKD

June 8, 2011

Presented by Robert Weiss, M.D., Professor of Medicine at UC Davis and Chief of Nephrology at Sacramento VAMC

Cardiovascular issues are among the biggest problems associated with ADPKD. However, a heart condition's effect on the kidneys and the rest of the body is often relatively unknown to PKD patients and can be overlooked and underestimated. This webinar will help address some of what causes cardiovascular issues in people with PKD.

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Marie Hogan

Hot Topics in Kidney Nutrition

March 7, 2011

Presented by Kelly Welsh, Renal Dietitian

There's been a lot of buzz lately about certain foods and nutritional supplements which should be used to promote a healthy diet. Sea Salt, Probiotics, Vitamin D are just a few. But are these items truly good for people with kidney issues? Do they really help or are they potentially doing more harm than good? In our webinar "Hot Topics in Kidney Nutrition", Renal Dietitian, Kelly Welsh looks at some of the latest foods and nutritional trends and tell you what you need to know.

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Marie Hogan

Understanding Loss and Managing Grief

Dec. 7, 2010

Presented by Howard Winokuer, Ph.D.

Loss comes in many forms in our lives. How you manage loss, however, can have a great impact on your life. As part of our journey through life, we will eventually also experience loss of life of someone we know, love or care about. While natural, this loss can be one some people have difficulty managing. In this webinar, Dr. Howard Winokuer, co-founder of TO LIFE, a not-for-profit educational and counseling organization that specialized in issues dealing with grief and loss and head of The Winokuer Center in Charlotte, NC covers various aspects of loss and how you can manage some of the accompanying emotions.

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Marie Hogan

Polycystic Liver Disease

July 13, 2010

Presented by Marie Hogan M.D., Ph.D.

So what's the story with polycystic liver disease or PLD? How does it happen and what can be done about it? In this free webinar we'll help you better understand what causes PKD, its effects on the body and how to best manage the disease. Marie Hogan, M.D., Ph.D. is an Assistant Professor of Medicine in the Nephrology Department at the Mayo Clinic in Rochester, MN. Dr. Hogan has done extensive research and published numerous papers on polycystic liver disease making her one of the foremost authorities on the subject in the world.

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York Pei

ADPKD Related Complications

March 16, 2010

Presented by York Pei, M.D.

In a free webinar presented by the PKD Foundation, we'll help you better understand some of the complications related to ADPKD and how they can be recognized and managed. Some are relatively easy to distinguish and keep an eye on. Others require a more specific diagnosis and care, but the benefits can be life saving.

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Theodore Steinman

PKD and Pain

Jan. 12, 2010

Presented by Theodore Steinman, M.D.

In a free webinar January 12, Dr. Steinman walked participants through some of the main causes of pain associated with PKD, as well as some of the “associated symptoms” the kidney issues can cause.  During the one-hour webinar, hosted by the PKD Foundation, Dr. Steinman also shared thoughts on techniques used to reduce pain.

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Lisa Guay Woodford

What Every Family Needs to Know About ARPKD

Oct. 27, 2009

Presented by Lisa Guay-Woodford, M.D.

For families faced with an Autosomal Recessive Polycystic Kidney Disease (ARPKD) diagnosis, gathering as much information as possible is key to dealing with the disease. In this webinar, Dr. Guay-Woodford guides participants through the basics of the disease as well as outlining advances on the horizon.

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Dialysis Webinar

June 9, 2009

Presented by Benjamin Cowley, Jr.

As part of the PKD Foundation's new patient education program, you can learn all the ins and outs of dialysis in a free webinar! The webinar features general information about dialysis, discussion of the different types of dialysis available and tips for maintaining a healthy lifestyle while on dialysis.

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Kidney Transplantation Webinar

March 17, 2009

Presented by Dr. Robert Montgomery

On Valentine's Day 2009, this man accomplished a modern-day miracle. Dr. Robert Montgomery's team at Johns Hopkins University performed a 12-person Kidney transplantation. And on March 17th, he hosted a FREE online webinar to cover the ins and outs of kidney transplantation.

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Keeping Your Kidneys Healthy

Jan. 2009

Presented by Kelly Welsh

The second in our series of free webinars featured Renal Dietitian, PKD patient, wife and mother, Kelly Welsh, who explained what foods are good and those to avoid for someone with compromised kidney function.

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Basics of PKD Webinar

Oct. 2008

Presented by Dr. Ron Perrone

Nearly 1,000 people from across the US and more than 25 countries around the world took part in our first educational webinar. Dr. Ron Perrone of Tufts University Medical Center guided participants through a wide range of PKD topics.

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Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.