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The PKD Foundation does not endorse any clinic, any doctor or any treatment provided by the clinics represented above. This list is provided only as an informational service to the PKD patient community.
If there isn't a PKD clinic in your area, here are some ways you may be able to find someone helpful in treating PKD.
Choosing a Nephrologist Familiar with PKD UPDATED!
Word of Mouth – Talk with other patients in your area with similar health concerns for a doctor recommendation. Your friends or co-workers may also know someone dealing with similar health issues that would share information about their health care providers.
Primary Care Physician (PCP). Ask your PCP for a referral to a nephrologist familiar with PKD.
Academic Referral - Try calling the closest major academic medical center or university hospital/medical school and ask for the nephrology department.
Issues of Insurance – You may be limited on what nephrologists or specialists you can see by your insurance provider. Make sure to check your insurance company's provider list.
Details of Referral – Consider all aspects of the doctor and the practice you are looking to join as a patient. Make sure the office meets your expectations for returning phone calls and getting in touch with your physician or nurse.
Be Your Own Best Advocate – To effectively use our current health care system, you must be your own best advocate. Do not be afraid to interview your doctor and ask questions.
For a detailed paper on Choosing a Good Nephrologist, read this article by Harvard Medical School Nephrologist, Dr. Ted Steinman.
Locating a Pediatric Nephrologist in Your Area
Finding a nephrologist familiar with issues related to children is important to getting the best care possible for your child. Locating a doctor in this specialty, however, can be challenging.
The American Society of Pediatric Nephrology www.aspneph.com has indicated families who need assistance in locating a doctor familiar with kidney issues in children can send an email to firstname.lastname@example.org. When contacted by families, the organization will provide a listing of all pediatric nephrologists in the family's home state.
Health Centers in Your Area
If you do not have insurance the U.S. Department of Health and Human Services offers a listing of health centers who can provide care for you, even if you have no health insurance. You pay what you can afford, based on your income. While these centers may not be able to provide a physicians who are specifically familiar with PKD, they can provide:
- checkups when you're well
- treatment when you're sick
- complete care when you're pregnant
- immunizations and checkups for your children
- prescription drugs for your family
- mental health and substance abuse care if you need it
Health centers are in most cities and many rural areas. Type in your address and click the 'Find Health Centers' button to find health centers near you. (Embed the link here) http://findahealthcenter.hrsa.gov/Search_HCC.aspx