Clinical Trials

Thanks to research funded by the PKD Foundation, clinical trials are now exploring several new therapies for PKD. Patients wishing to participate or learn more will find specific information about the therapies below. To participate in a clinical trial, you will need to have a formal diagnosis of PKD. To learn more, click here.

Updated: 03/06/2013

Other Studies

Observational	Phase I	Phase II	Phase III	Phase IV
Polycystic Kidney Disease Data Repository
Transplant Registry: Patients Who May Require Transplantation and Those Who Have Undergone Transplantation of Liver, Kidney and/or Pancreas
KoreaN Cohort Study for Outcome in Patients With Chronic Kidney Disease: A 10-year Longitudinal Cohort Study of the Chronic Kidney Disease (KNOW-CKD)

Polycystic Kidney Disease Data Repository

Observational
Sponsor:	Rockefeller University
Collaborators:	The Rogosin Institute, Memorial Sloan-Kettering Cancer Center, New York Presbyterian Hospital, Temple University
Status:	Recruiting
Age Group:	18 years and older
Enrollment goal:	300
Description:	To collect information about PKD so that investigators may fully understand its complications, including high blood pressure, heart attack and stroke. This information may also aid in the development of improved treatment strategies.
Contact:	Stephanie Donahue, NP 212-746-1591 or sld9001@nyp.org
Website:	NIH Study Details

Transplant Registry: Patients Who May Require Transplantation and Those Who Have Undergone Transplantation of Liver, Kidney and/or Pancreas

Observational
Sponsor:	Virginia Commonwealth University
Status:	Recruiting
Enrollment goal:	2,000
Description:	To make a systematic review of medical records of patients (with patient consent) in the Virginia commonwealth University Health System who have received a liver, kidney or pancreas or who may require one and to enter the data into a secure database.
Contact:	Robert Fisher, M.D. 804-828-2461 Mary Baldecchi, RN 804-828-7925
Website:	NIH Study Details

KoreaN Cohort Study for Outcome in Patients With Chronic Kidney Disease: A 10-year Longitudinal Cohort Study of the Chronic Kidney Disease (KNOW-CKD)

Observational
Sponsor:	Seoul National Unniversity Hospital
Status:	Recruiting
Enrollment goal:	2,850
Description:	The goals of the KNOW-CKD (KoreaN cohort study for Outcome in patients With Chronic Kidney Disease) study are 1) to establish a CKD cohort representing Korean CKD population for up to 10-year follow-up, and 2) to investigate the renal progression, mortality, complications, rish factors, role of biochemical parameters and the genetic influence.
Contact:	Kook-Hwan Oh, MD 82-2-2072-0776 Seungmi Lee, BA 82-2-2072-1592
Website:	NIH Study Details