April 22, 2015
Chef Michael Psilakis will be competing against fellow celebrity chefs on Food Network's fourth season of Chopped All-Stars. Michael's episode airs Tuesday, May 12 at 9 p.m. Central Time. If he advances and wins in the final competition round on May 26, Michael will donate $75,000 to the PKD Foundation, his charity of choice.
Read more about Chef Michael Psilakis
ALERT: Forskolin Dietary Weight Loss Supplements Can Lead to Accelerated Growth of Cysts
April 13, 2015
It is vital to check with your doctor before taking any supplements or medications. Forskolin has been in the news recently as a weight loss supplement. Please note, forskolin is best avoided by people with PKD.
Forskolin is a substance found in the Coleus plant that enhances the production of cyclic adenosine mono-phosphate (cAMP). cAMP is a "second messenger" in various cells of the body, meaning it triggers changes to occur. As a second messenger, cAMP can cause certain cells to reproduce rapidly through cell division. Of particular interest to people with PKD is that forskolin causes the cells lining renal cysts to reproduce more rapidly, which leads to accelerated growth of the cysts. Therapies in development for the treatment of PKD are designed to prevent this growth.
For questions, please discuss this issue with your nephrologist or internist.
Voices of PKD
Five years ago, at age 13, I was diagnosed with polycystic kidney disease (PKD) after a series of visits to the emergency room with severe abdominal pain and vomiting. PKD, which causes cysts to grow on the kidneys, eventually leads to kidney failure and can cause a kidney to weigh up to 30 pounds. I am the youngest person in my family to be diagnosed. PKD is a genetic disease and parents with PKD have a 50 percent chance of passing the disease to each of their children. My mother, grandfather and great grandfather all have PKD.
Not only did I find out I had a genetic disease with no treatment or cure, I also had to learn it was a disease that despite affecting thousands in the U.S. and millions world wide had many unknowns and inconsistencies. While as a young teenager all I wanted to do was ignore this imperfection I realized that because I was diagnosed at such a young age, I had the opportunity to help. Unwilling to accept the feeling of powerlessness when facing PKD my mom and I turned to The PKD Foundation, an organization solely dedicated to finding treatments and a cure for PKD, to get involved in a brighter future for the disease.