Jan. 5, 2015
We are excited to announce our new Chief Scientific Officer (CSO), who will be joining the PKD Foundation on Feb. 9. David Baron, Ph.D., will be leading the Foundation's work in research toward finding treatments and a cure. Baron's background in biomedical sciences and drug development will keep us moving forward with progress in research.
Learn more about our new CSO
Nov. 18, 2014
St. Louis – The OPTN/UNOS Board of Directors, at its meeting November 12-13, approved policies to ensure thorough and consistent processes are used in the medical evaluation and informed consent process for living organ donors. The policies specifically address living donation for kidney transplantation as well as segmental liver, lung, intestine and/or pancreas transplantation.
"These policies will support the needs and interests of people who choose to help a relative, a friend, or even a complete stranger through living donation," said Carl Berg, M.D., OPTN/UNOS president. "They standardize certain medical tests, evaluation criteria and informed consent processes at all transplant hospitals. The individual transplant team will still decide whether living donation is appropriate for a given potential donor. In many cases, the transplant program will perform additional tests and take additional steps to help them make that decision."
Similar policies have been in effect since February 2013 for living donor kidney transplantation, which is the most common form of living organ donation. The policies newly approved by the Board address commonalities for living donation of kidney, liver, lung, intestine and pancreas, while specifying additional criteria most appropriate to each organ type.
Voices of PKD
Five years ago, at age 13, I was diagnosed with polycystic kidney disease (PKD) after a series of visits to the emergency room with severe abdominal pain and vomiting. PKD, which causes cysts to grow on the kidneys, eventually leads to kidney failure and can cause a kidney to weigh up to 30 pounds. I am the youngest person in my family to be diagnosed. PKD is a genetic disease and parents with PKD have a 50 percent chance of passing the disease to each of their children. My mother, grandfather and great grandfather all have PKD.
Not only did I find out I had a genetic disease with no treatment or cure, I also had to learn it was a disease that despite affecting thousands in the U.S. and millions world wide had many unknowns and inconsistencies. While as a young teenager all I wanted to do was ignore this imperfection I realized that because I was diagnosed at such a young age, I had the opportunity to help. Unwilling to accept the feeling of powerlessness when facing PKD my mom and I turned to The PKD Foundation, an organization solely dedicated to finding treatments and a cure for PKD, to get involved in a brighter future for the disease.