PKD Foundation Among Top 30 Grant-Giving Disease Foundations in 2014

Via "Genetic Engineering & Biotechnology News"

Following is a list of 30 nonprofit disease foundations that give grants and other awards (collaborations, fellowships) for research, ranked by the percentage of total revenues spent on those grants and awards. Not included are Section 501(c)(3) exempt private foundations (Bill & Melinda Gates, Clinton) or institutions that care for patients as well as carry out research (Dana-Farber, Mayo Clinic) or research institutes.

Figures for each disease foundation are based on their audited consolidated financial statements, which combine the results of numerous entities overseen by these institutions, although some information on research expenses and/or awards came from the Form 990s filed by each entity with the IRS.

As NIH's budget yo-yo'ed over the past decade, declining some years and staying flat others, numerous observers opined that disease foundations could help pick up the resulting funding slack. Yet over the past year, seven of 20 organizations listed last year by GEN have reduced their spending for research grants and other awards—and of the 10 organizations new to this year's list, four reduced research spending year over year.

While the reasons may vary from organization to organization, they suggest that disease foundations alone won't make up for what the NIH has taken away. Yet the foundations offer valuable help to researchers—not just a shower of cash, but targeted funding programs and perhaps most important, communities with which to share knowledge and collaborate on future studies. Their role in funding research can be expected to grow in coming years.

#30 Asthma and Allergy Foundation of America

 

% of Revenues Awarded as Grants:

3.7%

2012 Total Revenue and Support:

$3,207,492

2012 Research Expense:

$526,821

Amount of Research Grants Awarded:

$120,000

% of Research Expense Awarded as Grants:

22.8%

Headquarters:

Landover, MD

 

#29 National Parkinson Foundation

 

% of Revenues Awarded as Grants:

6.2%

Year Ended June 30, 2013, Total Revenue and Public Support:

$9,869,370

Year Ended June 30, 2013, Research Expense:

$1,254,976

Amount of Research Grants Awarded:

$615,814

% of Research Expense Awarded as Grants:

49.1%

Headquarters:

Miami, FL

 

#28 Children's Liver Disease Foundation

 

% of Revenues Awarded as Grants:

6.6%

Year Ended March 31, 2013, Total Incoming Resources:

$3,207,492 ( £1,656,717)

Year Ended March 31, 2013, Research Grants and Expenditure:

$526,821  ( £175,377)

Amount of Research Grants Awarded:

$120,000  ( £110,000)

% of Research Expense Awarded as Grants:

62.7%

Headquarters:

Birmingham, U.K.

 

#27 American Liver Foundation

 

% of Revenues Awarded as Grants:

7.0%

Year Ended September 30, 2013, Total Revenues, Gains, Losses and Other Support:

$7,210,089

Year Ended September 30, 2013, Scientific Awards Expense:

$505,152

Amount of Research Grants Awarded:

$223,454

% of Research Expense Awarded as Grants:

44.2%

Headquarters:

New York, NY

 

#26 March of Dimes Foundation

 

% of Revenues Awarded as Grants:

10.8%

2012 Total Revenue:

$209.981 million

2012 Research and Medical Support Expense:

$30.360 million

Amount of Research Grants Awarded:

$22.613 million

% of Research Expense Awarded as Grants:

74.5%

Headquarters:

White Plains, NY

 

#25 Arthritis Foundation

 

% of Revenues Awarded as Grants:

10.9%

2012 Total Revenue, Gains and Public Support:

$94,047,956

2012 Research Expense:

$13,454,241

Amount of Research Grants Awarded:

$10,204,609

% of Research Expense Awarded as Grants:

75.8%

Headquarters:

Atlanta, GA

 

#24 American Cancer Society

 

% of Revenues Awarded as Grants:

11.5%

Year Ended August 31, 2012, Total Revenue Gains (Loss) and Other Support:

$925.390 million

Year Ended August 31, 2012, Research Expense:

$160.139 million

Amount of Research Grants Awarded:

$106.882 million

% of Research Expense Awarded as Grants:

66.7%

Headquarters:

Atlanta, GA

 

#23 The Susan G. Komen Breast Cancer Foundation, dba Susan G. Komen for the Cure

 

% of Revenues Awarded as Grants:

11.6%

Year Ended March 31, 2013, Total Net Public Support and Revenue:

$325,202,243

Year Ended March 31, 2013, Research Expense:

$49,526,380

Amount of Research Grants Awarded:

$37,786,227

% of Research Expense Awarded as Grants:

76.3%

Headquarters:

Dallas, TX

 

#22 Chordoma Foundation

 

% of Revenues Awarded as Grants:

13.4%

2013 Total Revenue and Support:

$1,859,476

2013 Research Expense:

$536,763

Amount of Research Grants Awarded:

$250,000

% of Research Expense Awarded as Grants:

46.6%

Headquarters:

Durham, NC

 

#21 American Diabetes Association

 

% of Revenues Awarded as Grants:

15.1%

2012 Total Revenue:

$228.492 million

2012 Research Expense:

$45.376 million

Amount of Research Grants Awarded:

$34.540 million

% of Research Expense Awarded as Grants:

76.1%

Headquarters:

Alexandria, VA

 

#20 American Parkinson Disease Association

 

% of Revenues Awarded as Grants:

16.6%

Year Ended August 31, 2013, Total Revenue:

$8,871,339

Year Ended August 31, 2013, Scientific Awards Expense:

$1,599,057

Amount of Research Grants Awarded:

$1,472,147

% of Research Expense Awarded as Grants:

92.1%

Headquarters:

Staten Island, NY

 

#18 (tie) National Multiple Sclerosis Society

 

% of Revenues Awarded as Grants:

17.7%

Year Ended September 30, 2012, Total Support Revenue and Reclassification:

$216,363,554

Year Ended September 30, 2012, Research Expense:

$43,255,235

Amount of Research Grants Awarded:

$38,348,183

% of Research Expense Awarded as Grants:

88.7%

Headquarters:

New York, NY

 

#18 (tie) American Heart Association

 

% of Revenues Awarded as Grants:

17.7%

Year Ended June 30, 2013, Total Revenue:

$686.538 million

Year Ended June 30, 2013, Research Expense:

$133.628 million

Amount of Research Grants Awarded:

$121.647 million

% of Research Expense Awarded as Grants:

91.0%

Headquarters:

Dallas, TX

 

#17 PKD Foundation

 

% of Revenues Awarded as Grants:

18.3%

Year Ended June 30, 2013, Total Revenues, Gains and Public Support:

$9,247,810

Year Ended June 30, 2013, Research Expense:

$2,219,337

Amount of Research Grants Awarded:

$1,696,916

% of Research Expense Awarded as Grants:

76.5%

Headquarters:

Kansas City, MO

 

#16 Muscular Dystrophy Association

 

% of Revenues Awarded as Grants:

21.8%

2012 Total Unrestricted Revenues and Support:

$159,007,986

2012 Research Expense:

$38,447,079

Amount of Research Grants Awarded:

$34,624,936

% of Research Expense Awarded as Grants:

90.1%

Headquarters:

Tucson, AZ

 

#15 Alzheimer's Association

 

% of Revenues Awarded as Grants:

22.9%

Year Ended June 30, 2013, Total Revenues, Gains and Other Support:

$123.675 million

Year Ended June 30, 2013, Research Expense:

$28.323 million

Amount of Research Grants Awarded:

$15.069 million

% of Research Expense Awarded as Grants:

53.2%

Headquarters:

Chicago, IL

 

#14 The ALS Association

 

% of Revenues Awarded as Grants:

23.3%

Year Ended June 30, 2013, Total Revenue and Support:

$25,744,512

Year Ended June 30, 2013, Research Grants Expense:

$6,616,367

Amount of Research Grants Awarded:

$5,993,945

% of Research Expense Awarded as Grants:

90.6%

Headquarters:

Washington, DC

 

#13 Leukemia & Lymphoma Society (LLS)

 

% of Revenues Awarded as Grants:

23.5%

Year Ended June 30, 2013, Total Revenue:

$314.315 million

Year Ended June 30, 2013, Research Expense:

$79.234 million

Amount of Research Grants Awarded:

$73.811 million

% of Research Expense Awarded as Grants:

93.2%

Headquarters:

White Plains, NY

 

#12 Cystic Fibrosis Foundation

 

% of Revenues Awarded as Grants:

24.8%

2012 Total Revenue:

$297,680,022

2012 Medical Programs Expense:

$114,438,974

Amount of Research Grants Awarded:

$73,801,604

% of Research Expense Awarded as Grants:

64.5%

Headquarters:

Bethesda, MD

 

#11 Crohn's & Colitis Foundation

 

% of Revenues Awarded as Grants:

27.1%

2012 Total Contributions, Grants and Other Income and Support:

$55,618,638

2012 Research Expense:

$16,811,162

Amount of Research Grants Awarded:

$15,052,586

% of Research Expense Awarded as Grants:

89.5%

Headquarters:

New York, NY

 

#10 Foundation Fighting Blindness

 

% of Revenues Awarded as Grants:

32.3%

Year Ended June 30, 2013, Total Revenue and Support:

$44,754,198

Year Ended June 30, 2013, Grants and Clinical Trial Related Costs:

$17,502,363

Amount of Research Grants and Awarded:

$14,408,070

% of Research Expense Awarded as Grants:

82.3%

Headquarters:

Columbia, MD

 

#9 Brain Research Foundation

 

% of Revenues Awarded as Grants:

35.8%

Year Ended June 30, 2013, Total Revenue, Gains and Other Support:

$2,776,700

Year Ended June 30, 2013, Program Services Expense:

$1,266,474

Amount of Research Grants Awarded:

$992,780

% of Research Expense Awarded as Grants:

78.4%

Headquarters:

Chicago, IL

 

#8 Myelin Repair Foundation

 

% of Revenues Awarded as Grants:

37.9%

Year Ended June 30, 2013, Total Revenue and Support:

$4,617,385

Year Ended June 30, 2013, Total Research Program Services Expense:

$4,259,027

Amount of Research Grants Awarded:

$1,749,400

% of Research Expense Awarded as Grants:

41.1%

Headquarters:

Saratoga, CA

 

#7 Parkinson's Disease Foundation

 

% of Revenues Awarded as Grants:

49.1%

Year Ended June 30, 2013, Total Operating Support and Revenue:

$10,101,648

Year Ended June 30, 2013, Research Expense:

$5,934,056

Amount of Research Grants Awarded:

$4,955,820

% of Research Expense Awarded as Grants:

83.5%

Headquarters:

New York, NY

 

#6 Juvenile Diabetes Research Foundation

 

% of Revenues Awarded as Grants:

51.5%

Year Ended June 30, 2013, Total Public Support and Revenue:

$205.972 million

Year Ended June 30, 2013, Research, Net Expense:

$123.361 million

Amount of Research Grants Awarded:

$106.005 million

% of Research Expense Awarded as Grants:

85.9%

Headquarters:

New York, NY

 

#5 Alzheimer's Drug Discovery Foundation

 

% of Revenues Awarded as Grants:

60.2%

2012 Total Revenue and Support:

$12,393,897

2012 Program Services Expense:

$7,846,776

Amount of Research Grants Awarded:

$7,462,473

% of Research Expense Awarded as Grants:

95.1%

Headquarters:

New York, NY

 

#4 The Michael J. Fox Foundation for Parkinson's Research

 

% of Revenues Awarded as Grants:

63.0%

2012 Total Public Support and Revenue:

$87,836,044

2012 Program Services Expense:

$62,934,419

Amount of Research Grants Awarded:

$55,356,721

% of Research Expense Awarded as Grants:

88.0%

Headquarters:

New York, NY

 

#3 Rheumatology Research Foundation

 

% of Revenues Awarded as Grants:

65.9%

Year Ended June 30, 2013, Total Revenues:

$16,696,601

Year Ended June 30, 2013, Combined "Research and Education" Expense:

$12,182,322

Amount of Research Grants Awarded:

$11,066,968

% of Research Expense Awarded as Grants:

90.4%

Headquarters:

Atlanta, GA

 

#2 Cancer Research Fund of the Damon Runyon-Walter Winchell Foundation

 

% of Revenues Awarded as Grants:

73.6%

Year Ended June 30, 2013, Total Operating Revenue:

$16,771,403

Year Ended June 30, 2013, Research Expense:

$13,560,393

Amount of Research Grants Awarded:

$12,346,441

% of Research Expense Awarded as Grants:

89.5%

Headquarters:

New York, NY

 

#1 Melanoma Research Alliance Foundation

 

% of Revenues Awarded as Grants:

85.5%

2012 Total Revenues, Public Support and Other Income:

$8,692,431

2012 Research Expense:

$8,407,573

Amount of Research Grants Awarded:

$7,431,733

% of Research Expense Awarded as Grants:

88.4%

Headquarters:

Washington, DC

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100
info@yourdomain.org

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2014, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.