• Walk for PKD

    Registration is Open for Spring Walks!
    Walk for PKD this spring in Austin, Las Vegas, New Orleans and Washington D.C. Register today and start fundraising to earn your 2015 Walk for PKD commemorative
    t-shirt. Find your Walk and register today!

  • What is PKD?

    What is PKD?
    PKD affects thousands in the United States and millions worldwide — and yet, many people have never heard of it. Play Watch this short video and learn more about this little-known disease.

  • Run for PKD in Chicago

    Run for PKD in Chicago
    Join Team PKD this fall at the Bank of America Chicago Marathon. Registration closes on April 20, so make sure you sign up before it's too late!
    Join Team PKD in Chicago!

PKD News

ALERT: Forskolin Dietary Weight Loss Supplements Can Lead to Accelerated Growth of Cysts

April 13, 2015

It is vital to check with your doctor before taking any supplements or medications. Forskolin has been in the news recently as a weight loss supplement. Please note, forskolin is best avoided by people with PKD.

Forskolin is a substance found in the Coleus plant that enhances the production of cyclic adenosine mono-phosphate (cAMP). cAMP is a "second messenger" in various cells of the body, meaning it triggers changes to occur. As a second messenger, cAMP can cause certain cells to reproduce rapidly through cell division. Of particular interest to people with PKD is that forskolin causes the cells lining renal cysts to reproduce more rapidly, which leads to accelerated growth of the cysts. Therapies in development for the treatment of PKD are designed to prevent this growth.

For questions, please discuss this issue with your nephrologist or internist.

Mayo Clinic Living-Donor Kidney Transplant Webinar

April 10, 2015

Join Mayo Clinic for a live webinar on living donor kidney transplant on Tuesday, April 14 from 12-1 p.m. CDT. This one-hour, interactive webinar will give an overview of living-donor kidney transplant for donors and adult and pediatric patients. The webinar will feature Mayo Clinic Kidney/Pancreas Transplant Program Surgical Director Mikel Prieto, M.D., Pediatric Kidney Transplant Program Medical Director Carl Cramer, M.D., and kidney donor and pediatrician Phil Fischer, M.D. Dr. Prieto and Dr. Cramer will explain the advantages of living donor transplantation, preemptive kidney transplantation, paired donation and donor chains, the kidney transplant operation for donors and patients, how potential donors can be screened, and what patients can do to be in the best possible condition for surgery. Dr. Fischer will discuss his experience as a donor. After the presentation, the doctors will answer questions.

Join the Webinar

As part of Donate Life Month, the PKD Foundation will also discuss different aspects of the transplant process on its blog, PKD Connection. Get started with this week's article on the 7 steps of the transpant process.

Voices of PKD

Living with Polycystic Kidney DiseaseMaryKatherine Michiels-Kibler

Five years ago, at age 13, I was diagnosed with polycystic kidney disease (PKD) after a series of visits to the emergency room with severe abdominal pain and vomiting. PKD, which causes cysts to grow on the kidneys, eventually leads to kidney failure and can cause a kidney to weigh up to 30 pounds. I am the youngest person in my family to be diagnosed. PKD is a genetic disease and parents with PKD have a 50 percent chance of passing the disease to each of their children. My mother, grandfather and great grandfather all have PKD.

Not only did I find out I had a genetic disease with no treatment or cure, I also had to learn it was a disease that despite affecting thousands in the U.S. and millions world wide had many unknowns and inconsistencies. While as a young teenager all I wanted to do was ignore this imperfection I realized that because I was diagnosed at such a young age, I had the opportunity to help. Unwilling to accept the feeling of powerlessness when facing PKD my mom and I turned to The PKD Foundation, an organization solely dedicated to finding treatments and a cure for PKD, to get involved in a brighter future for the disease.

Read MaryKatherine's Story