August 19, 2014
As part of the PKD Foundation's Accelerating Treatments to Patients program, we fund PKD-related scientific meetings that bring experts together and provide continuing education for health professionals.
We were a major sponsor of the Federation of American Societies for Experimental Biology (FASEB) Science Research Conference on Polycystic Kidney Disease: From Molecular Mechanism to Therapy Aug. 3-8, 2014, in Italy. The international conference welcomed prominent scientists working in areas experiencing rapid scientific advances and conducting cutting-edge research.
July 16, 2014
Kriste Lewis, a 40-year old mom with polycystic kidney disease (PKD), has become a New Orleans Saints cheerleader.
Lewis, who is a dance instructor, decided to fulfill her lifelong dream when she turned 40 and tried out for the squad last April. She said she used her age and health issue as an inspiration.
"Fourteen years ago I was diagnosed with polysistic kidney disease," Lewis said. "Eventually my kidneys will shut down [and] I will be in need of dialysis and in need of a transplant."
"That had a lot to do with me auditioning as well," she said. "I didn't want to waste a day."
Read more about Kriste and watch her interview on ABC's "Good Morning America."
Voices of PKD
Five years ago, at age 13, I was diagnosed with polycystic kidney disease (PKD) after a series of visits to the emergency room with severe abdominal pain and vomiting. PKD, which causes cysts to grow on the kidneys, eventually leads to kidney failure and can cause a kidney to weigh up to 30 pounds. I am the youngest person in my family to be diagnosed. PKD is a genetic disease and parents with PKD have a 50 percent chance of passing the disease to each of their children. My mother, grandfather and great grandfather all have PKD.
Not only did I find out I had a genetic disease with no treatment or cure, I also had to learn it was a disease that despite affecting thousands in the U.S. and millions world wide had many unknowns and inconsistencies. While as a young teenager all I wanted to do was ignore this imperfection I realized that because I was diagnosed at such a young age, I had the opportunity to help. Unwilling to accept the feeling of powerlessness when facing PKD my mom and I turned to The PKD Foundation, an organization solely dedicated to finding treatments and a cure for PKD, to get involved in a brighter future for the disease.